I left the house today for a haircut. It was 98°. My hair is cut and my eyebrows are waxed. Next week, I’m going to see Dr. Clark. Hopefully it won’t be as warm. Sean came by just before we left and he helped me get into the van. I was strapped in two shakes. I know he would hate me sharing this photo because he just got back from work; but this is what we did because it’s too warm outside for me; it felt like a sauna:
Tomorrow is a ‘go time’ and I’m leaving the house. I can’t believe how warm it was today!!! Wish me luck for tomorrow!!!
My GoFundMe account is still open and I got some good news today! After seeing the vascular surgeon, my veins are OK. I need to schedule an EMG with my neurologist. I see her virtually in August. I haven’t really received good information for a really long time!
This transition to heat really stinks. I hate that I want it to be hot when I can’t see when I’m over heated. But I woke up this morning with my ribs shaking to get the air on at about 11 today. This is doing absolutely terrible things to my body!!!
I remember when I was teaching in my last classroom. It was a converted closet and I taught 15 kids at a time for Read 180 and six kids at a time for Read Natually.
The room was small and my seating for my students consisted of two perpendicular folding tables. They were blue.I know, I have put pictures of it on my blog before but I was thinking about that because I always had a kid who would get in trouble sit next to me on my right.
I would tell them the first day of class then I am going to drop my pen a lot and I will ask them to pick it up for me often. I dropped my pen a lot back then, but that was a decade ago.
Fast forward a decade, and I cannot control my hands EVEN more. I can’t even write anymore.
I ordered these for my Mom because she has been leaving her phone places, like the grocery store:
I never thought that I would use them, but my hand control has gotten even worse and I drop my phone all the time. My Mom uses the gray one and now I am tethered to the black one. I know that it is for the best, but this disease progression has my head spinning!!!
I feel compressed! My Mom had a hard time putting my socks on today and I reminded her that it’s hot outside, my legs are swollen, and these are new socks!
I thought of this scene in this movie because I have seen it since I was a child:
Dujuan is coming on Monday, but I was able to get two pair of toe-less compression socks from the generous donations from my GoFundMe account
As I pillaged, I had to pause occasionally to take a breath because my legs feel completely compressed! It will get better, but it’s tight right now!!!
My Mom talked to Ray from NSM today, she left a message yesterday. Here is the deal: The order for my two motors has gone out of ‘ordering’ to ‘funding.’ It’s on step three of six. My second order for my joystick, is on step two of six. I have a lot of questions about that one because I don’t know the exact price yet. They concerns me a little bit, but I have a great group behind me!
Last Thursday, I swallowed my pride and put out a GoFundMe account a little bit after midnight. I was just telling my friend that I didn’t even draft it. Me, the writer?! I just told him that it’s too close to me and much too sad for me.
I had AI draft it which is something I’m really against and I feel that it will end up being the death of us.
I couldn’t embed the link so here it is just above:
I have to write about this memory that I thought of yesterday before I talk about the most dsifficult appointment I have had these last 25 years. It was for my eyes. Every time I have an appointment for my eyes, I think about taking Sean there when he was a little over a month old. He saw a neural ophthalmologist as well. That was because he was premature. I didn’t recognize the office. I think there was carpeting when I took Sean, but there’s no carpeting anymore.
It wasn’t very handicapped accessible office space. I didn’t like that part! We got situated In the waiting room and we’re just waiting to be called. A nurse comes out, I didn’t catch your name, but she had bright orange hair.
Before she came out, I was watching the TV that was pictures of eyeballs on rotation. It was kind of cool. The piped music played as I was watching this optical show. I thought of my Dad because they played this song:
As I listened to it and watched the cool eye stuff I was seeing, I thought of my Dad because when he saw this video, the shirtless guy in the beginning, he would always say, “He reminds me of your brother, Jimmy.” My brother was in high school back then. None of my brothers ever wear shirts!!!
Well, today was day 2 of sitting like an arrow! As straight as an arrow! There was a slight learning curve, and I have to get used to being this disabled!!! I wasn’t this disabled a couple months ago?!
Now, there are two things wrong with my power chair. At least two things. I wonder when the parts will come? This is an In opportune time for me because I have an ophthalmology appointment on Wednesday. My chair can just go forward and backward.
I am still going to go to my appointment because I made that appointment six months ago and my eyes are a thing now. I will see my optometrist in August.
All of this is so much!!! A little bit too much I think but there’s nothing I can do about that…
Late pillaging night. ‘Splain ya later.