It is completely out of season to watch this movie, but I thought it was cute and I liked this song. I’ll ‘splain you later…:
Author: Jen Rios
Calvin Johnson Eye Black OR I’m Not Okay
Last night, as I was sitting in my bed before my Mom took my chair to be plugged in, my cheeks felt crazy!!! That was a feeling that I had never experienced before, and it scared me.
When my Mom got to my room from plugging my chair in, I told her about it and she put the cream on my face as if I was wearing Calvin Johnson eye black:

I knew that my Mom would not get that reference so I didn’t even say it and I’ll wait until I speak with Sean because he completely knows that reference!!! We loved watching him every Sunday, and Sean was young enough to watch it WITH me!!!
It really shows my age because I had a hard time finding pictures of him with his eye black on. I remember when that was so new and cutting edge!!! But now he is just a businessman. But that’s how I wore my cream last night because my face felt crazy!
I told my Mom that I may need to change the cream that I am putting on my face because the weather is changing. She told me that Mrs. Hutcherson wears it all year and I told her that my skin is different.
I think that is a statement that my mom really isn’t really prepared to handle just yet. It scares the crap out of me, but it seems to be happening all the time now!!!
This afternoon when she woke me up, she asked me how my face felt. Given the fact that it is daylight savings time, and that makes me feel terrible, I just said, “I’m not okay.” I don’t know if it is just my age or where I’m from but I totally thought of Eminem when I said that and this song:
Late Night.
I just finished pillaging.
I’m frustrated at this late night!!!
Not Concerned
I reposted yesterday about my doctor telling me that I had a calculus.
That was last year in January. In March, I had urogram (where did she put hot IV fluid in my body to take pictures of my organs) that was insane! After that, it led to me getting a different doctor and I had surgery in August.
Post op told me to make another appointment in six months, hence my February appointment. I have to remember about it because it was so strange and the very first time I ever had an appointment like this! I was a bit scared!
My Mom stayed with me in the entire time and helped the nurses who were not equipped in dealing with such an infirmed person.
Dr. K wanted to see how my calculus was doing. She had blasted it all last August. But my Mom saw a stone. Dr. K was not concerned by it and she told me to make an appointment for six months (which Jason made for me) and based on that one, maybe I will just have to go annually.
I liked the sound of that! I was thinking about it because I know I had shared this song, but I couldn’t find it. I had shared it before after I found out that I had a calculus. I wanted to hear that song so I watched the video. Man, Chris Cornell looks so rough. And it’s kind of haunting that he has committed suicide since this video. Here it is:
Sean told me a while back that he saw a video on TikTok and it had a song playing in the background. He couldn’t understand why that was making. His heart feel funny until he realized that he remembered that song from From sitting in the backseat of my Malibu.
I listened to the Audioslave CD for one summer. Sean was either five or six. I listened to that CD on loop for that entire summer Like a Stone was my favorite song.
Makes me think of that Diet Coke commercial but I don’t drink Diet Coke and I no longer drink pop at all. But I guess its kind of true:
Case in Point.
The following blog post is my Case in Point regarding my life:
Tuesday night, I messaged my doctor a few things before my appointment at the end of the month. On Wednesday, I called in my supplements for the month and I made an appointment for June to see a vascular surgeon to talk about my neuropathy and why my feet are so cold.
Thursday, I needed to update my payment plan for the hospital. And today, on Friday, I readied my pill bottles to pillage tomorrow:

Seeing those bottles, completely makes sense for me and it will take me a little over an hour to distribute them into my pillbox. All of these examples prove that my ENTIRE life is MS. I’m STILL currently trying to get used to it in real time.
At least I know what to expect in this regard. I used to tell Sean, “Hashtag HMS.” I was such a potty mouth?! I am working on that! But I guess this is what I do now…
I just realized that my birthday is on Thursday. That’s my favorite day of the week! But, as my birthday falls most of the time, during Lent. I ordered Easter candy that I will have for myself after Easter. That’s when I will celebrate my birthday as well.
THANK YOU!!!
I Guess that’s what I’m Doing, Now…
I don’t really understand how this happened but it did. My entire life is really MS. There’s no way around it. Yesterday, I had messaged my internist to request bloodwork and a referral for a specialist and lastly, I wanted my shingles shot. Well, my doctor said we will talk about the vaccine when I see her and she ordered the bloodwork and gave me the referral. I made the appointment yesterday. It’s for June.
I woke up this morning to an email stating that my payment plan for Henry Ford needed to be updated. I called today and did that. I will be paying until June 2027.
I just like that I won’t need to update my payment plan until May because I don’t need to pay extra to see my internist (which I do twice a year). In April, I am getting my teeth cleaned, which is 100% covered.
It’s not until May when I see my neural ophthalmologist. That one’s a specialty doctor! I have those now! I have 15 doctors. That’s a lot. I’m not sure how it makes me feel.
When Sean was s in middle school, I would tell him, “HMS.” And what HMS means is, “I handle my sh*t! I guess that’s what I’m doing now… It just feels different, I think…
Oh, Yeah!
I was reminded of how much I do not like the change of seasons today. There is nothing like waking up to the sound of slick wheels on the asphalt?! it’s terrible! It has been terrible all day! But at least it’s raining and not snowing. My body does not like this at all!
I just wish that it would be a quick transition, but something tells me that it’s not going to be. This morning, I thought, “Oh, yeah!”
It’s a good thing that I have practice with these weather transitions. The thing is though, it’s only getting worse now after 25 years…
#MyGirlL
It REALLY is exactly the same day. But at least I know what to expect. For example, I messaged my doctor’s nurse last night, and I woke today to answers.
I got the referral to vascular surgery and the bloodwork was ordered. My doctor says that I’m too young for a shingles shot. We will discuss it on the 24th.
I almost forgot to call Erin at Dr. Clark’s office to order my supplements for the month. I did so right after I was done stretching my hands. It was still kind of early.
I was able to watch last week‘s episode of The Pitt while my Mom was bathing Leia. She has been a stinky girl and she still scratching a bit… but she has lost weight since being off the prednisone. We changed her pill pockets to see if that is the culprit for itching. #MyGirlL…
Change of Season
I sneezed a bunch during our routine today as my Mom was putting on my socks. She asked me what was going on, and I simply stated, “Change of season.
It’s a really good thing that we have not stopped using that Egyptian miracle on my face and I feel like it will be more chafed this evening!
My Mom counted the stuffing boxes today as well. I have six turkey and 13 chicken. She asked me when I was gonna change out the flavor, and I told her, “Soon.”
I’m currently using the Vanilla Bean chapstick but I think I may feel/smell the change in season when I leave the house on the 18th. I will be 44 then. Now I have to message my doctor. I really cannot believe that my life is this way?! #ItSucksToSuck!!! #MSsucks!!! 😒😒😒…
