Category: A Bit Of Randomness

I wear my dress socks with my shoes on inside out as well. I will leave the house wearing them today because I have a doctor appointment. My feet really are a thing now:

It’s like this now:

I was not able to get my shingles shot today. ‘Splain ya later.

I saw this on March 2 but I did not read the article. I wanted to save it because I sleep on my back in my Tempur-pedic bed and do not move anymore. My Mom does lots of preparation to assure that my feet are not on the bed.

I had to add another step in the morning probably about six months ago. After I washed my hands, I use a washcloth to wipe my mouth. I had no idea why I was doing this, but when I saw this, I guess I should have read the article. I am drooling in my sleep and I don’t even understand how because I don’t move from laying on my back.

I couldn’t crop the picture so that was just my screenshot from March 2. I am so grateful that I found that picture though because this because I have been thinking about it recently.

But late this morning, when I awakened and sat up in my bed, it felt like I was punched in my face, the left side of my jaw. I sat there, and I just screamed. It sounded like a crazy moan or something, but I did it like three or four times.

My Mom was on the phone with the medical supplies company for my tens unit and I just waited.

I must’ve been clenching my teeth something fierce last night because my jaw was killing me!!!

When I told my Mom about it this morning, she told me I should talk to Dr. Fox. I told her that he’s retired and I just have to deal with it. Because that’s what I have to do. I’m so grateful for my mouthguard! I have been wearing it since 2011.

I saw this when I woke up:

There is a reason my cholesterol is high currently. My mom and I know what I need to do so I’m not concerned about that but it’s really cool that My otherbloodwork is great. I get my teeth cleaned next month the day after I get my haircut. That doesn’t happen until April 15.

At my appointment on Tuesday, Dr. Chamas gave me a referral to have an ultrasound on my limbs before I go to the vascular surgeon in June.

I thought about that today and I forgot about it until 4:18 so I called Henry Ford and made an appointment for my ultrasound on May 22. That is before my appointment with the vascular surgeon.

My hands and feet seem to be getting cold at night and it’s a little concerning. Actually, A LOT concerning!!!

I pillaged today and this is the second week that I’ve added 21 pills. They are helping my eyes. I will see Dr. Clark in July to get properly dosed for it.

So get this. My wheelchair is losing power and all I am doing is sitting in my house in my living room. My Mom called Ray at NSM yesterday to talk getting it fixed. He needed a work order signed by my PCP to get things started.

In talking with Ray, he told my Mom it would take about a month to get started. That doesn’t work for me because I’m getting my haircut on April 15th and my teeth cleaned on April 16th.

I messaged my PCP about it last night. I got a response when I woke up. My Mom started talking with Ray at the same time. He told my mom that he is just waiting on Billing to write up the order. She asked if there’s anything that we need to do and he told her that we didn’t.

I will message her tonight and let her know that he is going to fax her the work order and she just needs to sign it.

I’m a bit surprised about this whole thing! I can’t believe how it’s all working out! When Ray gets the signature, and then the supplies (which come from California) then, my Mom will take my power chair back to him to get serviced.

I had to sit in my custom manual chair for that and when I had to sit in it for six days at the beginning of the month, I realized that my custom manual chair DOES NOT work for me anymore. I can’t get out of my head how much I zipped around CCA in it constantly! I had the hardest time just sitting in the chair from March 11 to the 17th.

At least this time, it will only be for one day. I really can’t believe that my entire life is really MS?!!!! But it is.