Author: Jen Rios

I’ve been drinking nutrition shakes for breakfast for a couple years now. Eating is no longer easy nor enjoyable and it’s getting more difficult as time passes… For example, on Saturdays, I Pillage, so I have a shake for breakfast and another one for dinner as I am filling my pillbox.

I usually order the shakes in packs of 12, three a month, but I also have a fourth one hanging around because I will need a few more! I did that this month, I ordered them from Target but my Mom said that she saw them at Meijer and I just needed a few. I had one from Meijer this morning:

Umm… hold on a minute! That’s not what it’s supposed to look like?! My Mom read the shake box from Meijer and it sounded correct but I think this new packaging has thrown me off! Companies have done that a lot in the last 23 years…

The shakes from my Target order arrived today, so they are on the floor by the couch, and they look like they always do I guess Meijer has a different ones. These are the ones I got from Target:

I had to switch my protein shakes to nutrition shakes at the suggestion of my dietitian! Even though they look different, they taste the same, perhaps a bit more ‘plant-y.’

I just looked at my new supplement:

I took the first two wafers with my lasagna, and I just swallowed them. They were a little tough to get down! When my Mom got back from taking the van back, she asked me if I chewed them and I told her that I didn’t but then she said that dr. Clark told me to chew them:

It was a big appointment for me! Dr. Clark told me that the endocrinologist might suggest getting shots. He is going to wait for what they say. I took two more wafers after my Mom laid down, it tastes like sawdusty bottlecaps. You remember that root beer flavored chalk tablets that were called Bottlecaps? That’s what it taste like! I am drinking a lot of water and trying to get it out of my teeth!!!

So, I found a new game:

I really am digging the mindlessness of this game!:

It’s relaxing to follow the arrows on the car to get them all off of the screen! However, I haven’t been driving in about a decade and I think it shows!:

I will admit that I have hit a few pedestrians, and I also have ran a few red lights as well. Maybe, more than a few red lights! But I think I have finally gotten to the level where I cannot pass, but I die trying every day!:

I only get 32 moves and I can’t quite seem to have gotten the right order yet!:

I guess that I am out of practice, but the mindlessness of this, I really dig!!!

I blame my eyes 23 years after diagnosis! I think it’s either that or disease progression. When I really think about it, it’s disease progression but my eyes can’t handle watching TV for to long!

we did this a couple weeks ago and we watched The Sound of Music. Well, actually, we started watching The Sound of Music and my Mom went to sleep. I enjoyed when the captain and Maria were dancing and I wanted to see it again before intermission but here is where disease progression takes the cake!

I could not control my hands enough to properly give the commands to rewind it just a little bit so then I just gave up, took my contacts out and decided that we would finish the movie tomorrow! I was having difficulty seeing on the TV to understand the commands. I’ve said before that my hands are just ‘for show’ and now it’s pretty much that’s the way things are All of the time!

My taxes are finished, and my Mom is going to drive to H&R Block tomorrow to sign for them because I no longer can sign. I didn’t sign for my wheelchair when we got it in December so I think that’s not a thing for me anymore.

But back to my eyes! Yesterday, we finished this movie, which was just as epic as I remember, when I was a child!!!:

it IS Lent, so it just seemed fitting! I’ve accepted that my eyes can’t watch a three hour and 42 minute movie and be okay! It kind of stinks that now, it’s a two day-er to watch any movie with an intermission. But all of these epic movies are from my childhood have an intermission so I will HAVE TO be okay with a two day-er. I wonder how many times I will see this movie this year before Easter?!

Today is the first Friday of Lent. I was trying to remember, but I think I started going to stations of the process every Friday When Sean was in third grade? I went by myself his freshman year, and I want to say one Friday, he came with me.

I was wondering how I would react to seeing Jesus Christ Superstar since it has been a while since I saw it last. Well, it affects me just the same! I cried when the lepers are pleading with Jesus and I could feel myself making a face when he was talking with God and singing.

I think this movie will ALWAYS affect me…

When my Mom and I went to pick up my new power chair, we asked both Diane and Dave if the joystick was fixed and both of them with the quickness, let us know that it’s NOT! I was making a conscious effort not to let the rubber on the joystick fall off. But, Dave and Diane were correct! It only took two months and a day because I got this chair on December 14 and on February 15, this happened:

This is stinky!!! I will have this chair for the next four years and 10 months?!!!!

Tomorrow I will put out my vitamin bottles for me to Pillage on Saturday. I was just about to take my dinner vitamins today when I realized how these days are flying by so quickly!!!;

I just took my Thursday dinner vitamins, and my Monday through Wednesday vitamin boxes are empty but I really can’t remember taking them! I know that I did! I have to! But this is crazy, these days are flying by for sure!!!