Author: Jen Rios

New Sensation

I awoke today with a new sensation. Doesn’t that sound fun?! It absolutely has NOT! My complete right hand up to its wrist was numb. Like, completely numb.

I did not freak out and gradually, sensation returned. Came back in about an hour. Later in the day when I was seated in my chair and squeeze my therapy putty, it worked just fine.

I don’t understand why it would be numb because I sleep in one position for the entire night. I know that my nerves are shot and its manifesting itself.

Ray emailed me today what he was going to send to the doctor, but wires are crossed and it really stinks but I think I sent it to her in MyChart. That’s what I did today and hopefully tomorrow, things can start moving.

I’m definitely NOT in the song mood, but I should just leave this one here because I always think of this song when I say that statement:

“She Liiiiikes Me”

Sean just got reconnected to his Apple Music and we were talking about Boy bands. I told him how my friend from high school says that her husband does not know New Edition.

He mentioned the group High-Five. I vaguely remembered it. And then he started to mocking it with a high voice, and I joined in on the last word! I absolutely know that song!!! what am I 13 or something?! I looked it up and I was 10:

Oh, if you read that last post ‘Regulate,’ I cannot control my body temperature even more now!!! It’s terrible!!! ABSOLUTELY TERRIBLE!!!

Winterfresh

Today, when I got a piece of gum for the first time, it tasted like winter fresh. Like high school! I think I’m so nostalgic about Mr. Flint watching my feet. That’s where I’m at right now.

it tasted good so I went with that. I have been showing the blue five gum since 2014?! It was at Barwis. Adam gave me a piece because I had a bad taste in my mouth.

I’m locked in for Easter and I have not reneged on all the things I’m doing and that feels really good! Maybe it’s the fifth time through the Bible? I’m reading the catechism as well.

Amazing

My Mom got this text. She is responsible for texts pertaining to me because she is awake when I am not. She sent it to me today:

Ray told us that it was going to be a month. But he said it could be ready to be serviced next Friday?! Seriously?!!!!

I was trying to think of the word that I am feeling and every word I thought of were lacking. They all had negative connotations. At first I thought, befuddled, and then baffled, and then bemused. They all fell short. I was talking with my Mom about it and she said ‘amazing’ and that was the word I was looking for! And you know what song was in my head because I am 44 years old!:

Surprised!

So get this. My wheelchair is losing power and all I am doing is sitting in my house in my living room. My Mom called Ray at NSM yesterday to talk getting it fixed. He needed a work order signed by my PCP to get things started.

In talking with Ray, he told my Mom it would take about a month to get started. That doesn’t work for me because I’m getting my haircut on April 15th and my teeth cleaned on April 16th.

I messaged my PCP about it last night. I got a response when I woke up. My Mom started talking with Ray at the same time. He told my mom that he is just waiting on Billing to write up the order. She asked if there’s anything that we need to do and he told her that we didn’t.

I will message her tonight and let her know that he is going to fax her the work order and she just needs to sign it.

I’m a bit surprised about this whole thing! I can’t believe how it’s all working out! When Ray gets the signature, and then the supplies (which come from California) then, my Mom will take my power chair back to him to get serviced.

I had to sit in my custom manual chair for that and when I had to sit in it for six days at the beginning of the month, I realized that my custom manual chair DOES NOT work for me anymore. I can’t get out of my head how much I zipped around CCA in it constantly! I had the hardest time just sitting in the chair from March 11 to the 17th.

At least this time, it will only be for one day. I really can’t believe that my entire life is really MS?!!!! But it is.

CRAZY THINGS!!!

Well, today, I did what I said I was going to do. But, this morning my Mom came to my room and told me that she spoke with Ray at NSM. She was telling me something about work orders and the battery and I told her that I’ll talk to her after I drink my shake.

So, we talked about the message that I was going to send to Dr. Chamas. I thought about that today as I prayed, and my Mom went grocery shopping.

I thought that I would just call vascular surgery tomorrow because I was thinking about what I was going to say to my doctor about my wheelchair. I finished my prayers and I was able to call vascular surgery at about 4:15.

I am not supposed to wear my compression for my ultrasound. I didn’t think I was, but it is good to be sure. I just messaged Dr. Chamas on MyChart. She is. really good at answering me right away.

I’m happy that I did what I said I was going to do today because the rest of it was the same. I do the same thing every day. I just exist.

I asked my Mom to turn off the heat because it was a little bit warm this evening. Maybe tomorrow will be an AC day? But I’m not sure because there were also be 4° weather coming up as well. This is doing CRAZY THINGS to my body!!!

I’m Sorry Sam Jackson

Yesterday morning, my jaw only hurt about a five out of 10. The day before, it was a 10 out of 10. Maybe a 12 out of 10.

But last night, as I was trying to fall to sleep, my feet were killing me!!! Sleep escaped me for a long while but eventually, I was able to fall to sleep.

I will call the vascular surgery clinic tomorrow to ask the preparation for my ultrasound. Apparently it’s only for my legs.

I watched both of the Elite Eight games with Sean today. I’m happy that Michigan is still in it. I saw that Capital one Jennifer Garner, same all Jackson, and Charles Barkley March Madness commercial three times today.

I still dig it:

i’m totally cool with being old:

Concerning

At my appointment on Tuesday, Dr. Chamas gave me a referral to have an ultrasound on my limbs before I go to the vascular surgeon in June.

I thought about that today and I forgot about it until 4:18 so I called Henry Ford and made an appointment for my ultrasound on May 22. That is before my appointment with the vascular surgeon.

My hands and feet seem to be getting cold at night and it’s a little concerning. Actually, A LOT concerning!!!