Author: Jen Rios

My Mom and I are STILL dealing with this tremendous red tape, but I overheard her the other day talking on the phone to my wheelchair company, and the man told her I said I could pick up my chair as soon as the Monday after Thanksgiving. My ears perked up at that! I should have gotten my new wheelchair in July, but this will make the BEST present ever!!!

I woke up to this:

I put my hands on my eyes and began to cry a little bit as my Mom came into my room. That’s the only time that my eyes leaked and I was able to get out of bed without crying.

It was kind of difficult to get me into my chair, and my Mom got me seated and then turned toward my bed, and said, “That was very difficult—“. I stopped her when she said that with my eyes closed and I put my right hand up to stop her from talking, and used my left hand to recline my chair in the seated position.

Once I was fastened in, I told her that, “It’s still going” as I leaned forward and allowed my sweatshirt to fall down my back.

I’m really not digging how difficult it is to get out of bed! It’s only getting worse, but I did NOT cry today… even in the rain so that is a plus?

This morning, when my Mom got me out of bed, my eyes did not tear and I don’t think that that I granted as much as I did yesterday. I was able to sit up on my own by engaging my core. I hear a mix of all four of my previous Barwis trainers. Today, I thought mostly of Nick, my last trainer.

As I sat up, similar to yesterday, and I didn’t even know how loudly I said it but I said, once I was seated upright, “Kinda traumatic.” I didn’t look at my Mom and I don’t think I was saying it to her, but mostly to myself.

I am starting to get completely startled at how difficult it is to wake up and move around to get into my chair. When I was putting my contacts in today, I asked my Mom if she heard what I said this morning, and she kind of acknowledged that I said something and asked me what I said.

I looked at her and said, “Kinda traumatic.” She nodded and told me that she heard that and then asked, “What am I supposed to stay?! I did not even look at her as I put my contact into my left eye and I just sad, “Nothing.”

There is absolutely nothing to say, but I’ve told my Mom so many times, I never thought that it would get this bad, because I really didn’t!

This morning, as my Mom was getting me out of bed, as soon as I used the remote to make my bed completely flat, my body started jerking and I started to grunt because it hurt so much so that my eyes began to tear.

Waking up and getting out of bed is becoming definitely more difficult! It seems as if I am tearing up almost on a daily basis. My Mom gets me into my chair, I push the joystick all way back while it is stillin the seated position so that I can get back into my chair to be properly sitting in it.

Once I get all the way back into my chair, I move it downward a little bit and fasten my pelvis stabilizer. Once I do that, I put my chair even further forward so that I am leaning forward so my sweatshirt will fall down my back.

This morning, as I was sitting up in my chair after getting my sweatshirt down my back it takes a minute for me to engage my core to sit up and I can’t do it all the time but I did today. Just as I sat up in my chair with my sweatshirt on, and my pelvis stabilizer fastened, I looked at my Mom, wide eyed and exclaimed, “That was INTENSE!!! Because it really was… This is getting concerning… #MSsucks!!!

This happened today, so I only have one last bag-o- chapstick!:

It’s Salted Caramel. That’s not my favorite! I finished my Chai ‘bag-o-chapstick’ today and unsealed the tube in my box so now I can go back to using my box:

This happened on Halloween:

That was my Vanilla Maple, chapstick. So now I am left with only two bags-of-chapstick left.

I have a bit of Chai and Salted Caramel. Salted Caramel is my VERY LEAST favorite, and I only have a little bit of a tube and one full tube before I never have to use it again, because I don’t like it!

I’m not feeling well, but I am so happy that my Beeb is 22 now and I was able to make an orthopedist appointment for January to discuss the pain, I am feeling in my hips, which is quite concerning for me!!!