I had my appointment with Dr. K today. It was for 2:30 in the afternoon. As a homebound person, that was extremely difficult.!!! I woke up at 6:30 and got out of bed at 7 o’clock. I wanted to get into the bathroom to get ready to go at 10 o’clock but my Mom wanted to sleep so we started at 10:30.
We worked quickly and were able to make it to my appointment on time. (actually, in that 15 minute grace period, we had five minutes left) We got to the appointment at 2:40 but she did not come to see me until 3:08.
That completely reminded me of the time that I was in the urology clinic years ago. Probably 20. That doctor, (I don’t even remember his name) was almost 2 hours late and I was pissed but when he came in, he did not sit in the doctors chair, but right next to me in the patient’s chairs and he said the best thing that I have ever heard in my life of having this disease for 24 years! He had a football players build, maybe wrestlers because his ears were a little cauliflowered. He looked at me and said with a straight face, “MS sucks!” I was so surprised at that statement, but even then, I knew it was sucky, but I did NOT think it would be THIS sucky!!! I agreed with him then, but I had no idea it would be like how it is now!!!
My Mom took Michigan Avenue the whole way and it was freshly paved so it was wonderful!
Gettting through the hospital and into the elevator was a breeze and my Mom talked to the young man who had a broken leg and his dad was pushing him in a wheelchair.
We were in a hurry and I thought my appointment was on the ninth floor. My Mom did not ask at the front desk. She walks ahead of me and I learned that with her red shirt, it was easy for me to see her. She also had a white zippy that I used to wear, and the contrast made it easier for me to see.
She called back to me and asked what clinic we are going to. I told her Urology, but she didn’t understand that. But then I said with a U and then she got it. There was someone standing on the side of the hallway, who interjected that the urology clinic is on the ninth floor. We thanked her and kept hustling!
I have to think about things like that now. With these appointments in the middle of the day, it is so busy that it’s difficult for me to focus on her. Today, getting into the elevator from the parking structure was extremely scary and I will think about that and probably write about it tomorrow.
So, Dr. K comes in and asks me if I am having any problems and I told her that I have not and I told her that recovery took eight days. She apologized for that and then she told me that in six months, I need to see you again for an, “in clinic peek into my bladder.”
So that’s a thing now. My bladder. 24 years in, this is a lot to process. I have more things to write about my time there, but I am about to crash. I was so nervous about this appointment and I’m so glad that it’s over.
