My Mom’s appointment was at 1 o’clock and she arrived a little bit late. I got back into my power chair at 4:48. Slouching my manual chair helped so my knees didn’t burn, rather, it was a dull ache and I’m glad it has stopped.
My knees feel a lot better right now! It’s really hard for me to accept the fact that my manual here no longer works for me. In fact, it hurts but it is necessary.
I think it will take me a moment to unpack this feeling…
Oh, by the way, since being in my manual chair, I have lost a significant amount of weight. The pelvis stabilizer does not work for me because it is too big. However, because I am in a power chair now. Techswho come into my house are NOT allowed to work on my manual wheelchair. That stinks!
So, here I sit, with a belt that is too big! I’ll be happy when my power chair is fixed…
Insurance only pays for my current wheelchair. It’s not my manual chair anymore.
I dropped my pillbox the other day and the left side part that snaps broke off. That really stinks! I’m going to wait until the right side breaks off and then I’ll get a new one. I thought I took a picture of what it looks like, but I guess I did not:
That’s what it looks like when I pillage. This is my fourth pill box. I take 10 different supplements for a total of 45 pills. I will go in July to get dosed by Dr. Clark.
The latest supplement that I am on, I just called in and Erin gave me a supplement that I can take to help my my vision. The supplement that I stopped taking was not for my eyes, but my vision improved has an off-label benefit.
Well, this is my second full day not wearing compression socks and I must tell you that my right calf is not feeling good at all, which makes me a little nervous.
Today, my mom and I talked about the fact that he wanted me to get open toed shoes. We know the shoe store to get them From and my Mom was looking at them today. I’ve been wearing compression socks for so many years, over a decade. I don’t know how it will feel with my skin exposed, especially when I have to leave the house?!
The podiatrist wrote a prescription for open toed socks when I met him in January and now we are going to look and get it filled. This is so much?! It almost feels too much at this point, but there’s nothing I can do about it.
Day two sans compression socks, it’s okay I think. I think it started to feel a little bit achy…
Upon waking this morning, my hands were NOT numb. I was relieved to see that, and I began stretching my arms outward. In doing so, my fingers, my pinkies on both of my hands, began to feel numb. Kind of like it used to be when I was in college when I put my chin to my chest. It’s all changing!!!
Once I was seated in my chair, after I stretched my hands and my arms, I began hugging myself just like Diane has me do at RIM when I am getting my chair updated.
I really do not like how not good this is getting for me. But I’m on it. I have a vascular surgery ultrasound for my lower limbs on May 22. I see the vascular surgeon on June 26.
All of this is never ending and stuff just keeps coming! This is A LOT!!!
Today, when I got a piece of gum for the first time, it tasted like winter fresh. Like high school! I think I’m so nostalgic about Mr. Flint watching my feet. That’s where I’m at right now.
it tasted good so I went with that. I have been showing the blue five gum since 2014?! It was at Barwis. Adam gave me a piece because I had a bad taste in my mouth.
I’m locked in for Easter and I have not reneged on all the things I’m doing and that feels really good! Maybe it’s the fifth time through the Bible? I’m reading the catechism as well.
Well, today, I did what I said I was going to do. But, this morning my Mom came to my room and told me that she spoke with Ray at NSM. She was telling me something about work orders and the battery and I told her that I’ll talk to her after I drink my shake.
So, we talked about the message that I was going to send to Dr. Chamas. I thought about that today as I prayed, and my Mom went grocery shopping.
I thought that I would just call vascular surgery tomorrow because I was thinking about what I was going to say to my doctor about my wheelchair. I finished my prayers and I was able to call vascular surgery at about 4:15.
I am not supposed to wear my compression for my ultrasound. I didn’t think I was, but it is good to be sure. I just messaged Dr. Chamas on MyChart. She is. really good at answering me right away.
I’m happy that I did what I said I was going to do today because the rest of it was the same. I do the same thing every day. I just exist.
I asked my Mom to turn off the heat because it was a little bit warm this evening. Maybe tomorrow will be an AC day? But I’m not sure because there were also be 4° weather coming up as well. This is doing CRAZY THINGS to my body!!!
Yesterday morning, my jaw only hurt about a five out of 10. The day before, it was a 10 out of 10. Maybe a 12 out of 10.
But last night, as I was trying to fall to sleep, my feet were killing me!!! Sleep escaped me for a long while but eventually, I was able to fall to sleep.
I will call the vascular surgery clinic tomorrow to ask the preparation for my ultrasound. Apparently it’s only for my legs.
I watched both of the Elite Eight games with Sean today. I’m happy that Michigan is still in it. I saw that Capital one Jennifer Garner, same all Jackson, and Charles Barkley March Madness commercial three times today.
I still dig it:
i’m totally cool with being old:
So, I had my appointment yesterday with my internist. I was the last person to get to the lab and they locked the gate before my blood was drawn. The nurse showed us to the side door to leave because the gate was locked.
We went upstairs to the suite that is my doctor’s and we waited. As we started talking, I asked her about a shingles shot and she told me that I have to be 50 years old. She said, “Unless you are immunocompromised.”
Wait. What?!!!!
She said that since I’m not on medication that blocks my immune system. I don’t need it.
Wait. What?!!!!
I was diagnosed 25 years ago with Multiple Sclerosis and with that diagnosis, I wish that I understood that my body was not normal then. But man, does my body feel NOT normal now?!
Regardless of my choice of medical treatment my immune system is attacking my nervous system so of course I am immunocompromised!!!
After hearing that, I knew that I was just going to go to Meijer because I had called earlier and they said that I am eligible but I should call my insurance to make sure they will pay for it. My Mom did it and they do. We went to the pharmacy and my Mom started filling out the paperwork for me to get the shot.
She was reading the form out loud as she did it, she said, “You are 43 years old” I interjected and told her that I was 44. She gave me a funny look and asked me if I had a birthday? I told her, “Yes. 12 days ago.” We laughed just as the pharmacist came out and told us to stop filling the paperwork out because the insurance was not going to cover it
Wait. What?!!!!
He handed some paperwork to my Mom and phone numbers for her to call to discuss this.
At my appointment, Dr. Chamas gave me a referral to get some test done to test my blood flow in my limbs before my appointment vascular surgeon.
Looks like I will have to make another appointment. Either in April or May because the vascular surgeon is in June.
I have a doctor’s appointment tomorrow so it’s the eve of ‘go time’ and I am waking up early. It’s a physical for me. I get one every six months.That’s it for the month of March.