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The night before last was the first time I slept in since the 11th because my chair was broken. I spent yesterday not feeling well and I don’t feel so much better today but last night, my Mom put my socks on inside out as I was going to sleep.

I told her to do that because it was kind of hurting putting them on my feet but I need to wear thicker socks when I go to sleep; it calms my nerves.

As my Mom was turning them inside out, she said, “Finding Forrester.” I kind of smerked and thought of a specific scene. I should rewatch that movie soon. Here is the clip:

So this has been going on for two days now and this was my feet this afternoon before I put on my compression socks:

It’s a little rough getting up so early in the morning but my Mom called me at 11:17 a.m. She told me, “You’re back in business! Your wheelchair is working!”

I exclaimed, “Thank God! Praise the Lord!” I was just thinking, I think it was the hydraulics on my chair, but that happened on March 11. I have been in my manual chair since then.

I am grateful that I still have a manual chair! I got it when I was still working so my insurance paid for it. I keep thinking I have been in my my power chair for eight years but now it is nine because it’s 2026.

I want to tell you that it has been so difficult to be sitting in it right now!!! I have had both of my legs extended for the most part since 2018. Definitely since April 2022. That’s when my pressure sores started! Sitting in this manual chair that does not allow my legs to extend has been so trying! I am praying so much, but I can’t help but think this was a great way to start off my 44th year?!

I absolutely know that you cannot plan for problems with your wheelchair! I’ve known that in varying degrees for the past 25 years!!! I must tell you that it kind of hurts that all of this happened at my birthday!

I had an inkling this year. That ‘birthday month’ wasn’t going to be a thing anymore and I definitely don’t want think about that now because this was an terrible birthday, but I can’t wait for my Mom to get back so I can get back into my power chair! That’s a GREAT birthday present!!!

So, I thought that I could ‘do anything for five days.’ Apparently NOT!!!

Today is day six and my chair is not getting fixed until tomorrow. Hopefully it will get fixed so I can have my appointments. I thought that I could handle it but today I feel it in my face and my knees are screaming and my lower back really hurts!!!

I have to get up really early tomorrow because my Mom should be out in Troy for a 9 o’clock appointment. She has already told me that she will call me before she leaves to let me know if my chair is fixed or not. If it’s not, I will cancel my appointment for my haircut on the 18th. I HAVE TO GO to my physical so we’ll just see about that!!!

I am going to sleep hopefully tonight! I’m hopeful that my chair will be okay and I can start using it again because this is very strange because it is showing me how far my disease has progressed since 2018?! 😒😒😒…

So, when I woke up to my alarm today (because I have to wake up to alarms now because I need help and Sean works) I tried to sit up in bed as I normally do when my bed is getting out of zero gravity. Well, that tweak went from a tweak to excruciating pain, and I stopped trying to push myself up in my bed.

That’s what I get though, it’s been eight years since I pushed myself in a wheelchair! I can’t do that anymore!!! My Mom told me if that if I work at it, maybe it’ll come back but then I said, “No. It’s gone.” She agreed. That stinks!

I just finished pillaging.

I’m frustrated at this late night!!!

I know that this really doesn’t matter but thank you!!!:

I should really think about proof-reading!!!

I was reminded of how much I do not like the change of seasons today. There is nothing like waking up to the sound of slick wheels on the asphalt?! it’s terrible! It has been terrible all day! But at least it’s raining and not snowing. My body does not like this at all!

I just wish that it would be a quick transition, but something tells me that it’s not going to be. This morning, I thought, “Oh, yeah!”

It’s a good thing that I have practice with these weather transitions. The thing is though, it’s only getting worse now after 25 years…

I sneezed a bunch during our routine today as my Mom was putting on my socks. She asked me what was going on, and I simply stated, “Change of season.

It’s a really good thing that we have not stopped using that Egyptian miracle on my face and I feel like it will be more chafed this evening!

My Mom counted the stuffing boxes today as well. I have six turkey and 13 chicken. She asked me when I was gonna change out the flavor, and I told her, “Soon.”

I’m currently using the Vanilla Bean chapstick but I think I may feel/smell the change in season when I leave the house on the 18th. I will be 44 then. Now I have to message my doctor. I really cannot believe that my life is this way?! #ItSucksToSuck!!! #MSsucks!!! 😒😒😒…

So, my February appointments are done and now it’s just time for me to settle in. I will not leave the house until March 18. I will be 44 years old then. I have a bunch of things to do regarding my internist appointment and I understand what I need to do. I will make that call on Wednesday. In fact, I will probably write it all in MyChart on Tuesday night.

This year is so much easier than last year! We found out how much can rentals cost last year and it’s a lot. I like that so far, I’ve just had two appointments each month. I had already budgeted for that years ago.

I might have three appointments in August and October but I’ll work that out. After I message Dr. Chamas’ nurse, I’m going to make an appointment for June for my circulatory system. I am settling into doing the same thing every day because that’s what I do. My Mom really does not understand that but it’s true.

I never once expected this to be my life, but it is and it makes sense to me. I’m settling in until March 18th. It has been too cold for too long and it’s doing insane things to my body.!!!

#ItSucksToSuck!!! #MSsucks!!! 😒😒😒…

I had my appointment today. The very first of its kind. It’s interesting. Before I left, I’m going again in August. My appointment was at 2 o’clock. I did not get down to the lobby until 4:28:

I snapped this picture in the hallway because it was my exam room number:

After I did that, my Mom took a picture of the exam room:

Jason and Chelsea prepped me and Dr. K was in the room for about five minutes. I have entered a new realm of dealing with MS now…

With that being said, #ItSucksToSuck!!! #MSsucks!!! 😒😒😒…