1.13.16 “Wacky Sock Wednesday” #38

I was excited because I was working with Nick Montoni on Wednesday.  I haven’t worked with him since the summer so I wanted to see if he saw any difference in my ability.  We went to the black table in the middle of the 3 black tables.  Nick had me sit at the edge of the table while he worked on my ankles.  He stretched me before we started PNFs.  Chet sat behind me to keep the wedges I was leaning back against in place and Claire came over to hold the opposite leg in place as Nick stretched the other one.

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I asked Nick if he saw Heather at school (she’s back at CMU to get her master’s).  He told me that he did often and that she said “Hi.”  I smiled at that.  Then we started PNFs.  PNFs are routine to me now and when Nick lifted my leg, I was able to pull it all the way down as I’ve been doing for the past few months.  But Nick hasn’t been here the past few months and he raised his eyebrows in surprise and that also made me smile.  He bent my knee and I was able to take a picture of “Wacky Sock Wednesday” #38:

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My friend Hope got me these socks for Christmas and it was nice to be able to wear them for a “Wacky Sock Wednesday.”  As my time ended, my legs felt warm and loose.  Seeing Nick’s looks of surprise at my showing made me feel good and reinforced that I am progressing.  It’s just SO slowly that I can’t easily see it.

1.11.16 Jesse OR 11 Pounds

I worked with Sue and Claire on Monday on a table that was close to the Keiser wall mount.  The table isn’t normally there and Sue said we were going to work there so we’d be able to use the wall mount. We did our normal PNFs after I showed her the picture of my leg and how it looked last week by it was better now.  I told her also that my right butt cheek still hurt though.  Claire laughed and I told her how my right leg has ALWAYS been my “poop leg.”  I turned onto my stomach to do quad and hamstring PNFs and Jesse’s song came on.

It’s not the Jesse song that I have previously put on the blog that I have never heard it at Barwis  but one where I will FOREVER remember him dancing to it.  We were joking around.  I was sitting in my wheelchair at the Keiser machine and Phil was with us and Jesse hiked his shorts up over his knees and stuck his butt out and started dancing.  I laughed and laughed.  We all did.  Anytime I hear the beginning beat of Juvenile’s “Back That A** Up” at Barwis, I always smile and say, “Jesse!”  and can remember that day my first summer at Barwis when he was joking around and dancing.  Claire asked who Jesse was and I told her that he was my first trainer.  Sue says that she didn’t know him because she came after he left.

When we finished the PNFs, Sue had me flip over and she slipped the cuff to the Keiser machine on my left foot.  I was supposed to pull my leg completely down.  I did it but it was difficult!  I asked Sue how much weight it was and she told me that it was 11 pounds.  I told her it felt like 500 and she laughed and she that was what she meant to say.  I did these extensions with Nick Lucius awhile ago but then I only had 5.5 pounds of air resistance.

I texted Jesse and told him about hearing his song and my 11 pounds of air resistance.  He laughed about the song and said the 11 pounds was “actually pretty good.”  I told him that It really was! But the progress is SO slow that it is frustrating but I’m still progressing!

1.4.16 and 1.6.16 NOT A Good Start to the New Year

So that “wonky” feeling in my right groin turned to pain.  That pain continued so much so that I cancelled my Monday appointment.  I thought a couple more days of rest would do me some good… Well, it didn’t.  A dark purple bruise set-in in that “couple more days” so I had to cancel my Wednesday appointment as well.  NOT a good start to the new year!!!  It’s frustrating to say the least!

12.28.15 The Human Shuttle Take 3 OR 12 Minutes

I worked with Sue and Claire (an intern) on Monday.  It was my MS diagnosis anniversary so I didn’t feel great emotionally.  As Sue stretched me out, I recounted the events of my diagnosis 15 years ago.  Neither Sue nor Claire have heard this story and I’ve recounted it a number of times – as if I could forget that day!  I told them what that diagnosing doctor said (“You have MS. You’re going to go blind and then you’re going to die.) Then I told them what I said (mostly to myself, I didn’t know that I even said it out loud) (“I’m gonna have a baby.). They both reacted as everyone who hears that story.  They were in disbelief.  Granted, that doctor had a horrible bedside manner to tell a scared eighteen year old and her mother that she had a chronic neurological disease, a debilitating one, the way she did but it really stinks that she HAD to tell me I had it.  It STINKS to have it.

Sue continued to stretch me out and became “The Human Shuttle” again while we did our PNFs.  Then she had me sit up while Claire kept time on her watch.  I think it’s strange how it is SO DIFFICULT just to sit up straight but it is SLOWLY getting easier because of the nightly crunches as advised by Jesse and Phil to strengthen my core and I got myself a 6 lb. medicine ball for Christmas to work on all the A.R. exercises that I’ve done with Mike Morfitt at Barwis.   Sue didn’t have to have her hands on me to adjust my shoulders but instead could just tell me verbally as she stood a few steps away.

I sat straight up by myself for 12 minutes!  My core muscles were sore but I stood up 5 times.  Sue had my right arm and Claire had my left arm.  We tried a few times but I couldn’t get my hips (a.k.a my BIG BUTT) under me fully so Sue had Chet come over with the stretchy green band to put around my hips so he could help by puling me forward as I stood up so my hips could get under me.  We did this 5 times and I was spent!  My legs felt warm and loose and that felt good as my Mom drove me to my house.  But as we drove, my right groin began to feel a bit wonky….

January 2016 Faves

“Used To Love You”  Gwen Stefani

“Stand By You”  Rachel Platten

“Water Under the Bridge”  Adele

“Get Away”  Paperwhite

“Till It Happens to You”  Lady Gaga

“I Know What You Did Last Summer”  Shawn Mendes and Camila Cabello

“Victorious”  Panic! At The Disco

12.21.15 Activate: Super Quads!

My Mom pushed me into Barwis and we headed to the tables.  I ran right into Nick Montoni!  He was back and finished with college.  We hugged and he asked how my hamstring was.  I pushed myself over to where Sue was.  It had been one week since I had been to Barwis.  Sue asked how I felt as she wiped the table off and I told her that surprisingly, I didn’t feel bad.  She and Chet (a new intern) helped me onto the table and she stretched me out where almost immediately we began our PNFs.  Jake was there (my fellow Bronco) and Jon.  Megan yelled greetings to me as she was working with someone nearby.

Sue had me flip over onto my stomach and I used my hamstrings to push my leg down, flat on the table.  Then she would stretch my hip by pulling my knee up and had me pull my knee down to the table which I could do with LOTS of grunting on my part.  Sue told me that we were going to go over to the shuttle and that she was surprised that my legs didn’t feel that bad (referring to tightness).  She helped me sit up and I remained sitting for a while before transferring to my wheelchair.  I never thought sitting upright would be SO difficult but it is.  I sat for a little while and then transferred and Sue pushed me to the shuttle.

Sue and Chet helped me onto the shuttle and Sue adjusted me once I was seated.  Sue told me which muscles I needed to activate to straighten my legs (my quads) and how I need to turn them off and activate my hamstrings to bend my knees and slide down.  I straightened my legs with ease but was having difficulty changing up and turning my quads off and activating my hamstrings.  Sue was impressed with my “super quads” and I could tell because she was beaming.  I completed each rep so well that she added one band for my second set.  I completed them nicely but the set took longer.  She asked if I wanted to take the band off so I could, “bang ’em out.”  I agreed so we took the band off.  I closed my eyes, said, ” Activate: Suer Quads!” and banged the reps out.  It felt REALLY good that Sue was so happy with my performance!  I was tired but felt good as my Mom helped me into the car.

12.28.15 La Quinceanera

I’ve gone over the events of today so many times in my head in the past 15 years.  I can remember how it smelled and what that doctor said before turning on her heel and leaving.  Such profound words!

I never would have thought I would be in the place I am right now. Loss of control over my body was so slow that I barely remember being able to do things on my own.  I know that I used to be able to but my memories of doing so are vague.

I’ve  had MS for 15 years and only found Barwis about 2 1/2 years ago.  It’s hard for me to believe that it has been so long. When I was young I looked forward to turning 15.  My Quinceanera.  My party with the dress and church service and attendants (damas y chambalines) and subsequent dinner and dance at some hall where my family and friends would party all night.  Well, I didn’t have a Quinceanera when I turned 15.  I stood up in a couple and have been to a number but as a family, we weren’t that immersed in Mexican culture when I was 15.

I talked with my cousin a while ago and told her that my Quinceanera was coming up.  My 15th year having MS.  We laughed and joked but couldn’t believe that it had been so long.  I REALLY can’t believe it but what am I going to do?  I just deal with the days as they come and work hard at Barwis.  It hasn’t been easy nor do I expect it to be all of a sudden in the near future but I remember that today; I am La Quinceanera.

12.14.15 The Human Shuttle Take 2

I worked with Sue and it had been almost a week since I’d been to Barwis.  My legs were pretty tight  and Sue stretched my legs accordingly.  She took the time to  stretch me really good before we began PNFs.  My legs felt relaxed and stopped hurting which is normal whoever stretches me at Barwis.  My legs relaxed enough so we could do our normal PNFs.

She added in those other ones that still feel kind of strange.  The movements are improving but they still feel foreign and strange.  I guess it’s progressive but progress is SO slow!  It’s crazy how moving my legs can feel SO foreign but it does.  After we did these PNFs a few sets on each leg, we went back to our normal pushes and pulls.

As my time wore down, Sue told me that she wanted to work on the shuttle today but we didn’t have time so she mimicked the movements with her providing the resistance with our PNFs.  I told her that she was “The human shuttle take 2.”  She laughed and my time was up.  I thanked her for making my legs feel better and I was able to sleep well.

12.9.15 “Wacky Sock Wednesday #37 OR “Force Them to Relax” OR Good Sh*t

My legs were really tight and they felt “gnarl-y.”  I worked with Mike and it was evident how tight my legs were.  It took some REAL stretching on his part to get them to loosen up before we could begin our PNFs.  It had been a little while since I had last been there but the weather wasn’t bad so it really stunk that my legs were so tight.  He told me to, “Force them [my legs] to relax!”  It was silent for a moment and then we both started to laugh.  He admitted it was a contradictory statement and I continued to laugh at its oxymoronic nature but at the same time; I tried to will my legs to relax.  They slowly began to but it wasn’t from my will but from Mike’s strength.  Once my legs were loose, I could begin our PNFs.  Mike told me to pull my right leg down and I did as he held my leg up for resistance.  I pulled my leg down all the way to the table and when I was finished, Mike told me that it was, “Good sh*t.”

I laughed  and kept laughing every time Mike said it.  I joined in saying it too because I was making a good showing with my PNFs.  I pushed and pulled as if I knew what I was doing.  As if I could easily control my legs.  Mike raised my left leg higher so I was able to take this picture for “Wacky Sock Wednesday” #37:

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I tweeted this one but didn’t want to crop the picture any further because you could really see Mike’s beard that he’s been growing for a while.

I would like to report that I did extraordinary things but given how tight my legs were when I got here; all I can report is a good showing in my PNFs.  It frustrates me that I just get stretched the whole time but I understand the value of PNFs as Mike Rhoades used to explain to me so long ago.  I can only do so much when my body is resisting me so badly but over time; my PNFs have proved to be some “Good sh*t.”

Continue reading 12.9.15 “Wacky Sock Wednesday #37 OR “Force Them to Relax” OR Good Sh*t

12.7.15 A Flat Tire

So, I was scheduled with Sue yesterday.  My Mom picked me up from work and we got a flat tire.  Getting that taken care of takes awhile!  I called Elle to tell her I wasn’t going to make it. BUMMER!!!  I don’t know how to change a flat tire!

Check out what was in it:

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Man!  What IS that?!  That tire insurance was the wisest thing I did when I bought my car!  Thank you, Ali Reda!!!