Category: A Bit Of Randomness

With this weather, I am not feeling well at all! I will ‘splain ya later about that in a bit but I am not looking forward to the upcoming, sustained, 90+ degree weather that are coming up… I have to leave my house in the middle of it…

I’m really not looking forward to that because it was warm when we left the a few days ago; coming back was really hard to come in from the heat to the air conditioning. My body was doing crazy things and it felt crazy!

Okay, I wanted to write about the fact that I have a medical device, but I never got around to it. I have a Guardian Medical device. I got it in 2016 or 17?

I had fallen in my house and my Mom researched the different medical device companies and we chose the one that I have now. I have decided to write about it because today, at 9:17, marked the third time that we had to use it in my house. We also had to use it once while we were at the dentist when there was snow on the ground.

My Mom used my device to call 911 and guys from Melvindale station 5 came. Brian, Mark, and Jon came in to my house. I had collapsed when my Mom was transferring me to my wheelchair. This heat ain’t no joke!!! I told them all how much I weigh and Mark told me that it was not a lot!

So, Brian was running point because he was the most seasoned. He came into my bathroom (because that’s where my Mom laid me down). Brian clasped his hands under my armpits and John took my left leg and Mark took my right and all three of them had me up pretty seamlessly and placed me into my wheelchair.

I used my joystick to put my chair all the way back so I could fall backward into it. Just like Diane told me to at RIM. Brian said that was really smart and I told him that’s what my wheelchair tech told me to do.

I have been physically lifted up by so many men, at Barwis, in medical situations, and it’s so uncomfortable! (It still is by the way!) I remember that when I used to fall at Barwis, and guys would come and pick me up, I knew all of them, so they would put their arms under mine and I would grab their thumbs with my hands. I remember the first time I did that with Adam, I think. He smirked at it. Maybe it was Michael?

I thought about that today because as three men had me in their arms in my hallway, I was quite uncomfortable! I didn’t know what to do with my hands, so I rested them on Brian’s hands.

As I was safely back in my chair, and Brian was talking to my Mom for her to sign some papers and getting a phone number for her, I looked out my window and saw red lights flashing!!! My Mom told them that we did not need all of the bells and whistles, but just needed someone to pick me up.

That’s so embarrassing! I’m wondering in this heat how many times this will happen? #MSsucks!!! 😒😒😒…

Oh, this was brutal! It was 95° for far too long today! Sean stopped by and we sat in my living room, all three of us, not saying a word. This is so difficult and it’s not even July yet?!!!!

well, the guy who installed our air-conditioning, took a look at it today. He found the culprit!!!: mother nature.

Paula was living next-door when Iwe moved into the house. Just before she moved out, she planted two cottonwood trees I have been without air conditioning for nine years and now that I am homebound so I’m not outside very much.

At least it’s comfortable in my house right now even though it’s 89° !

I had two procedures today. One of them was successful and the other one not so much. I have to redo it in the next few months. I’m going to talk about these appointments but I’m a bit groggy today.

Barb, my nurse told me that it would be about 12 hours before I feel better after the anesthesia I had. She gave me two of those hospital bracelets that I used to LOVE when I was in high school! Well, didn’t know what the second one was, but I just went with it. It wasn’t until my Mom came back to see me in my room, I was in Bay 16. She took pictures of them:

I didn’t read it until my Mom came back and I paused when I read it. Well, I am! I told Sean about it and he said for insurance purposes, of course I am fall risk.

I just never thought this would be a bracelet that I would have on in the hospital. I need to cut them off because I’m an adult now and you don’t wear them for fashion. I thought of this movie when I was thinking about cutting them off:

My Mom got a call from a woman named Amy who is the anesthesiologist for my cystoscopy on July 15. I was sleeping and she wanted to talk to me so she called back when I was awake.

I need to stop taking my supplements until my procedure?! That’s 15 days?! I had already taken my morning supplements today, before I talked to her,but I won’t take them again until after my procedure. I do feel this for sure! I have been taking my supplements for so many years that it’s doing something for me that’s helping me out but to be without them is a little rough!

She did tell me I can continue taking my Prilosec (I still have gastritis), Claritin, Tylenol, and eye drops. It’s just like the last time! My Mom asked me why I am having all of these things so close to together. She was kind of frustrated!

I told her that I have had MS for 24 years and my different organ systems are reacting accordingly. I just don’t know why I did it in the summer! That’s rough in and of itself so I don’t know what I was thinking.

So, I know what’s coming for this procedure. kind of. I do know that I am going to let myself cry and I will look forward to having supplements again on the 16th!!!

So, I was diagnosed with Multiple Sclerosis on December 28, 2000. Since then, I have not been hospitalized. (KNOCK ON WOOD!!!) I have worked really hard to NOT be hospitalized for over two decades in watching my diet and exercising what I can.

What is kind of smacking me in the face right now is the fact that I have all of these outpatient procedures coming up. I have already stopped taking my supplements until the 15th. Then, my Mom will be getting a phone call to reschedule my endoscopy and colonoscopy.

This is a whole lot! I’m just happy that my house is comfortable because it’s been 70° here all day so I need to take the wins where I can get them.

I just can’t believe that I did not think that it would get like this… EVER. Seriously?! But here we are. I’m just going with it. This is scary and I KNOW that I will cry uncontrollably at least two more times this year.

That’s a little bit daunting, but I’ll be ready gearing up for the I’m going to have my next outpatient procedure on the 15th. And then my colonoscopy and endoscopy needs to be scheduled.

I just can’t believe that later this year, it will be 25 years since my diagnosis, and this is serious now! #MSsucks!!! 😒😒😒…

I secured my final appointment for the year on Tuesday. It’s scheduled for my internist in October. This is my life now. I really can’t believe this?! But this is how it is now.

A nurse called my Mom today to reschedule my endoscopy and colonoscopy. She told my Mom that it needs to be 3 to 6 months from my last attempt. That was on June 25. My Mom was in the kitchen and I heard her schedule it for September 9.

It took a minute, but I told my Mom that she should call her back on Monday because three months would be September 25 so she should call and reserve a date for the first weeks in October.

And by the way, I miss spoke about standing up fully. I didn’t stand up fully until today! It took eight days after getting anesthetized that I could come back from it. I didn’t even know that it was so hard for me until I stood up today! I can’t believe this is my life now!!!