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I had an appointment with my nutritionist today. I had to wake up earlier than normal so I feel quite tired right now. I have met with her twice before and she told me that because it’s a new year, insurance may pay for two additional visits this year.

I’m still trying to get comfortable with her but we speak about very good things and she told me that I should switch from proteins shakes to nutrition shakes. my Mom will chime in when I am talking to her and I really like that she told us that she likes that we both are working to keep me healthy!

I really like that she said that because I want to be healthy because this whole weight-loss thing is very uncomfortable for me!!!

A few days ago, my Mom and I had a conversation and I couldn’t remember the word for what I was feeling. I thought it was validated but after some discussion, she let me know the feeling that I was feeling was that I was vindicated!

Of course, I immediately thought of this song but I hadn’t heard it in at least 20 years! I dated a guy whose roommate’s favorite band was dashboard confessional and I thought the music was so enormously profound! Man! This song makes me feel old but I still had to jam out to it!

This video popped up in my YouTube app. I watched it twice last night:

This was all kinds of my worlds colliding which I will explore at a later date but I watched it twice again today and I am not in the least bit ashamed to say that I cried… 4 times

I have a often said to anyone who will listen that when Sean was four years old, that was my absolute favorite age!!! I wholeheartedly stand by that assertion even to this day when my son is 21 years old. I liked it because at four, I could understand 100% of what he was saying and four-year-olds ask the most incredible questions! That was fun!

my power chair is four years old as well. I will say that this fact is NOT fun!!! I will call RIM in March to get an appointment for me to get fitted for a new chair. My new chair will come in July.

So, today, my four year old chair’s legs got stuck in the extended position. Naturally, I freaked out! NSM (My chair repair shop) it’s not a big company in terms of the office in Troy where I am seen. We called the number to get assistance.

Ken answered and he was able to help us remotely and he was in Louisiana and we are in Michigan. He saw what was going on with my chair and told my Mom to reset some mechanism on the leg rests. He told us that sometimes, the chair forgets the features that it has so we unplugged something and then plugged it back in and then it started to work!

My Mom asked Ken how we can give him good marks for his help with us and he told us to choose option seven when we call back. We did and we got Ray. Ray worked on my chair not too long ago and he explained the remote program to us.

He told us that the program started at the beginning of the pandemic and people needed their chairs serviced and they tried this out and it worked out wonderfully! My mom asked them about after hours. What would we do on a weekend? Both Ken and Ray told us that it’s a money game. They are just available from 9 AM to 5 PM Monday through Friday. Wow! I have to think about this because disabled people matter too!?!

I’m not feeling well right now and I was thinking of a movie to watch. That’s what I do. I rewatch movies all the time! I’m not really sure why I do that, Sean tells me that it is a sign of trauma when you rewatch movies. I told him, what do I have to be traumatized by?! Being diagnosed with a chronic and progressively debilitating disease is when you’re 18 it’s NOT traumatic at all?!

My Mom decided to lay down and I turned the TV on and still couldn’t decide on a movie but then this was on the hallmark channel:

Love, Romance, and chocolate. I’ve seen this one many times And even though it’s a bit premature for Valentine’s Day, but it’s an oldie but goodie.

It was a rough one for sure too I have a three for and then Christmas Eve and Christmas day was just one day in between. I am exhausted!!! But it’s the kind of exhausted that you just can’t shake.

I have had this exhausted feeling I would say for the past six years and it’s making me not remember not being so exhausted! But, I am gearing up for a milestone now.

On Wednesday, I will have had MS for 22 years. I don’t know how to feel about that. All I know is that year 21 wasn’t messing around ! I’m a little concerned about what year 22 will be but I have a couple of days to think about it…

I am smack in the middle of my December ‘Go-time’ and my teeth are clean, my hair is cut, and my eyebrows are waxed. I just have one more appointment tomorrow and then I will crash! I just wanted to write a line to let you all know that in one week from today, I will have had been diagnosed with MS for 22 years!!! I honestly do not know how I feel about this…

This month, I have to leave my house three times. A three-fer. Ineed to get my teeth cleaned, my haircut, and a repeat scan. My Mom does not realize how nerve-racking this is because society is NOT handicapped accessible! I am just left to deal with that! Not looking forward to it!

When I awoke today, which was I think about 1:30 in the afternoon, my Mom had placed the ladder in the way for me to get into my normal spot so I waited by the bathroom and she moved the ladder and then she hit the light switch and my tree lit up!!!

I gasped even though I did not have my contacts in! I could see the lights and it made me excited! I tried to get a good picture today of the lights but I have already taken my contacts out tonight and I’m really not feeling it right now but I snap this one for you all. Phase 2 is now completed!:

The lights are up but I fear that it’s a bad MS-y day… again…

I think I need to tell you a little bit of a backstory before I tell you what happened last night. My house was built in 1951. In 1951, disabled people didn’t own houses, especially disabled people using a Power chair! As the homeowner of this house that was built in 1951, it poses a bit of a problem seeing that as the homeowner, I am disabled and I use a power chair!

Basically everything now has a process. The process that we utilize is to make a non-handicapped accessible area, accessible to me.

So, long story short, my power chair is just outside the bathroom as I am inside using the bathroom. Last night, Leia got out of her bed and walked over to the bathroom and just yakked on the floor and turned around.

I thanked her and told her that I appreciated that she did that on the tile but then I had to call my mom to clean it up because having had MS for 21+ years, my sense of smell is so acute!!!

It’s December 1 so I have a Christmas movie to watch now…