“No.” OR “We Should Get a Fatter Pen.”

I think that I updated my signature card in my Credit union last summer? I’m really glad that I did because I had to sign my mail-in ballot two days ago. I haven’t written anything at all in a couple of years, I think.

Control of my hand dexterity is pretty much nonexistent at this point. I squeeze my therapy putty every day for an entire rosary, which is usually 18 minutes except on Tuesdays and Fridays when I say the Sorrowful Mysteries, So then it is 20 minutes. I was face-to-face with that fact the other day when I had to sign my mail-in ballot.

After my Mom had filled out both of our ballots, she was filling out the outer sleeve. There’s a spot for my signature and her signature as the person who filled out my ballot goes. She handed the envelope to me on top of a box. I needed the bigger object to control my hands. Before I had her give me a pen, I told her that I should practice.

My signature consists of my initials for my first name. It’s just a squiggle and then I sign my last name. My last name is only four letters. I thought that it was easier to write a couple years ago. I think I wrote my complete signature about 20 or 30 times on the back of an envelope. Not one signature was the same.

I decided that my hands were starting to get tired and I just needed to sign. I did it, kind of, I think. My Mom told me that I should practice and that I will lose it if I did not. I just told her a flat out, “No.” I don’t need to write anything because it is difficult. I only sign my ballot every couple years.

I thought about the time that I was Linus in the school play, You’re a Good Man, Charlie Brown in high school. Back when I used to be able to sing. I think that I was a Junior?

I vaguely remember singing about fighting with big sister, Lucy. There was a line about something about my pencil, and I was given a large pencil as a prop. I held over my head as we were on the fake bleachers on stage because we were singing in a recital. I remember singing something about my pencil.

At this point, my loss of my writing ability has been years in the making. I remember when I was student teaching that he would tell my students that my writing is ‘obscenely large’ because it had started to get bigger as I began high school. I think that I coined that phrase in college, probably when MS was really beginning to set into my body.

I followed my matter of fact, ‘no,’ with the statement that ‘we should get a fatter pen’ because my fingers l hurt holding that normal sized pen. I have to sign my ballot because my Mom does not have power of attorney over me because at this point I can still think clearly. That a whole ‘nother bridge to cross if and when that happens. It’s going to happen. Maybe I should just stop voting when it does? That’s sad!

#MSsucksInThisHeat!!! 😒😒😒…

I have been thinking about this song for two days and I could not remember who sang it. This was a post that made me think of it:

I can’t remember what the meme said that was so apt for me, but I found the song, it’s Caitlin Crosby:

This one reminds me of another song… i’ll find it tomorrow. Regardless, #MSsucksInthisHeat!!! 😒😒😒…

It Tastes Like Asprin

Here are the pills I take for the day:

Breakfast:

Lunch:

Dinner:

I don’t know what this white pill is doing to me if anything so far, but it taste like aspirin. Like when you have it on your tongue just before you drink some water to swallow it, at least that’s what it’s Like for me.

White OR ‘a Different Kind of Gross’

So, I pillaged today and I opened my new pill bottle that Dr. Clark prescribed. I start taking it tomorrow and I hope that I stop smelling.

The pill is white. This is the first white pill that I have had since I started taking supplements in the summer of 2007. For the most part, my supplements have been capsules, beige capsules.

Recently, I would say in the past two years, I take a lot of tablets now. Those are beige as well, but now I have had three different shades of dark brown tablets. The brown ones taste different as well. I was surprised to see that these are white. I wonder what it is going to do to my body.

I also told my Mom that they smell different. She asked what I meant and I told her they are ‘a different kind of gross.’ One that I’ve never smelled so far.

I have already figured it out. I need to get a referral from my doctor in September for a November appointment and then my year will be planned and scheduled.

For next year, I have to get my teeth cleaned in January, in February, I need to get my state ID renewed in March is when I see my internist. April I have to schedule an appointment with Dr. Lupea And in May, I will get my teeth cleaned again. At this point, I can see Dr. Clark in June or July. We will see how I’m doing then.

‘Outing’ OR ‘Fading’

I wanted to post this yesterday because yesterday was the final ‘outing’ of July. I had to postpone my Dr. Clark appointment by a week because he fell and hurt himself. I think the saddest thing is that I COULD NOT even tell that his face was injured! I couldn’t see it! My Mom had to tell me about it today.

While we waited for him in the room, I heard Aerosmith. I could not even remember which song it was. It was one of the videos that Alicia Silverstone was in so I had three to choose from and I kind of think it was Amazing, but I’m not sure.

Dr. Clark changed up one of my supplements, but Savannah told my Mom that I should keep my leftover pills of the supplement he switched me off of. he switched me because I told him that I smell. Because I do. It’s like coming out of my pores. He told me that I am detoxing from something. The smell is that I am finished with it. On Saturday, I will make the change when I pillage.

I was seated out front when my Mom was paying for my appointment and getting my new supplement and supplement schedule in order.

I do remember clearly hearing this song because it was my jam!!! This was the summer after my Dad died and my Mom and I had gone to Florida for medical treatment. I thought of that when I heard the song that was playing:

Now, I am holed up in my house until August 11 (my nephew, Steven’s Birthday) for my appointment with Dr. Harris, my optometrist and then on the 12th, I’m going downtown for another procedure with Dr. K.

One observation that I will make for this summer so far is that I am more sensitive to temperature. My nerves are a whole lot more. I freeze with the quickness and I overheat just as quickly. I am looking forward to seeing my optometrist only because I’m sure he’s going to say NOT good things because I can tell how quickly my eyes are fading, but I’m not blind yet! I don’t think I will be ever, I just can’t see things now. My Mom tells me that I look normal all the time and I flatly tell her that I do not feel it Because I don’t! I’m finding that smiles don’t come as easily as they used to. After 25 years, and closer to 26 now, #MSsucks!!! 😒😒😒…

For Once in My Life

I heard this song today listening to my Mom’s playlist that I made for her 45th birthday and Sean was going to be 16. The party didn’t come to fruition, but I still have a great playlist!!!

I was completely blown away by hearing this song and I remember 25 years ago that I held my six month old child above my head and danced in the living room of my Parents’ house when the carpet was still there. It was beige at that time because the green carpet had been retired for a long time!!! Now, there are hardwood floors.

So many of my abilities have changed in the past 25 years, and I COMPLETELY forgot about this memory, but it came back IMMEDIATELY when I heard this song!!!

I didn’t even want to just give it a mundane number of a Rando tune because this one IS huge!!! I listened to this song twice and have cried BOTH times!!! Like, tears rapidly streaming down my face and all!!

Of Course!

Yesterday, I pillaged using my left hand. During the day, my right shoulder felt tweaked. It made me afraid because I use my arms to transfer.

I told my Mom, “Of course it would be my right bicep because that’s my ‘poop side’!!! I have broken my knee and had surgery twice, my hip has osteoporosis, and I can’t see out of that eye very well at all.

The only reason I could do it was because one time when I was teaching, my right arm went limp as I needed to enter grades into the computer. It just took time, but I did it slowly with my left hand just hen pecking the keyboard. That’s what I did yesterday. It took a while because my pills are on the right side of me sitting in my wheelchair; but pillaging is somewhat like second nature now.

Today, my bicep did not hurt that much at all. I was kind of ‘ginger’ with it just because I didn’t want it to hurt.