[NotSo] Rando Tune #38

It was a successful, “Go Time” but I am thoroughly exhausted! We got three new pair of compression socks today and I am super excited to wear them again!!!

We explained to the women working there, how I had to NOT wear my socks from April to November 2022, because I had pressure sores and it was terrible!!!

I needed to get resized, because since I have been seeing my nutritionist, I have gained 4 pounds, but I have since stopped seeing her and she told me to call her again when I start losing weight again.

I never thought that my life would be as small as it is right now, but I don’t see it changing from here on out. We got our haircut yesterday and I talked with a woman as I waited. We seem to have the same appointment time because my Mom recalls seeing her last month!

As I was talking with her, a song came on the radio, and I hadn’t heard in so long! This song is from Songs About Jane, you know, before they sold out, but I loved hearing it!:

Gearing Up

I slept until kind of late in the day today. I almost felt rested. I thought that was good though because tonight, I will be in twilight sleeping and as well as Thursday so I will crash on Friday.

I’m quiet today and gearing up for Wednesday and Thursday. I will formally implement my new recalibration and segmentation of my, “Go time.” I guess That I will attach these two songs because I think I need to hear them right now because go time for me is starting to get more difficult…:

I switched up the order of these songs in this post for this month.

Silence.

My Mom went to get her hair colored on Wednesday so I spent Wednesday reclined in my chair in silence. I mindlessly played solitaire and 3-D tile match. I did not feel well because I left the house on Tuesday and I think I wasn’t prepared for me to get such a good report.

Dr. Clark’s appointment was a vindication for me that I guess I know what I’m doing regarding my supplements and what I eat. We told him about what I eat now and he liked it a lot! He is most impressed that I have not been hospitalized since my diagnosis.

The silence continues today even though I did talk to Sean for a little while. I think I am starting to feel better but I’m going to have to do it again on Wednesday. I don’t think that I was prepared for how long it would take to recover or how unable I would be but at 22 years, I think that’s where I am.

Before I went to sleep last night, I told my Mom that I was sitting here in silence the whole time she was gone but I wanted to see this video because I remember watching it a lifetime ago now…:

I love this cover of this song!!! I needed the silence though. I guess we’ll see what tomorrow brings…???

“Don’t You Forget about Me”

i sawmy naturopath in person today. I have just been ordering supplements for the past eight years! It was a good check up!

Dr. Clark told me that I look the same and he said that I am doing very good with my health! He added two supplements one as needed and I left there very relieved!

Don’t get me wrong that I am extremely exhausted because I am! When we left Dr. Clark’s office, I told my Mom that I think I am going to cry when we get to my house. I am so tired but the tears are not coming! Maybe March was a one off? I still need to write about that as well.

On the way home from Dr. Clark’s office, I saw a tweet but when I clicked on it it had been deleted. The tweet caught my eye because it was from the NFL net work and I just saw the words “Matthew Stafford” 😍😍😍😍😍

Now, I just catch clips on Twitter because I can no longer wake up early enough to watch GMFB. That saddens me but Kay and Nate are gone so that saddens me as well!!!

This was one of my Facebook memories and it got me thinking about pitch perfect because of what Peter said at the end of his segment. I thought to watch the movie but I am tired and I don’t think my eyes can handle that so I will just post a clip of the song!:

Two Days in a Row!!!

I have figured out that one my soul is hurting, I listen to my U2 playlist. Bono’s voice calms me. I was going to post this song yesterday because it really resonated with me! I am playing solitaire and listening to U2 and I have heard this song two days in a row and both times, it completely spoke to me!!! #SimplePleasures:

April 2023 Faves

I could not even post this yesterday. I thought about it because I haven’t been listening to Sara Bareilles lately so I thought I would listen to her for April but then it rained two days in a row and I felt awful! So, I am going to add that Sara Bareilles song that I thought of when it was raining and the other two songs that got me through my March 2-fer:

March 15 and 16th were extremely difficult for me and I’m not sure what to do going forward! I am completely at a loss…

The AB Rooms?

Today is Friday and watching Jesus Christ Superstar today reminded me of a picture I took 20 years ago. Actually, 23 years ago. I thought it was the AB rooms in the activities building of my high school gym but I think looking at the picture we were on a field trip (probably with Mr. Flint) because we were wearing our uniforms but I always had a camera on me, a disposable one!:

I thought of this picture because Mary Magdalene’s song today reminded me that I sang it for a musical audition but I didn’t even know all of the words! I guess I got the part but I don’t even know what musical it was! So this song hit me today!:

I really need to clean out my phone storage but I was able to find that picture but it wasn’t what I thought it was looking at it 23 years after taking it! I still sang this song at an audition! And, this song always makes me cry as it did today:

Before I Really Knew…

I have this song on my Apple Music playlist and I played it both days during, “Go time.” I finished playing it Thursday morning with tears streaming down my face but I needed to put my contacts in! This song gave me the strength that I needed:

Of course this song reminds me of our second apartment because that is where we were living when I bought the car that I currently own!

I was so hopeful back then! So much of my life has changed since then and I listen to this song and I can go back there when I hear it now! I really appreciate that because this song was my jam back before I really knew what to expect!!!

I was on Canadian crutches back then but soon to be transitioning to a manual wheelchair full-time and I was still driving. But now, 22+ years in, having MS is so much MORE than not being able to walk…