Category: Tunes

Last night, as I was sitting in my bed before my Mom took my chair to be plugged in, my cheeks felt crazy!!! That was a feeling that I had never experienced before, and it scared me.

When my Mom got to my room from plugging my chair in, I told her about it and she put the cream on my face as if I was wearing Calvin Johnson eye black:

I knew that my Mom would not get that reference so I didn’t even say it and I’ll wait until I speak with Sean because he completely knows that reference!!! We loved watching him every Sunday, and Sean was young enough to watch it WITH me!!!

It really shows my age because I had a hard time finding pictures of him with his eye black on. I remember when that was so new and cutting edge!!! But now he is just a businessman. But that’s how I wore my cream last night because my face felt crazy!

I told my Mom that I may need to change the cream that I am putting on my face because the weather is changing. She told me that Mrs. Hutcherson wears it all year and I told her that my skin is different.

I think that is a statement that my mom really isn’t really prepared to handle just yet. It scares the crap out of me, but it seems to be happening all the time now!!!

This afternoon when she woke me up, she asked me how my face felt. Given the fact that it is daylight savings time, and that makes me feel terrible, I just said, “I’m not okay.” I don’t know if it is just my age or where I’m from but I totally thought of Eminem when I said that and this song:

I reposted yesterday about my doctor telling me that I had a calculus.

That was last year in January. In March, I had urogram (where did she put hot IV fluid in my body to take pictures of my organs) that was insane! After that, it led to me getting a different doctor and I had surgery in August.

Post op told me to make another appointment in six months, hence my February appointment. I have to remember about it because it was so strange and the very first time I ever had an appointment like this! I was a bit scared!

My Mom stayed with me in the entire time and helped the nurses who were not equipped in dealing with such an infirmed person.

Dr. K wanted to see how my calculus was doing. She had blasted it all last August. But my Mom saw a stone. Dr. K was not concerned by it and she told me to make an appointment for six months (which Jason made for me) and based on that one, maybe I will just have to go annually.

I liked the sound of that! I was thinking about it because I know I had shared this song, but I couldn’t find it. I had shared it before after I found out that I had a calculus. I wanted to hear that song so I watched the video. Man, Chris Cornell looks so rough. And it’s kind of haunting that he has committed suicide since this video. Here it is:

Sean told me a while back that he saw a video on TikTok and it had a song playing in the background. He couldn’t understand why that was making. His heart feel funny until he realized that he remembered that song from From sitting in the backseat of my Malibu.

I listened to the Audioslave CD for one summer. Sean was either five or six. I listened to that CD on loop for that entire summer Like a Stone was my favorite song.

Makes me think of that Diet Coke commercial but I don’t drink Diet Coke and I no longer drink pop at all. But I guess its kind of true:

When I awakened this afternoon, I started to check my emails before I got out of bed. Henry Ford MyChart sent me an email. It’s talking about my appointment on Wednesday. Which brings me to that stupid song! Something that I thought was about something different when I was a kid. But this is my life now. This is it! Let me ‘Splain ya:

Last Thursday, when I was getting ready for my virtual appointment with endocrinology, I logged in a little bit early and I immediately got a questionnaire about my appointment that’s going to be on Wednesday. So, I filled it out. Once I submitted it, there was another questionnaire about the appointment I’m having next month.

I don’t know when but this became my life. But it did. I just go to the doctor. I have to space them out because it’s so tiring but that is my existence now.

Here’s the song that I thought was about something different and it’s just dumb, but this is my life and ‘this is it’:

I pillaged today. I didn’t get my supplements today that I ordered last Wednesday when I got paid. It’s not a huge deal because I’ve been on all of these supplements for years at this point. It just would’ve been nice if it would have arrived.

A song popped into my head a few days ago, and I’m reminded of driving with my mom in the backseat of her station wagon we’re going to the dentist in my Dad’s car. I saw the video today and it’s dumb!!! This song popped into my head and I’m letting it ruminate for a moment before I write a post about it, but here it is:

Today was the first Friday of Lent, so of course I watched, Jesus Christ superstar and right away, I was reminded of Judas’s great teeth! I love good teeth and his are absolutely great!

I did not think that I would cry because I have seen this movie so many times, but when Jesus pleaded with God, I started to cry because that is so powerful!!!:

#MyGirlL switched vets today. She has been having such skin problems for so long. The prednisone was proving to harsh on her organs so she was pooping blood. It was BEYOND scary!

So, her new vet is, AW Animal Hospital. She has been pink for the past two days, which has not set with me well at all because I know it hasn’t been comfortable! It hurts! My Mom asked why she is pink and he said because she is ‘inflamed.’

So, he gave her an injection and she is not scratching right now. I was so afraid and this is so promising!!!

She will have another appointment in three weeks. We talked to Sean as my mum was putting my socks on, and I told him that this is so promising because I was so afraid for her!

So, you know this song is in my head and I have to tag my sister-in-law and my brother by posting this one:

So, since last Sunday and after Fr. Mike’s homily, I have watched this video numerous times:

Let me explain to you why I bawled. I bawled because I no longer can use my ‘chest voice.’ I barely can use my ‘head voice’ now.

This song makes me bawl too because I remember being caught belting it out by 5 year old Sean and his dad:

Disease progression with MS absolutely stinks!!! it really stinks this far into the disease!!! I’ve been drinking my breakfast for a number of years. I don’t mind it. It’s difficult to swallow that early for me anyway.

Well, I no longer can open my nutrition shake on my own. You know, when you are opening something and that little piece of plastic needs to be broken. Well, that’s too much for me now!

I am extremely happy that I got my mom a can opener for Mother’s Day a couple years ago. I got it for her because she said opening things was getting difficult. I’m glad this tool helps with what I needed for now.

Looks like that ability is gone for me now too. It is never coming back. That is a fact I am desperately trying to get okay with. I have to. But you know what was in my head this whole time as I grieve my ability:

in 2002, when this song came out, I was in college, on Canadian crutches, still driving, and thinking my life would turn out differently than it has. #ItSucksToSuck!!! #MSsucks!!! 😒😒😒…