Rando Tune #45

Sean stopped by today and told me that my hair is really short and that I have a different haircut then he has seen on me for his entire life! I just let him know that my hair consistency is changing. I watched the second half of Love and Other Drugs today and I was taking my contacts out as the final song was playing and I just really like hearing it! I have had seen this movie so many times but this time I really paid attention to this song;

Rando Tune #44

I was mindlessly playing Tile Triple 3D on my phone trying to recover a bit MORE because I finished pillaging. I put on my U2 playlist and this song started and I put my phone down and just had to go back to the summer of 2000 just before college. I remember jammin’ to this tune and driving still. That was my last summer of being carefree!

Sucking!!! OR ‘Permission Slips’ OR Broken

I had that appointment with the specialist today. A few days ago, I was a little bit nervous, but then I wasn’t.

I explained to my Mom a few months ago that all of these doctors appointments are nothing more than to get them to sign the ‘permission slips’ that I tell them to sign. I definitely do NOT want to sound or be haughty or anything about this but I have had MS long enough to tell them what I need.

This doctor told me that the last time I was seen in this clinic, was in 2013. I told him what I needed and he put the request in the computer. We had to wait almost 2 hours to see him and I told my Mom that’s about right because I came to this clinic in 2001 (it’s the same specialty but I don’t think it was the same office) and I had to wait two hours then and when that doctor came in, he did not sit in the doctor’s stool, but sat in the chair next to me. I will never forget him looking at me and telling me that, “MS sucks!”

I remember being surprised, first off, that he sat in the chair next to me, and then for him to say that to me. I that was the first time I heard those words from a doctor and I think I may have looked at him almost teary-eyed, and said, “Yeah.” that was way back in 2001, I didn’t even know what to expect back then but I already knew that it started sucking!!!

Now, for the rest of the year, I just have two doctors appointments in September and then I am done with doctors for this year. I think it was in 2022 when I got my pressure sores on my heels that I understood how this is going to work with me having MS for this long and the fact that now I need multiple doctors in different specialties to handle me.

I was telling my Mom today, that two of the last three doctors we saw, told us, “If it ain’t broke, don’t fix it.” I had to call the specialist after getting the referral off MyChart from my internist. I have been handling this for 21 years, but it turns out that probably in mid June that it to be ‘broken’ so that’s why I went to the doctor today. He signed off on everything and now I’m good to go!

More on the ‘Complicated Changing of the Guard’ OR Accomplished

Tomorrow begins go time for me for August. We will get our haircut and my eyebrows waxed and I am seeing a specialist on Friday. I want to explain why this ‘change’ is complicated’:

As I posted yesterday, this is my last tube of Cucumber Mint for the Spring:

Now, I am leaving the house tomorrow, so I am NOT going to take my bag o’ chapstick with me. So I have decided to make the executive decision to use the Strawberry Sorbet that I bought a couple years ago to try. I don’t love it but I don’t dislike it so much as to not use it. Last year, I just used it on Saturdays but I forgot to use it this past Saturday because of what was going on with my Cucumber Mint.


So this is what my Spring/Summer flavors look like right now. But here’s where the complication begins, after I finish my Cucumber Mint chapstick which is in a bag right now, I will finish the Pomegranate, and then I will put all of my Fall flavors in there, until my other pack of my leftover Fall flavors from last fall is gone. Then I will switch it back and will buy more Cucumber Mint for next Spring.

I know that there is no reason to pay this much attention to the type of Chapstick you are using but, it keeps my mind busy, and it wasn’t until I became homebound that I can use and tire tubes of Chapstick. That kind of makes me feel a little bit accomplished!!! I’m trying to look at the bright side of things…?

Terrible

It’s raining. I feel terrible! I put on my Gavin DeGraw Apple Music playlist on and it’s on shuffle. I am in our very first apartment! I can still see the inside of that apartment. This is the CD that I was listening to at the time, and this is a jam for sure for me!:

That’s What I Get!!!

I wrote about my chapstick yesterday. I am on my last tube of cucumber mint. I wondered how close I was to the end of the tube, so I pushed it all the way up. It clicked. It’s not going back down. That’s what I get!!!:

Let alone a complicated changing of the guard, this is complicated chapstick application!!!!!