Author: Jen Rios

Yesterday, all day, my body felt like it was on fire! I kept telling my Mom it was hot and it wasn’t until she transferred me in the evening where she felt how warm my body was. When she transfers me, we are face-to-face practically! She nuzzled her head by my neck and she said, “You are warm!” I looked at her and said, “It’s been like that all day!”

When I opened my eyes today, my shoulders didn’t hurt like they were hurting yesterday, and I wasn’t so warm. It wasn’t until I was using my therapy party where I felt that just my face was flushed!

Man, recovery sucks!!!

Dude! I had surgery yesterday?! The doctor said it was minimally invasive but she also said that I would be sore for two days. Yesterday, it smarted a little bit.

Today is another story! It took me until today to realize that I had a surgery for over four hours yesterday! I double recovery time now having had MS for 24 years.

I don’t know what to expect because I have never had MS this long. My head is STILL reeling!!!

I caught a glimpse of my face on my phone today. I was startled! It took me a minute to realize what’s going on. I thought, do I really look that bad?!

The answer is yes. Yes I do. Today it has been 14 days since I’ve been on supplements. I absolutely feel it! But my Mom got a call today,

I need to arrive at the main entrance of Henry Ford West Bloomfield at 8:30 AM tomorrow. My surgery is scheduled for 1030. I didn’t like hearing the word surgery! But that’s what it is I guess.

I am a little bit startled, but I am focused. I will let myself cry!

I just set my alarms for tomorrow morning. I need to get up at 9:30 so I can’t get out of bed at 10 so my Mom can go get the van in the evening tomorrow.

This will be the end of a ‘go time’ for July. I have my procedure on Tuesday and then my haircut on Wednesday.

I think it’s a little bit too bad that August starts on the fifth so there’s no rest for the weary, I suppose… Optometry appointment on the fifth, after procedure appointment with my Urologist on the 13th. Haircut on the 20th.

Yesterday evening, my Mom asked me what music I was listening to. She asked me that because she did not recognize it. I told her that I’m listening to my music from my “Songs of Surrender” playlist on Hallow.

I told her that I felt ‘strange’ and my normal music was not going to cut it! I remember back when I was seeing Parker as my MRT (Muscle Release Technique) therapist. I called him my rubber, and he hated that! I explained to him that rubber is spelled, rub-er, because he rubs me.

In one of our conversations as he was rubbing me, we had spiritual conversations often; I remember once he told me that I should listen to praise music. I told him that I try to get into it, but I just can’t! He told me that I should because that music, are prayers straight to God!

I listened to the “Songs of Surrender” playlist on Hallow during the Easter season. I liked it so much, I saved it. I listened to it last night because I felt so strange I was hoping for some kind of relief. But this morning, things went from ‘strange’ to ‘can’t.’ Because, how it feels right now, I really ‘can’t’! But I have to until Tuesday!

Today, my Mom marveled at the fact that it was 70° inside the house and it was 87° outside. I just looked at her and said, “It’s like the air conditioning is brand new?!”

And then I smiled at her because it IS brand new because I just bought it! I had to live through nine summers with window air conditioners in my house. I must say that I really like that my air conditioning is brand new. This truly feels really nice!!!

I’m grateful that I was able to get the air fixed in the nick of time because I am really feeling sick now but I think that might be because I am NOT on my supplements because of my procedure coming on Tuesday. Either way, this brand new air feels wonderful!!!

I watched A Castle for Christmas in its entirety today. It seemed fitting for me today. Because my AC is fixed, even when it’s 81° outside, most times, I am seated in my house with a winter hat on. Like I was today.

My ‘temperature gauge’ has been broken for years now and I told my Mom that if given the choice, I prefer to be cold then to be hot. When I overheat, I can’t see.

I swear that I was Irish in my past life because I really dig the kilts and the tartans!!! I didn’t hear Kelly Clarkson’s song until last year and I’ve only seen this movie four times so far, but I heard another song that I am looking for now. I’m sure that I will see this one again in July at least.

This picture showed up in my phone so it’s my “Pic of the day” and I shared it on Facebook:

Merry Christmas in July!!!