Highlights from the soundtrack of my life.
HOW DID I MISS THIS ONE?!!!!
It came out in 2012 and then, I was living in my house already, wake me up for work at 4:30 AM to be ready at 7:30 AM. I think my disease was beginning to get away from me that’s how I missed it! This DEFINITELY would’ve been one of my jams if I wasn’t trying so hard (and losing) at keeping my health!!!
I have completed my ‘two fer’ this month and yesterday as the crash began, my Mom put this movie on. I am situated in such a position that I remember watching her on Zoey 101 when she was like 12. Sean watched Victorious and so that means that I did too and I always liked her voice! Hearing this last night made me miss impromptu sing-alongs because that’s not in the cards anymore for me. I am reminded that recovery from here ‘two fer’ is a two day process… :
This song played in the salon as I got my haircut and it was such a familiar song! It came out on Halloween in 2006. Back then, my world was cracked but I have heard this song so much and it reminds me of teaching I think…
So, I had a virtual appointment with my speech pathologist on Tuesday and I had a virtual appointment with a nutritionist. I thought I could have two virtual appointments in a row because I did not leave my house at all so I didn’t think it would be a problem. Well, I was wrong!
I never thought that it would be difficult to speak and having an hour long conversation is quite difficult. I actually just had a half hour video visit but it was still quite difficult!
I was tired Tuesday night for sure! But then I got ready for Wednesday. I was extremely nervous about this appointment! My ability to chew has been increasingly diminishing. I knew that I was not getting all of the nutrients I needed so I knew it was imperative to speak with a nutritionist.
My Mom recently told me that she thinks that Meira sees a lot of patients who are dealing with worse issues then with what I am dealing with. She told me that I must be one of her ‘shining stars’ or some thing. I agree with her! Meira told me that she is very nitpicking with me because I only need to see her once a month now to make sure that my speech is Chris for in clear! I am grateful that I only need to see her once a month but it is exhausting! And on top of that exhaustion is the fact that I used to speak with such ease.
I had my appointment with Sara the nutritionist and she sees all of my information through Henry Ford. She actually saw how much I have weighed for a while. And she noticed when my weight loss started probably in about 2018. We talked about things I can do. I am switching to a smoothie diet because I cannot chew any longer.
My mom asked me today if that ability will come back and I told her that it would not. So, it’s a slow recovery from my back to back virtual appointments but I have to gear up for next Wednesday and Thursday for my haircut and doctor’s appointment. With both of those appointments completed, I can’t stop hearing this song in my head because all of this is so heavy!:
I like waking up and clearing out my Facebook alerts and my emails as well as alerts on Twitter. I saw this one:
The song from Lit began playing in my head immediately and I was back in my senior year. I had seventh hour prep so I left school early because I had enough credits to graduate. I borrowed the CD from my friend, Dominic, and I played it on loop for probably a week!!!
I responded with this:
I love that I Got to listen to this song all day long!!!
I crashed pretty hard yesterday and I think I will need an extra day for recovery but I know my obligations!!!
I started the movie late but I was able to see this:
So, I had my ‘2 fer’’ for September but I have another appointment next week for my pressure sores. But with the steady progression of my disease, these two days of getting out of my house are starting to take its toll!
I am kind of reeling still as I write this! I feel like I am Bono just as he is pushed out of the van. I hope I feel better soon…:
I am sitting at my table in our first apartment while the maintenance guy is fixing something in the utility closet just off the kitchen, right across from the washer and dryer. I was fairly new to the complex at that point but I will never forget the ease with which he sang the refrain from this song what kind of a country twang to it but it sounded pleasing:
I realized that I did not post my September faves this month. I didn’t get my new phone until recently but I’m kind of immersed in Purple Hearts and I can’t get this song out of my head for so many reasons:
Sean swears that he does not look like that kid but I disagree! That guy has his mouth and I KNOW because he has MY mouth!
My Mom got me out of my bed kind of early today because I did not sleep very well last night. I am sitting in my chair drinking my shake and taking my vitamins. I checked my phone to see what day it was and when I saw that it is August 26. I paused! My heart stopped.
Ttoday was the day that I was hired for my only “Big Girl” job in 2005. My only teaching position. I taught for 12 years until MS decided that I can no longer do it.
I remember that my school leader used to write on an index card because we had to fill out paperwork and our date of hire was a question that we were asked every single year and I remember getting those index cards with his writing on it.
I was thinking about that today and I had to pause my prayers and my water drinking to jot this post because I didn’t wanna forget it. That’s happening a lot now these days…:
this song reminds me of summertime when I was in middle school. My friend’s babysitter really liked Jon Secada so we listened to him a lot!