Quit on Me

Welp, halfway through pillaging, my right arm and hand quit on me. I couldn’t even put the pills in my pill box. I crossed my left arm over my body and was able to do it easily, but it really stunk that my right arm quit on me. I found the song that I thought of regarding this, I think I’m like 11 or 12. I’ll put it in the comments.

Meet Joe Black

I watched Meet Joe Black yesterday. I was able to watch it on Prime video. I had seen this movie in high school and I remember really liking it, so much so that I bought the two video set so I could own it before I went to college. I took it with me to college. I never watched it.

Not too long ago, my Mom saw the movie and we tried watching it on my TV, but we were streaming it on some platform and it kept glitching after about 20 minutes of watching the movie.

I was thinking about it yesterday so I checked the watch options and it was available on Prime. I have Prime because I order medical supplies every single month!

I knew there was a reason why I owned the movie and I bought it with two videos so it was like 20 bucks when I was in high school.

well, I watched it yesterday and I completely understand why I liked it so much. I thought that I was going to have a life like that! And Brad Pitt is in My preferential color palette. I swoon over guys with blue eyes! I prefer a little darker hair, but I’ll take it.

This was back before I was diagnosed with MSback when I could fully dream of a life I wanted! The life that I wanted and expected to live is definitely t the life I am currently living is not quite that, but I’m enduring it.

7 Questionaires

So, about those seven questionnaires…

When I logged into MyChart to confirm my virtual appointment, there was questionnaires I had to fill out. I always have to fill about two or three of them. The same questions every year. It’s old hat. But this year, it was different.

The questions that they were asking were new to me. For the first time, I had no qualms answering them honestly. And a few of the answers are, “I cannot do that.” It was not hard for me to be honest in answering this questions after having this disease for 25 years because my life has definitely changed now that I am homebound. I have a new mindset. Oh, it hurts all the time and there’s nothing I can do about this! I just have to endure it.

When I confirmed my appointment for Wednesday, I told my Mom about the seven questionnaires that I had to answer and I told her the questions they asked. I told her it shocked me and I wasn’t ready for those kind of pointed questions, but I have had this disease for 25 years so they know the progression and they know where I pretty much am now.

But, what further shocked me was the fact that my mom has been answering those questions regarding me for years now. She answers the questionnaire that we get every three years from NelNet.

That’s the company who held my student loans. When my loans were discharged because I am physically disabled and on Disability, they send a questionnaire every three years to ask if I am still disabled. My mom takes care of that because,OF COURSE I am still disabled!

Put these questions they asked things like if I lost my train of thought. There were responses there were five I could choose from. No, rarely, somewhat, often, and every day. I answered somewhat to as much as I could, but it also asked if I dress myself, and I could honestly answer with much difficulty! Because at this point, I still can do that, but I think that’s going away pretty soon. my mom helps me with that. She has been helping me for a while, she just helps a little bit more now because of the progression of this disease.

I think it’s funny how when I was first diagnosed, I thought they would fix me. But now after being in the system for 25 years, and seeing all of the loss of my abilities, they can’t and I have to do this myself! So that’s what I do, that’s why I am on supplements because they make me feel better. Dr. Chamas give me a referral for acupuncture and Reiki because I’ve had both of those and they do help me feel better.A cure is BOT coming. I just have to endure this. Sometimes that gets rough for me and I cry. I was kind of there yesterday, but it is what it is. I hatesaying that statement, but it’s true.

3 Nubs of Chapstick

I got an email yesterday saying that the Vanilla Maple chapstick. I ordered from Burt’s Bees had shipped. That’s good because I just have three nubs left of my previous fall chapstick. Let me ‘splain ya:

I think it may have been three or four years ago when I ordered a bunch of chapstick because they had the flavors I really liked for the Fall and Winter. But, here’s the thing, I thought it was Ginger Spice but instead, it was Salted Caramel. I don’t like Salted Caramel. It sounds like I would, but I don’t. I had to use it all up, though which took three or four years.

I had decided years ago that I liked to Vanilla Maple the best and I ordered it this year when it became available on October 6. So, I got word that they shipped and I currently have three nubs left over from Pumpkin Spice, Chai, and Vanilla Maple.

So I get this email and I know that I have about two weeks left of chapstick from my nubs so it will work out. I would normally put a picture of my nubs on my post, but my site is still a little bit wonky. What I will do is post a picture on Facebook with this blog post. Most of my readers are from Facebook.

I am spending my time writing about frivolous things because I don’t want to write about something that is gnawing at me. I watched The Accountant today because I needed to calm down. I don’t think that I’ll write about it today either though… I got ready for my virtual appointment with my neurologist next week and yesterday, I had to fill out seven questionnaires. That has been the most questionnaires I’ve had to answer in the past 25 years. I’m not sure they even read them, but I filled them out. I think I’ll talk about that tomorrow? in the meantime, I have my 3 nubs of chapstick.

Just Barely

Yesterday, my friend texted me and asked me how my eyes are doing. I must say that when I saw the Lions play opening weekend, I could tell that I could not see as well as I have been able to. That shocked me.

I thought about a supplement that I took a couple of years ago. Dr. Clark’s office offered it and I was on it for a while until they could no longer get it. So I stopped taking that maybe for a couple months. But after watching that opening weekend, I could see that my eyes had faded so much so I restarted supplement. I found it on Amazon.

I watched the Rams last weekend and I saw before they lost and I could see the lineup so much better! I think that it’s that supplement.

We spoke about my eyes and I told him that they are not darkening like I have diabetes. Things are just a little bit more blurry. I told him when my optometrist just told me. My left eye is 20/70and my right eye is 20/100. I’m not sure which eye was my Dad’s good eye, but he was the same. One was 20/70 and the other was 20/100.

I remember that shortly before my Dad‘s death, he stopped wearing his glasses. I am not there yet. Years ago an optometrist told me that my eyesight is so bad that it’s better that I have a contact that is directly on my eyeball rather than space between my eye and a pair of glasses. Now that I have the expensive contacts, I can put them in so much easier so that seems to work.

it really stinks. I still hear that d*mn doctor from when I was first diagnosed! “Look, [I] have MS, I’m going to go blind and then I’m going to die. I’m hanging on though… Just barely!!!

Fall-y (Pronounced Fall-ee)

Today, I finished the seasonal Fall Werther’s caramels. I’m going to change it up a bit next year because we went through them way too fast! So, I will keep them in the desk under the TV until October 1, when I watch Hocus Pocus.

I spoke with Sean and I have decided that I’m going to get two bags of Pumpkin Spice because that is Sean‘s fave. I prefer the Maple ones so I’ll get bag of those. I liked the green apple, but I was the only one eating them and I like the Maple ones better.

I tried the Maple ones last and I tried them the day before Sean did. When I saw him the next day, I told him that they taste ‘fall-y’. He tried them and my Mom asked him what they taste like and he said ‘fall-y’ and that made me laugh. Look at me, making up words!

Turkey Stove Top Stuffing

it was another late start to the day. I ate dinner pretty late and because it’s chilly, I changed over to Turkey Stove Top stuffing. I will probably go back to chicken in March or April, possibly May. Now it’s cold weather eating.

Sicker

I still not OK with this. I guess I’m happy that I don’t have to worry about it so much because I still have weight to lose, but I think this is a new trend. I am getting sicker. When it becomes a problem, I will consult a dietitian again I guess.

I have had a few donuts since I’ve gotten weighed though and Thanksgiving and Christmas is coming so… I don’t get weighed again until March.

No One Said it’d be Easy

I tried finding an old post that I could repost that I could put a song in. Sheryl Crow. no one said it would be easy is completely in my head and I wanted to share it again, but because this weird AI stuff on my blog, I can’t! But just know that is playing in my head right now!!! Hopefully, I will find the post tomorrow because the song was still be there.