Category: Uncategorized

I am already thinking about my appointment on Wednesday because my Mom needs to pick up the van Tuesday evening because my appointment on Wednesday is at 2 o’clock. She wouldn’t be able to pick up the van in the morning and get me ready to go to my appointment.

Van rentals are 24 hours periods. My Mom is picking up the van tomorrow just before they close so then she can return it on Wednesday just before they close.

I am thinking about this today because tomorrow, I will set my alarm for 6:30. I am not used to having procedures in the middle of the day at the hospital. This disease progression ain’t no joke and I have never had one of these procedures before so I’m a little bit nervous because the last procedure I had related to this one did not feel good at all for eight days!

My Mom did my taxes last Saturday (I have to get them done early now ever since I was scammed) We figured out how many van rentals I had last year. I did the math and it cost me 4.6% of my income to rent vans. My medical care last year exceeded what I was making my final year teaching. I’m really hoping that this year it calms down a little bit.

I am not so sure about that though… #ItSucksToSuck!!! #MSsucks!!! 😒😒😒…

I love this song! I thought of it today and thought I’d share:

it has for my virtual endocrinology appointment today, I have to have another bone scan. A little bit different than the bone density one but based on that scan, they will see if I need any treatment.

I already can tell you that I will not take treatment from them. I have been treating my Multiple Sclerosis naturally. 25 years in, I am straddled on the line between eastern and western medicine. Eastern medicine is on my left and western is on my right. I am left-handed. At this point, I’m kind of leaning on my left hip because my right hip has osteoporosis.

Mu naturopath constantly tells me to check in with my medical doctors which I regularly do. This year, I’m not going to be able to see him until July because I have appointments with different specialties each month until then.

Today, the endocrinologist told me that I need a different test because it’s a little bit iinconclusive. She told me not to rush it, but the orders are in for it.

so this is how it worked for my virtual endocrinology appointment. Now, she told me that today on February 19. I will have that scan in October. I told Sean about it and he needs to come because it needs to be performed at New Center One and they do not have a hoyer lift team there.

This year, I only had three months available without a doctor appointment. It was June, July, and October because I don’t have appointments in October because we go to the Cider Mill. This year, I am going to have an appointment in October.

Well, my face feels better. My Mom really rubbed the Egyptian Magic on my face last night and it feels better. It was already looking better last night:

The CeraVe arrived today, but I don’t think I’m going to switch horses now. I also am going to order the Jergen’s Sweet Citrus lotion as suggested by my aunt Liss because she is my Dad’s sister and I feel that my skin is going to be a thing for me now.

It really reminded me of my middle school science project by posting these pictures of my face and I’m glad that it took a village and all of your suggestions helped out!!!

I never thought my skin on my face would be so sensitive as it is now but I think this is going to work!!! Thank you, Mrs. Hutcherson and Natalie!!!

My hair is cut and my eyebrows are waxed. I have to wake up tomorrow as well because I have a virtual appointment with an endocrinologist to discuss my bone density scan from last month.

I have to leave the house next week as well to see the urologist for a procedure which I think is not going to be comfortable at all! I’m a little bit nervous about that. Based on their findings, I’ll know when I need to see that doctor again. This disease regression is so much!!! I can’t even say too much because it’s happening!!!

So, my face hurts. High School Musical has been playing in my head and reminding me of my teaching days when I showed this video before we started reading The Outsiders.
We were talking about cliques in schools. That was a precursor lesson to discussions about the Greasers and the Socs.

What has been playing in my head is Sharpay saying that she doesn’t understand at the end of the song:

I thought that the Egyptian Magic cream/oil would make my face feel better, but it didn’t. It felt heavier than the coconut oil which felt like toner, but the Egyptian Magic felt like cream, but I think my skin is too sensitive for that now. I ordered CeraVe and it is coming tomorrow so I am wearing the Egyptian miracle tonight as well. Heavier is better. I really don’t understand what’s going on with my face!

My cheeks and my nose are not as red as they were with the coconut oil. I’m actually looking forward to the CeraVe and hopefully I’ll get a little more relief. #ItSucksToSuck!!! #MSsucks!!! 😒😒😒,..

I was thinking about the fact that next week is ‘go time.’ I’m already thinking about what bills I need to pay and the monthly necessities I need to order once my check is deposited.

I really can’t believe my life is like this now but it is. I more clearly thought about what my vaccine schedules should be. I can’t get my second shingles shot in May because I am getting my Covid shot. I get that every six months. I am more clearly seeing the doctors that I need to see as well. I’m hoping to add the vascular surgeon for June. That’s the doctor to handle the circulatory system.

My Mom asked me the date today and when I told her, I said, “Hey, my birthday is in a month.” She asked me how I feel about that and I didn’t have an answer. I thought about it for a while, and my answer is, “Eh.”

I, historically would love my birthday, and start an countdownuntil the day. Since it is February 12, which is Bobby Garrigan’s birthday, my birthday is in one month. T-30; but, given my current situation and it will be this way until I die. it’s whatever, I think.

Well, it’s here.

I guess that I have never really about it.

But, sadly it’s here. My life is 100% MS.

I pillaged today and it is getting so difficult to distribute the pills.

I was thinking about my vaccine schedule and I think that I should get my first shingles shot in March when I see Dr. Chamas. That way, it will be in the Henry ford health system and then I can get my second shot downtown after my neural ophthalmologist appointment.

That will be one day after two months from my first shot. I’m going to ask Savannah in March before my appointment with Dr. Chamas about getting a shingles shot.

Meijer pharmacy already said that I was approved and they have that information in the MICR record of vaccinations in Michigan. I don’t anticipate a problem, but I will go to Meijer if it is.

This is all my mind thinks about now.. I never expected this, but this is how it is now. #ItSucksToSuck!!! #MSsucks!!! 😒😒😒…

So, Leia come to us in April 2020. It took a few months, but we found out that she has really bad skin! We tried a lot of things, but it did not work for her at all.

it was decided that she would just become a prednisone dog. The vet told us it would shorten her life, but it is the only thing that helped with the itching.

Well, it’s been a few years and we have decided to take her off prednisone. It was affecting her organs too much.

So, if anyone has any suggestions how to help with her itching, I would love ideas!!! #MyGirlL he’s kind of a mess right now and it’s a little bit scary… please be specific. Pictures would be great.

It’s the eve of ‘go time.’ ‘Twilight sleeping’ tonight and this is all going to happen before I get paid the day after! ‘Splain ya later.