I have Barely Spoken

It’s miserable today! I have barely spoken and my Mom went to pick up the van for my appointment tomorrow.

I can say Dr. K’s name when I am looking at it to check in for my appointment, but when I see her and she says her name, I can’t get it so I just called her Dr. K.

I spoke to Sean a little bit and I told him about why I am nervous. Dr. K is going to explain to me my prognosis for dealing with my future, calculi. Because they will happen again! But, it took 24 years for this one to get the size it was so maybe I can wait another 24 years? I don’t know.

I will have the cystoscopy when it is needed, but it kind of hurts and takes a while to heal. That’s why I’m nervous! We’ll just see what she says tomorrow.

As my Mom left to pick up the van, I thought of this song because I’ve barely spoken:

I thought of this song because of this line:

Screenshot

That song does not fit with anything at all, but I just wanted to hear her voice I guess.

The Worst So Far

I got good news at the doctor on Wednesday. So far, my eyes seem to be hanging on! At least my left one! But recovery is a WHOLE OTHER THING!!!

I keep telling my Mom that I have never had MS this long and it sucks to suck! That’s all I can be said, but this recovery time has been the worst so far and I’m not looking forward to future recovery when I hear bad news at the docto. I think that Wednesday’s appointment is not going to be great. I’m a little nervous about that.

I keep listening to this song because this is ‘not my choice.’ Yesterday, my Mom asked me if I was crying (as I was listening to it) and I just said, “Yes.”:

Off-putting

So, I read this article this morning once I woke up:

https://parade.com/news/korn-gets-disappointing-response-to-lollapalooza-set

I was immediately taken back to a time when I think I may have been 23?

I was driving (back when I still could do that) and this song came on the radio. I remember this song from high school and I loved it! What I did not expect was that my passenger who was a computer engineer when I met him started singing along right after, “Go!” he knew all of the words and that completely floored me! He was a hard-core rocker in high school, maybe goth? with long hair. I don’t know him anymore, but I guess that old habits die hard! I witnessed that! It was kind of crazy or off-putting:

The Only Hope

I saw my optometrist today. He looked at Dr. Bansal’s notes and explained that my eyes haven’t changed. My contacts have not changed either. I’m still a -7.5. I’m happy because I have another box of contacts that is a whole 45 days so I don’t have to worry about ordering more contacts right away!

He did NOT dilate my eyes today and he checked the pressure, that was the last thing he did. When he was finished checking the pressure, he let me know that it looks like my left eye is holding on quite well! I smiled and kind of laughed a little bit, and said, “It knows that it’s the only hope!!!”

But know that this was immediately in my head when he said, Left Eye:

I heard, “Scrubs” last month at my haircut.

But this one reminds me of middle school basketball season. I think I’ll share this one:

He asked when I have to see Dr. Bansal again and I told him in one year and he said that I don’t need to see him until next year either!

This weather is still rough for me but I don’t need to leave the house until next Wednesday. That’s for Dr. K. There is already a Care Journey in my MyChart account. This all started in January and it will hopefully get to some resolve when I see her. I’m a little nervous about that one too!!!

My Aunt Rita

My Mom has been listening to Carly Simon lately and she talked about this song and we listened to it as she put my compression socks on.

This song will always remind me of my aunt Rita!!! I remember when I must’ve been 24, no – I was 23 because I was student teaching when I was waiting in the living room of someone I used to know to get out of the shower. I was watching Baby Boom and they came downstairs. He asked me why I was watching a movie geared toward middle-aged women.

I completely ignored the sarcasm and simply told him, “It reminds me of my aunt Rita” as I changed the channel. So of course, we HAD TO watch that movie today (which I bought last year). My Mom got tired and decided to lay down for a nap just as this song was coming on, so I stopped the movie and we will watch it tomorrow.. Here is the song:

Dearborn Lions-Silver

I watched this video yesterday:

I will admit that some of these were and ARE overplayed, but two of them remind me of my seven-year-old son and his football team all in oversized, shoulder pads and dancing in the end zone!!!

That was such a great time! Here are the two songs:

Whenever I hear either one of those songs, I see my son dancing in the end zone with his friends at Dearborn high school and I love it!!! Dearborn Lions-Silver!!!

This was all back when I could still enjoy watching football. #MSsucks… 😒😒😒

“This is NOT my choice”

So, my shoulders feel funny! It took me a minute to realize, but my shoulders felt like this when I had Sean. Anesthesia does not work with me, but I had to do what I had to do, but this is not my choice as Sara aptly states:

I’m so grateful that everything is over for July. Now, I will wait until August 5 to get my eyes checked by my optometrist. It is my hope that he will explain to us what Dr. Bansal found as my neural ophthalmologist! There was a whole bunch of scans and he knows what he’s looking at!

Dig it!!!

so here’s the deal, lately, I have not been able to watch Hallmark movies after I am dressed and ready for the day. I have definitely slowed down even this morning! It is killing me to not have supplements and now I know that they do a whole lot of stuff for me!

We watched, Holday in the Wild, the other day and we watched, A Castle for Christmas and on this viewing, I heard this song:

Dig it!!!

Old and Sick

I was recently listening to Third Eye Blind, specifically the song and the album I was listening to my first night at WMU. So I heard the specific song and then I let the album play. I know all the songs because I used to sing them!

I was specifically thinking about this song because it has been 10 days since I have had supplements. Oh, I am feeling it, to say the least!!!

My friend, Jonathon, said that you know you are old when you listen to songs you grow up with when we worked together. Well, I know I am older, but it’s interesting that a song I jammed to when I was 18 doesn’t it hit the spot for me now. maybe I’m just old and sick now…

My procedure is Tuesday and after I have it, I will begin taking them again and I’m so looking forward to it!!!