Author: Jen Rios

Interesting OR Procedure Room 3

I had my appointment today. The very first of its kind. It’s interesting. Before I left, I’m going again in August. My appointment was at 2 o’clock. I did not get down to the lobby until 4:28:

I snapped this picture in the hallway because it was my exam room number:

After I did that, my Mom took a picture of the exam room:

Jason and Chelsea prepped me and Dr. K was in the room for about five minutes. I have entered a new realm of dealing with MS now…

With that being said, #ItSucksToSuck!!! #MSsucks!!! 😒😒😒…

4.6%

I am already thinking about my appointment on Wednesday because my Mom needs to pick up the van Tuesday evening because my appointment on Wednesday is at 2 o’clock. She wouldn’t be able to pick up the van in the morning and get me ready to go to my appointment.

Van rentals are 24 hours periods. My Mom is picking up the van tomorrow just before they close so then she can return it on Wednesday just before they close.

I am thinking about this today because tomorrow, I will set my alarm for 6:30. I am not used to having procedures in the middle of the day at the hospital. This disease progression ain’t no joke and I have never had one of these procedures before so I’m a little bit nervous because the last procedure I had related to this one did not feel good at all for eight days!

My Mom did my taxes last Saturday (I have to get them done early now ever since I was scammed) We figured out how many van rentals I had last year. I did the math and it cost me 4.6% of my income to rent vans. My medical care last year exceeded what I was making my final year teaching. I’m really hoping that this year it calms down a little bit.

I am not so sure about that though… #ItSucksToSuck!!! #MSsucks!!! 😒😒😒…

“Very Good, Actually”

I needed to get a new eye mask because it got overstretched. It arrived yesterday. I wore it last night. It’s a little bit different than the one I got originally, but it’s basically the same.

As my Mom was helping me get to bed, she gives me my goggles/eye mask before she covers me and she puts the Egyptian Magic on my face after she covers me.

I just slide the eye mask to my forehead, and she rubs it on my face. My cheeks and my septum. It’s been a little bit tender under my nose on the outside of my nostrils.

I asked her last night, “How does my face look?” and she said, as she was rubbing the cream on my face (on my cheeks really), she responded, kind of surprised, “Very good, actually.”

My face is feeling better and a lot less chafed than it has been in the past month. It’s almost healed. That’s exciting! Even though it snowed today, my body feels like the weather is changing so I think that I will change over to Pomegranate chapstick once this tube of Cocoa Mint is done.

Even though it might still be cold, I used to use Pomegranate year-round when I was working out at Barwis and then I changed to Açai Berry.

That flavor is discontinued, but I do know that I have about 10 in my basement somewhere. Hopefully, I’ll find them before they go rancid.

I Don’t Know When

When I awakened this afternoon, I started to check my emails before I got out of bed. Henry Ford MyChart sent me an email. It’s talking about my appointment on Wednesday. Which brings me to that stupid song! Something that I thought was about something different when I was a kid. But this is my life now. This is it! Let me ‘Splain ya:

Last Thursday, when I was getting ready for my virtual appointment with endocrinology, I logged in a little bit early and I immediately got a questionnaire about my appointment that’s going to be on Wednesday. So, I filled it out. Once I submitted it, there was another questionnaire about the appointment I’m having next month.

I don’t know when but this became my life. But it did. I just go to the doctor. I have to space them out because it’s so tiring but that is my existence now.

Here’s the song that I thought was about something different and it’s just dumb, but this is my life and ‘this is it’:

This is It!

I pillaged today. I didn’t get my supplements today that I ordered last Wednesday when I got paid. It’s not a huge deal because I’ve been on all of these supplements for years at this point. It just would’ve been nice if it would have arrived.

A song popped into my head a few days ago, and I’m reminded of driving with my mom in the backseat of her station wagon we’re going to the dentist in my Dad’s car. I saw the video today and it’s dumb!!! This song popped into my head and I’m letting it ruminate for a moment before I write a post about it, but here it is:


Great Teeth OR Powerful!!!

Today was the first Friday of Lent, so of course I watched, Jesus Christ superstar and right away, I was reminded of Judas’s great teeth! I love good teeth and his are absolutely great!

I did not think that I would cry because I have seen this movie so many times, but when Jesus pleaded with God, I started to cry because that is so powerful!!!:

Virtual Endocrinology Appointment

it has for my virtual endocrinology appointment today, I have to have another bone scan. A little bit different than the bone density one but based on that scan, they will see if I need any treatment.

I already can tell you that I will not take treatment from them. I have been treating my Multiple Sclerosis naturally. 25 years in, I am straddled on the line between eastern and western medicine. Eastern medicine is on my left and western is on my right. I am left-handed. At this point, I’m kind of leaning on my left hip because my right hip has osteoporosis.

Mu naturopath constantly tells me to check in with my medical doctors which I regularly do. This year, I’m not going to be able to see him until July because I have appointments with different specialties each month until then.

Today, the endocrinologist told me that I need a different test because it’s a little bit iinconclusive. She told me not to rush it, but the orders are in for it.

so this is how it worked for my virtual endocrinology appointment. Now, she told me that today on February 19. I will have that scan in October. I told Sean about it and he needs to come because it needs to be performed at New Center One and they do not have a hoyer lift team there.

This year, I only had three months available without a doctor appointment. It was June, July, and October because I don’t have appointments in October because we go to the Cider Mill. This year, I am going to have an appointment in October.