New Sensation


So, I woke up this morning to a new sensation. My nose is no longer numb and just my lips are a little bit. My hand and arm feel like it feels like your legs have fallen asleep and they’re just starting to wake up.

I am extremely frustrated with this new sensation! My arm feels very fluid in terms of tingling and it’s driving me nuts! I told my Mom that I want to rip my arm off! She really doesn’t appreciate that visual but I really want to do it!

Today was, “Hair washing” day and was a little bit weird! I am left-handed and even though my hand feels generally normal, my arm feels super weird! Using my hairdryer to dry my hair felt strange! I had to break up my hair drying into three sections like I did when the pandemic started and my hair was growing because I couldn’t get a haircut. I had to rest my arm because it was extra tingly!

As I was doing this, my cheeks would feel a sporadic moving, tingly sensation as I dried my hair. So this new sensation, these new sensations, are frustrating and annoying! What is comforting is that this new sensation is already changing! Who knows what it will be like tomorrow?! In the meantime, I have this song in my head:

Nothing Even Matters

At about 1230 last night, (or this morning), I checked the Target website to see if they had updated their Chapstick availability. It had not updated so I tried again when I woke up this morning at about 11:30 (don’t judge me) but it still hadn’t been updated. Maybe after this weekend it will and I’m cool with that because I don’t get paid until next week anyway!

So, in essence, it really doesn’t matter! I have been singing this song in my head since this morning because nothing even matters!

Slippin’

So, I have noticed that Target’s online item list is different than it is in the store. I kept on checking their website because it’s getting soon for my fall and winter flavors of Chapstick. So I was looking for this item:

My Mom actually checked at the store the last time she went to Target. They did NOT have it! I was thinking that they are slippin’ and I was disappointed. That is, until I realize that TODAY is Labor Day! Of course they would not have my fall and winter flavors yet!!!

Days all seem to run together now that I no longer work. I can only keep Mondays and Thursdays in my head because those are, “Cheese Days.” I like to be prepared and do things early! But, I still have some summer flavors of Chapstick left and it’s still super hot outside so I can wait until tomorrow to get my fall and winter tips next. I don’t even get paid for a few more days so I won’t get it immediately anyway.

Regardless of me finding out that Target is NOT slippin,’ this song has been in my head for a while now!:

Executive Decision

Okay, Let me first start out this post by saying that as a rule, I do not drink alcohol while attending a live concert. I do this because I want to experience the band in full force and of sound mind! I don’t want to forget anything! But, when handed a large cup of beer, I just have to drink it. It’s the polite thing to do! That is what I did the one time I saw U2 live at the Vertigo tour in 2006.

Another reason that I do not drink at concerts is the long lines To go to the bathroom! Well, there is only so much alcohol that my bladder can’t hold So I had to make the executive decision to choose which song I would leave my seat to go to the bathroom and I wasn’t even sure how many songs that I would miss! I decided to leave when this song started and I have since been chastised for not watching them perform this song in order to go to the bathroom:

There was no line to the bathroom so I was able to get right in! That made me happy because I would only miss one song. As I was washing my hands at the sink, two very drunk woman came in. I was leaning against the sink with my crutches on either side of me because I was still able to walk back then. One of the women could not believe that I was there! She gave me tons of accolades for coming to the concert and being disabled.

I told her that I would walk through fire for them because this is my favorite band to which she responded with a haphazard and drunken hug that I was grateful that it didn’t knock me too much out of balance. Such a random encounter with two strangers but I still remember it 15 years later! My, “Concert going” days are over now but I appreciate you having gotten to see u2 at least once!

Vertigo

Sunday evening, my Mom was getting really dizzy! I was extremely concerned and she called the doctor on Monday. They could see her on Tuesday. Tuesday, she was told what she had:

She was told that it is not life-threatening but more of an annoyance. But maybe the real annoyance is that whatever she tells someone about having vertigo, I immediately sing the opening bars of “Vertigo” by U2.

She is slowly getting better and I ask her every morning how the dizziness is. Tuesday, my brother Dave stopped by to transfer me because that makes my Mom MORE dizzy. Sean came by to do the transfers on Wednesday and my Mom was walking into his bedroom where she sleeps now and as she was walking into the room she told him that she has vertigo. He thought for a moment and looked toward me,who, right on cue, raised my left hand and started counting out on my fingers as I said, “Un, dos, tres, catorce!” Sean started to laugh and said that he was waiting for [my mom] to say something about u2.

What can I say?! He IS my son! AND they ARE MY band! But counting out the beginning of that song lays bare how grammatically incorrect it is. My little cousin, Al, told me that. She pointed out that Bono is saying: ”One, two, three, fourteen in Spanish.” I told her that he has “Artistic freedom” because it is a song and he’s Bono! He can do WHATEVER he wants to!!!

My Mom let me listen to “Vertigo” as she washed my legs today and I was reminded of my freshman year in college as we listened:

Passing Me By…

I’m not sure if it’s the rain or me recovering from my day out of the house yesterday but I realized as I listened to music and scrolled through Twitter that so much of my life is passing me by…

I saw the Tweet which made me so sad!

Did I really miss Nate‘s sendoff?! The show that I IMMEDIATELY came to LOVE and it got me through time off work because of my knee injury and subsequent recovery from surgery.

But I think the REAL downside of being diagnosed so young (I was 18 and 7 months after my high school graduation and not even complete with my first semester of college) is that 20+ years in, it hurts so much and SO MUCH of my life has passed me by!

I had a conversation with someone once about the need to have, “A person” (Grey’s Anatomy reference) and the fact that I don’t want to involve anyone or expose them to my misery and hardships.

And I’ve really been hearing this song often during my Sara Bareilles immersion:

There is NO, “You” because MS has made sure of it and that’s a very sad realization end it emotes tears on my part!

Special

Today is an extremely difficult day! I have been in excruciating pain from the second I woke up. It felt like my body was just a bag full of liquid and bones. I prayed and pled with my God that the pain would go away! I constantly changed the position of my wheelchair trying to find a comfortable spot. My hip bones were killing me.

It took hours for me to feel well enough to finally have my Mom wash my hair at about 630 this evening because I have my swallow test tomorrow in the afternoon.

I constantly heard this song in my head and remembered a classmate making me a mixed tape of his favorite songs off of Janet Jackson’s “The Velvet Rope” album. He was a big fan of Janet Jackson!:

I would really like to feel “real special” instead of how I feel right now.

2 Songs

So, I have been completely immersed in Sara Bareillis this month. I just keep my Apple Music playlist on shuffle. I Had a lyric stuck in my head and I did not know what song it was from so I searched for it deliberately and I found it! This is the lyric that was stuck in my head;

I actually was reading the lyrics to songs and when I heard this song, it sounded familiar so I read the lyrics and sure enough this is what I kept hearing! It’s from this song;

Listening to Sara all month has been kind of bumming me out because I no longer can sing but then this song also pops into my head and it is true!:

Reminds me that #MSsucks!!!

T-4 OR “Alvin Green?” OR Chef 2 of 4

So, I really didn’t pay attention to this part of the movie during the song until about May 3 of fourth time watching it. My mind went completely blank and I looked at my Mom and asked for the guy”s name. I knew that it wasn’t Marvin Gaye or Otis Redding but I just didn’t know who it was. I was having a brain fart!

My Mom got up to get the laundry out of the washer from my room. I had renovations done to my house where they knocked a wall down and moved the washer and dryer from where they were to the other side of the house. As she did this, I google searched the song.

I found out that it was Al Green who sang the song. I told that to my Mom but she was in my bedroom pulling clothes out of the washer. I called to her and said that, “Al Green sings it.” I took a little offense to the next thing she asked. She asked me, “Did you say Alvin Green?” (I don’t know if his full name is Alvin but I have only Heard him referred to as, “Al.”

She was on the other side of my house and I waited until she came back to the front room and told her that I was offended said it was Al Green. I told her that I knew his name was Al and then I ended with having her and my Dad as my parents, how can I not know that?!

they both were born and bred in southwest Detroit and they were completely entrenched in Motown growing up!

Saturday is coming closer and I am completely missing my Dad! I don’t know how much of the song the clip from the movie plays so I will add the entire song in this post as well:

T-5 OR Chef 1 of 4

I think this year is hitting me a little harder because of Covid. I just miss my Dad! So lately, my Mim and I have been watching, Chef, on Netflix and you know we have watched it multiple times so far! That’s how we work!


There are many things that I like about this movie and I am going to write about 4 things. The first thing I noticed about this movie was this song and I’ve texted it to Sean:

Sean likes this song just like I liked the song he sent to me. It’s kind of like we’re connected or some thing! Like we have been living together for almost 20 years and for all of his life!

I highly recommend this movie to everyone!