I saw this on Facebook a few days ago and it made me laugh. It made me think about looking at the comics the newspaper we used to get when I was a kid. My Dad used to read the entire paper on Sundays as well as during the week and we just read the comics!
My preferred day to pillage is Saturday. I just finished doing it so I am set for the week!
Sonya, the wound care nurse came over today and she said that my right foot looks, “Excellent!” It is doing a lot better and still hurts because it is new skin.
She measured both wounds on my feet and took my blood pressure. Because they are getting better, my blood pressure is closer to normal. My blood pressure is normally 90/50. In these past few months, each time she comes over, it’s around 116/72.
Today, my blood pressure was 96/60. That made me feel better knowing that it’s closer to my “Normal” but I really wish these feet would stop hurting by now!!!
The scars that came from my pressure sores are starting to get better! My right foot is just about healed. And it is pink new skin and it is very tender and it woke me up this morning!
With this whole pressure sore saga, I do not wake up rested, but rather, I wake up first because my feet hurt. I was told a long time ago that once a pressure sore heals, the skin that grows in is always compromised! This makes me nervous for my care in the future! How much do we have to pay attention to my feet from here on out? All I know is that right now, four months later, it’s still wakes me up in pain!!!
This afternoon, my Mom tended to my left foot because last night she tended to my right foot because the bandage got a little bit loose. Sonya It’s coming on Friday to change them again. Today, as she was changing my bandage and washing my left foot. She told me, regarding my feet, that all of this is exhausting and I completely agreed with her!!!
But, there is another thing going on as well! This year has finally become a problem. When I worked, I washed my hair every day with the exception of the week that we had to stay in a hotel because our power was out for like eight days. It was then when I realized how I’ll-accommodating places are! We had to change hotels on a Wednesday or some thing and so I was unable to wash my hair Thursday morning. I remember sitting in the teachers lounge eating lunch and Mr. Cooper asked me how it is going without power. I looked at him and pointed to my head and said, “This hair, is NOT clean!” I remember that he laughed but it really bothered me because I ALWAYS have a clean scalp!
But now, I no longer work and I am pretty much homebound. 21 years of MS has been difficult but now I have to make concessions. It is so exhausting just existing. With that being said, this is how it is now:
I have figured it out that I wash my hair ONLY when I am leaving the house! I NEVER thought that washing my hair would be as difficult as it is and I NEVER thought I would be okay with NOT washing it! Sonya is coming on Friday so I will wash my hair Thursday night. For now, it’s #DirtyHairDontCare but I secretly care but can do nothing about it because MS is just awful!!!
I think that it is a good sign that random songs pop into my head now that my feet are starting to feel better. Granted, they are just starting but it’s movement in the right direction. I just thought of this song and I am reminded of being in middle school at the parking lot across from Fr. Yagley Hall decorating cars for the homecoming parade! I think my brother was playing in the game because I was still maybe 11 or 12? And I remember my friend, Erica, singing this song as we were decorating cars before the parade endgame down the street on a crisp fall afternoon:
I knew that 21 of having MS would be difficult and it definitely has been a challenge thus far! I feel that Some of. my abilities are rapidly diminishing. One good thing about the government taking care of me in terms of medical supplies is that they’re really good at it! I took this picture last week as my Mom was trying to find a new place to put all the boxes we have been receiving from the medical supply place:
I am writing about this today because we received another box right now. The package we received today will be a change of dressing on my feet for Friday. My nurse, Sonya, is coming on Friday to change my dressings. My Mom told me that she will wait to change the dressings until after she sees Sonya do it so she will keep my bandages bulky when she changes them on Wednesday.
My Mom let me know that I need to change my “Butt sticker” Today and I started laughing hilariously! Let me explain:
The first thing Sonya did when she got to my house was to check my tailbone for signs of pressure. I did not have any which she said was good. When we went to the infectious disease clinic, Jen gave u these:
So, Jen gave us a whole bunch of these but I figured out that they are available on Amazon so I have to add one more monthly expense for my preventative health care. I know that these pressure sores on my feet hurt so terribly so I will definitely wear this, “Butt sticker” if it can prevent a sore like on my feet on my tailbone I will gladly pay for that added expense!!!
My optometrist appointment was last Thursday. I think it has taken until today, right now, to fully sink in. That horrible doctor was correct! I think I’m a long way from being blind but Dr. Harris did not change my prescription because he wants me to be able to see up close and if he strengthens my prescription, I would lose my nearsighted ability. He says that that is better in my situation then seeing far away.
I think that he is correct and as I was wiping the tears from my eyes with my left sleeve, because it is quite difficult not to be able to see clearly even with contacts or glasses. I thought of this song and I saw myself and either my cousin, Melissa, my cousinT, Shannon, or my friend, Heather growing up In the backseat of my Mom’s station wagon singing along with this song.
I just searched it on YouTube and had to listen to it just before I wrote this blog post and I still remember the words and I could see myself in the backseat of that station wagon, singing!
Last week, I had 2fera van rental. I needed a haircut again ;because I keep it short) and I needed contacts. I heard that song that reminds me of my haircut place. It’s been my haircut place for a long time but my family went there because my mom took my brothers there to get haircuts. When I was young, I didn’t get haircuts. I heard this song and remembered hearing it when I was sitting in the wedding room when I was young:
The next day because I can only do one thing a day, I went to the optometrist and I heard a song that was a complete CCA song (I distinctly remember hearing it play in the cafeteria just outside my classroom door all of the time.
But, because my short term memory is so affected, I can’t remember the song now so I can’t post it but I reposted this one because it reminds me of being a kid!
So, I went to the optometrist on Thursday and I got not good news and all but I guess it’s really not surprising. I sat in my wheelchair with my eyes still kind of dilated but I could post on my blog because I use voice to text capability’s ty on my phone. So, I got the good news! I kind of wanted to laugh off my “Poor” eyes but I really thought I would beat MS but obviously, I am NOT so I Sam sad thinking about that.
My Mom was in the kitchen and she came into the living room to see if I need to know anything. I still had my sunglasses on and I looked at her and my Lips started to quiver.
She looked at me and put her arms out to envelop me in a tight hug. she could feel my chin quivering against her shoulder and she commented and the tears kept coming!
Then I felt two little paws on my left arm. #MyGirlL wanted to get in on hour hug so I left my laptop up to put it over her back and she nuzzled her Little head on my side. She is absolutely my sweet girl! It is so adorable that she hugs us and I think she likes me too! I KNOW that I love her!
I am still trying to deal with that news from the optometrist and I am seeing the ophthalmologist in October. I am experiencing so many losses in this 21st year but I guess it’s been a slow shipping away that that I am just nowadays zrealizing.
I had my optometrist appointment today. My eyes are still dilated and I am sitting in my living room wearing my sunglasses while my eyes calm down. I had a new optometrist today. Dr. Harris. He said that I have been with Henry Ford for a long time because I have and with Henry Ford vision center for a long time as well!
He looked at all the data that Amani (The Intake technician) collected before my appointment and he looked at all of the numbers and said that my vision is, “Poor.” Then he assessed my eyes. He told me that my retinas and my corneas look great but the optic neuritis has taken it’s toll! He asked when I was seeing Dr. Scarf again and I told him that I will see him in October.
He kept my prescription the same because he said that if he makes it any stronger That it might mess with my nearsighted vision. I guess it has started to happen that that horrible Doctor who told me I had MS told me I would go blind and it’s looking like it’s getting there but Dr. Harris told me these are NOT the worst ties he has seen! So there’s always that?! But when he was testing my vision, I was looking at the big E. That’s all I could see!