Category: Tunes

I had written on Saturday that my Mom and I went to get an adjustable bed for me but I was too tired to write about it. I think I will try to do that today. We went to Ashley HomeStore:

As you can see, we rented an accessible van for me to go there in my power chair. The man who helped us was named KJ. He explained all of the Features of the bed and my Mom got on first as he was explaining it to us.

Then, it was my turn to get on the bed. It wasn’t until the end of our visit there that my Mom asked KJ what he thought about us moving around because she noticed that he was watching us. He told us that he was humbled and that he would never complain about anything ever because he watched us work together and he saw my Mom‘s strength and commented on that.

it was about halfway through our visit where I had to take my glasses off and put my sunglasses on because the fluorescent lights in the show room or too bright for me. I had to wear my sunglasses in Best Buy as well so I guess I need to get prescription sunglasses because it’s difficult to not have my glasses with the prism on the lens Because now it is at a point where my right eyeball pulls outward trying to focus. Needless to say, it does not feel good!!!

I was seated in my power chair as KJ wrote up everything. I took that time in my chair and thought about my Dad agreeing with my Mom saying that it was going to be expensive and then they needed to help me.

When it was all said and done and we were exiting the store, I was grateful that I was wearing my sunglasses because I was thinking about my Dad and I completely know the answer to Bob Marley‘s question about it being love because I completely know that yes, it is and I have a single bed now. I didn’t wipe away my tears because I didn’t want anyone knowing that I was crying but they were tears of gratitude for my parents. They love me!

So, yesterday my Mom and I went to look at an adjustable bed for me:

I’m still recovering from going out yesterday but after I laid on the bed and we discussed payment and delivery, I heard this song as the guy walked to write up the paperwork:

Man, I am OLD I hope this bed will feel like a pocket full of sunshine!

I woke up really late this morning, it was really afternoon, and I’m going to spend the day recovering and trying to figure out what kind of blog post to write about my new bed that we got yesterday but my Mom took this picture of Leia today just minutes after she finished uncovering me.

I sent this picture to Sean and I told him that she is Ariel. But then I had to explain the reference to The Little Mermaid to him because that’s MY movie but NOT his! But I told him that she wanted to be ‘where the people are.’

So, tomorrow I have an appointment to look at and possibly, (most likely), order an adjustable bed for me. It will be a twin sized bed. It will just be my Mom and me going to look at it. Sean’s friend won tickets for opening day and he has been friends with Sean since they were four years old and in preschool. When is he ever going to sit in the third row without paying for it?! It’s just my Mom and me who do almost all of my transfers anyway.

I gave my Mom a warning that I may cry tomorrow. My Mom responded with telling me to keep all negativity away but I told her just as my voice started to crack and with tears in my eyes, “My Parents love me.”

I had a virtual appointment with my Speech Pathologist yesterday and I talked about going to look at the bed tomorrow. I told her that I have not bought a bed since, and it took me a moment to think about it, since 2006?!

My bed is STILL super comfortable and the only reason I am getting a new bed is because my disease dictates it. My Mom read my blog post about my Dad agreeing that they needed to help me and she says that I misquoted her. She told my dad, “This is going to be expensive, Ray.” To which my Dad answered, “Yeah.” And then my Mom continued, “We have to help her.”

My Mom has told me that this bed is a gift. I told her after a few days of letting that sink in that the only reason that I am accepting it is because I can hear my Dad say, “Yeah.”

In attempt to keep my tears at bay tomorrow, I will be singing this song in my head:

Last evening, I was on my phone puzzlin’ and listening to music as my Mom laid down. I listen to Apple Music as I puzzle and it was on shuffle but when I heard this song I laughed out loud and clearly remembered Sean and I laughing in the car at what the DJ said as we drove to Barwis:

Sean texted me right back and I laughed at his responses but he called me later and we talked about it and he remembers that it was on the pulse and the DJ said that a tiny, 13 week old baby does not know a world without Nate and Pink being #1”

Sean was 11 and we were going to Barwis and it was the summertime and that was the hit song that summer. I love that we both remember that so clearly!

I meant to write this in my previous post but it was a little long so I decided to end it. Anyway, when I put pictures or YouTube videos into a blog post, I need to do that using my phone and then I wait a while and then I can pull it up on my iPad so then I can speak the text and be able to enlarge it so I can see the words whereas with my phone, I can’t. There have been many times over the years where I have lost complete blog posts because of my disease progression and switching from my phone to my iPadSo, I decided to just post that blog post and write another one like I am doing now. so, Sean texted me regarding this song and how it was trending on TikTok.

He told me that Tik Tok will play five seconds of a song on repeat while the video plays. I told him that they need to make a TickTock video with this Gavin Degraw song on it because I love that line!:

Sean started to laugh and told me that he will email China with his TikTok requests. And then we both started to laugh about the absurdity of what I just said! We left for a long time and I like that it has always been that way with us. He has always made me laugh! But now I have to put both songs that were referenced in this blog post, in this blog post:

This short part of the song would be great for a TikTok video but I’m not sure what you would do in it…

Both of these songs are sprinkled all over this blog and I’m sure it’s not hard to understand what I was thinking of when I listen to these songs over and over again but I like that Sean and I can and had a GREAT laugh about it now in retrospect!

Sean texted me last night to tell me that a song that I used to play all of the time is trending on TikTok. I listened to this song and he was completely correct that I used to, “Bump it.” And it really got me thinking about the fact that he remembers me playing that all of the time. I texted him back and told him that I’m sorry for him having a front row seat to all of my dramatic heart breaks!:

I can pinpoint the exact season this song came out! We were still living in our second apartment and it was only going to be my third year teaching. It was the summer that we went to Florida to seek medical treatment for me. I remember hearing this song while sitting in the car waiting for Sean and my Mom to come out of wherever they were at in Florida.

This song was definitely before my barrage of heart wrenching Sara Bareilles songs and even before Carly Rae Jepsen but those are songs for a different blog post that I probably will never write! Sean called me today and I gave him my retrospective apology for having him be witness to all of my heart break! It’s only now that he’s older that he realizes that is what it was. I never cried in front of him or anything, the only thing I did was eat lots of Tim Bits and he didn’t mind that so much!

I have known four years, almost a decade I think that anytime I get together with my family, I need a day to recover afterward. Well, now I am 40 so … it’s looking like I will need two days to recover because yeah, I still need a little more time to recover but I will leave you with these pics from my “2 Sacreds” celebrating with me:

i’ve just been trying to collect myself since celebrating and I have been listening to my U2 playlist on Apple Music on shuffle and I heard this one and it made me smile and remember going to a comedy show downtown on a double date:

So, all I have been doing for the past couple days is trying to recover from the excitement of all of the birthday wishes on Facebook and on Twitter. But, I am 40 now so… seems like it’s taking a little longer now.

My birthday was filled with well wishes on both Facebook and Twitter. I felt so welcomed all day and I had an excellent birthday! One message I received from a Facebook friend made me laugh so much! I listened to the song twice! Thanks Ryan! 😂😂😂 I AM 40 now!!?