I am still trying to process my four-fer day out but I just want to say that I went to get my haircut the day after. Sean drove me and my Mom in his truck. My Mom had to come to sandwich me between her and the door while Sean is driving. He gets me in and out of the car and into my manual wheelchair.
As an aside, I heard this song and it took me back to my youth and my cousin Melissa!:
I have written that I have been dealing with a lot because I definitely have! I am trying to process all of the most recent developments and it’s difficult. I was thinking about Holy Saturday. That was the first morning after I slept for the first night in my new bed.
I remember that as soon as I got into it, my Mom and I realized that it was too low for her to transfer me back to my chair after being in my bed all night. The mattress will compress and I’m lower than my wheelchair so she can’t lift me up to put me into my wheelchair.
She called Sean to get me out of bed when I woke up. I don’t wake up till after noon now. So, he came over and came into my room and sat in my wheelchair as my Mom readied me to transfer out of my bed. I have to be perpendicular in the bed.
Sean and I just were having small talk when I was ready to exit my bed. I sleep all night with the, ‘Zero Gravity’ mode on. That is the most beneficial sleep for my body. My Mom told me that she was ready for Sean to lift me out of bed and I took my bed out of ‘Zero Gravity’ mode.
It was in that moment where Sean saw my face change. He has told me it went from, ”Comfort” to, “Discomfort.” And that statement could NOT be MORE true! That’s how it is for me now. My pain level has increased so much that I’m really at a loss for what to do!
*** I wrote this post last night because I couldn’t believe that we got so much stuff done! But, I wrote it in present tense because I wanted to post it as if I was posting it today but I got my haircut today and my eyebrows waxed so I am exhausted. Even the excitement of my four-fer does not negate the extreme exhaustion when I leave my house. Here is the post and forgive me for the length. There is a lot of things going on in this post that is going to take me a while to digest and figure out what to do:
Okay, Yesterday started out as a two-fer. While I was sleeping on Monday, my Mom called the doctor and was able to get me an appointment in dermatology. You see, there is no Espace between me and myMom! So, after she made the appointment, she called and reserved a van for us.
I had an appointment scheduled to have techs from Ashley Home Store at my house to adjust my bed. The bed, by the way, is ABSOLUTELY PERFECT! The legs just need to be raised up one level because after I have slept in it for the night, the mattress is somewhat compressed and it’s impossible for my Mom to get me out of my bed and back into my wheelchair.
Sean was here to scoop me up out of my bed in the morning for a few days, and yesterday morning, my brother, Ray, did it.
So, my brother came by in the morning to get me out of bed and then we started getting ready to leave the house. It takes me a moment to wake up and they have to take my vitamins and my protein shake. After we finished a bathroom routine, we were ready to get into the van. My Mom had secured a back loader which is easier for me to get Into alone. I mean that I can more easily maneuver the joystick to guide my chair into the van.
My Mom was in the process of strapping my chair down and then she exited the back and I did not see her but I saw a man wearing black get out of a truck that was in front of my driveway. We had moved the rented van into my neighbor’s driveway so I had more room to get into it.
I sat there with my feet throbbing because I was not wearing shoes because they had sores on them but then I see a second man get out of the truck and go into my house. I figured those two men were the techs who were supposedly canceled but I guess they weren’t because she told them what they needed to do and they added a level to the base of my bed. My mom told me that everything was handled regarding my bed as she pulled out of my neighbors driveway to head to the doctor’s office.
My Mom had made an appointment for dermatology because I have blisters and sores on the sides of my feet. Once my Mom discovered the sores and blisters on my feet, she went into action immediately! We had decided the night before that we were going to drive to the lab at Henry Ford and Dearborn to get my blood drawn because a previous doctor had ordered a bunch of bloodwork for me. That is why it was going to be a, “Two-fer” But now with the tech coming out and adjusting my bed before I even left for my appointment made it a, “Three-for!”
So, this dermatologist, looked at my feet and conferred with another doctor (as he was just a resident) about my care. We talked about my necessity to have my compression socks on all the time. But now, with my new bed, my Mom can take them off at night and the bed allows her to put them on again in the morning.
They took my disability into account and decided to do bloodwork first to make sure my liver can handle the medication they want to put man. Then, they want to manager me and then six weeks do another blood draw. I thought this was okay because we were going to go to the lab down the street to get my other blood work done. But the nurse in the dermatologist clinic told us that we just needed to walk across the hall to get the blood work done.
We walked across the hall and talked with the woman who was going to draw the blood. We asked her if she could also draw the blood from the other doctor and she told us that because they’re hungry for a doctors, she can do all the bloodwork at one time!
We definitely we’re getting things done! So much so that my Mom told me that we can go buy new shoes for me. We were out in West Bloomfield for the dermatologist appointment and the shoe store was in Southgate so we had to book it to make it there by 6 o’clock!
We made it just in time! I was resistant to buy shoes at a running store because I DON’T run! I don’t even walk! But, she bought shoes there that saved her from having a bunion surgery on her foot so I will give it a go. The guy listened to us and brought a few pairs of shoes for us to look at.
The first one was black with navy blue accents and the second pair was light blue. The third pair, however, was dark gray with PURPLE soles!!! Needless to say, that is the pair I bought! Of course!!!
So, this was my exhausting day! Doctors appointment, blood draw (x2), and new shoes! I was so exhausted that I passed out in the car after the doctor visit. When I awoke, when we were close to my house, my Mom asked if we should go or not but I told her that we should go because we we’re so close and we had 40 minutes left to get there and it wasn’t that far.
So this is the explanation of a Four-Fer!
Today was an absolute exhausting day! I will he talk about it tomorrow. It was a ‘four-fer’ and I’ll explain that tomorrow and s well. For now, must rest after my ‘four-fer’ out!
Today is tax day. I just paid my first installment of the amount I owed. It is the first time that I have I ever owed the IRS money and for some reason I can’t stop singing this song and I think that my Dad is proud!
I watched The Adam Project with Sean and my Mom last month and have not gotten around to writing about it yet. But, like young Adam who runs into Ray when they are both suspended for fighting and he tells him, “I have A LOT Going on.”
That’s one of my favorite scenes and just like Adam, because of recent developments, I too have a lot going on! But my mom takes excellent care of me and I have a doctor’s appointment tomorrow afternoon. Wow there, we can have my blood drawn for all the tests that my last doctor ordered.
I will know more about what is going on with me tomorrow but another development last night was that after three years of being Sean‘s fish, James Pond died! my Mom was kind of really sad about it!
My bed was delivered yesterday and I slept in it for the first time last night. It’s going to be tricky to get in and out but the sleep was superb! Best sleep everrrr!!!
I am a little bit overwhelmed and I will try to sort my feelings out but trust me that this song was playing in my head!
They play this song when I saw them live probably 18 years ago? It was old when they played it and it was a throwback that he wondered who knew. I knew, Pat! Of course, I knew!!!
Who were those kids listening to them sing so long ago?! It’s me and my cousinT, Shannon!:
So, my Mom will take a nap before I finally am ready to turn in for bed. I puzzle on my phone app and I have decided that there are some songs that I am hearing that I’ve never heard before and it’s just randomly generated from the song I begin puzzling to. I always start with Sara Bareilles, “She Used to be Mine” but now I’m hearing this song almost every day:
Today is Holy Thursday. That is my favorite day of the year! Holy Thursday mass is what I love! I’ve gone since I was a child, not every year but most times. I love everything it stands for and the washing of the feet ceremony makes me cry.
I remember telling a friend/colleague after I saw her at my church that Holy Thursday is my favorite day of the year! Thursdays are my favorite day of the week which stems from second grade and art class but also my ‘Daddy Daughter’ dinner days with my Dad in high school.
I looked at a whole bunch of Holy Thursday Memes to put in my blog post today and I saw the first one and I really liked it but then I saw the second one and I am also going to put this on my post because I have a completed puzzle of the exact same painting! It’s on top of my refrigerator probably full of grease and dust because I have not gotten around to gluing it together yet.
But now, I am going to watch mass with The Virtual Front Pew Who is father Mike on YouTube and I’m pretty sure that I will cry as well.