Author: Jen Rios

Sans Compression Socks Day 2

Well, this is my second full day not wearing compression socks and I must tell you that my right calf is not feeling good at all, which makes me a little nervous.

Today, my mom and I talked about the fact that he wanted me to get open toed shoes. We know the shoe store to get them From and my Mom was looking at them today. I’ve been wearing compression socks for so many years, over a decade. I don’t know how it will feel with my skin exposed, especially when I have to leave the house?!

The podiatrist wrote a prescription for open toed socks when I met him in January and now we are going to look and get it filled. This is so much?! It almost feels too much at this point, but there’s nothing I can do about it.

Day two sans compression socks, it’s okay I think. I think it started to feel a little bit achy…

Moving Along OR Just in Case

My Mom received this text today:

it looks like things are moving along now. I’m getting a haircut on Wednesday and we are both getting our teeth cleaned on Thursday. Both of those places, I feel pretty comfortable if I need to charge my chair… Just in case.

Sans Compression Socks

I had my virtual appointment today about my feet. Actually, it was our appointment because now, my Mom attended this appointment with me. She held my phone to show the doctor my toes.

He looked at them and decided that I should NOT wear my compression socks for a week and he gave me an antibiotic. I took two doses today and I will be finished in nine and a half more days.

I’m a little bit nervous how it will be sans compression socks for a week but i’m hopeful that it will be okay because my toes kind of hurt.

I would put a picture in here, but when Sean saw my toes and he said it was pretty gross!!!

Afraid!!!

I woke up to this email today:

This was because my Mom picked up the signed orders from my doctor yesterday.

I have a virtual appointment tomorrow with a doctor. I do not know but I needed to get in to see someone. The appointments that were available today got snapped up really quickly so I’m seeing this doctor tomorrow. Something’s going on with my feet and I’m a bit afraid!!!

A LOT!!!

Upon waking this morning, my hands were NOT numb. I was relieved to see that, and I began stretching my arms outward. In doing so, my fingers, my pinkies on both of my hands, began to feel numb. Kind of like it used to be when I was in college when I put my chin to my chest. It’s all changing!!!

Once I was seated in my chair, after I stretched my hands and my arms, I began hugging myself just like Diane has me do at RIM when I am getting my chair updated.

I really do not like how not good this is getting for me. But I’m on it. I have a vascular surgery ultrasound for my lower limbs on May 22. I see the vascular surgeon on June 26.

All of this is never ending and stuff just keeps coming! This is A LOT!!!

Red Tape.

Well, it looks like we figured out a way to cut through the red tape and I am excited!!! My Mom has been in talks with Ray from NSM for the past two weeks. He was waiting for my doctor’s signature, and somehow wires were being crossed and she was not receiving the email from him.

Monday marked the second week for this and yesterday, at about 4:41, he emailed me the prescription that my doctor needs to sign. I got up early today for my Mom‘s hair and I woke to this:

My Mom called Ray this morning and left a message, but I’m pretty sure that’s what he needed so then I can get the batteries for my chair!!! I have never realized that I am so dependent on this chair until it did not work and I sat in my manual chair. A chair that was built for me but no longer works for me because of disease progression… This really sucks!!! #ItSucksToSuck!!! #MSsucks!!! 😒😒😒…

New Sensation

I awoke today with a new sensation. Doesn’t that sound fun?! It absolutely has NOT! My complete right hand up to its wrist was numb. Like, completely numb.

I did not freak out and gradually, sensation returned. Came back in about an hour. Later in the day when I was seated in my chair and squeeze my therapy putty, it worked just fine.

I don’t understand why it would be numb because I sleep in one position for the entire night. I know that my nerves are shot and its manifesting itself.

Ray emailed me today what he was going to send to the doctor, but wires are crossed and it really stinks but I think I sent it to her in MyChart. That’s what I did today and hopefully tomorrow, things can start moving.

I’m definitely NOT in the song mood, but I should just leave this one here because I always think of this song when I say that statement:

“She Liiiiikes Me”

Sean just got reconnected to his Apple Music and we were talking about Boy bands. I told him how my friend from high school says that her husband does not know New Edition.

He mentioned the group High-Five. I vaguely remembered it. And then he started to mocking it with a high voice, and I joined in on the last word! I absolutely know that song!!! what am I 13 or something?! I looked it up and I was 10:

Oh, if you read that last post ‘Regulate,’ I cannot control my body temperature even more now!!! It’s terrible!!! ABSOLUTELY TERRIBLE!!!

Winterfresh

Today, when I got a piece of gum for the first time, it tasted like winter fresh. Like high school! I think I’m so nostalgic about Mr. Flint watching my feet. That’s where I’m at right now.

it tasted good so I went with that. I have been showing the blue five gum since 2014?! It was at Barwis. Adam gave me a piece because I had a bad taste in my mouth.

I’m locked in for Easter and I have not reneged on all the things I’m doing and that feels really good! Maybe it’s the fifth time through the Bible? I’m reading the catechism as well.