So, let me start off by saying that most of my days, I spend alone. I am by myself after my Mom and I complete our morning routine and while Sean is at school. I spend most of that time watching TV, posting on Twitter or Facebook, so my time is usually spent in silence.
I am still trying to muster up enough strength to read! It absolutely breaks my heart that I have not been able to read since the power outage at the end of May. Recovering from those six days away is still not 100%. I rarely leave my house because now that I am in a motorized chair, I don’t have a vehicle to transport it.
Yesterday, Sean took me to get my eyebrows waxed and my hair cut in the evening. I NEED TWO eyebrows! Sean is used to transferring me in and out of the car and pushing my wheelchair. We got to my haircut place and Sean sat down.
I’ve written about the woman who waxes my eyebrows and cuts my hair before. She has been doing it since Sean was very young! So, she knows me! You know, there is a special bond between a hairdresser and a client. That’s where we stand!
She pulled her chair out of the way to allow me to wheel up to her station. She always asks me how things are going and when I spoke, I saw her look of concern immediately. She asked me questions and then had to lean in to hear my answers because my speech was so jumbled that I spoke very slowly and not too loudly.
She asked me if I was OK and I told her that this has been a relatively new development. She cut my hair and then wheeled me over to get my eyebrows waxed. We still continued to have conversation as best as I could and she asked me if I needed to see a doctor.
How sweet! I told her that I talked to my neurologist’s nurse yesterday and this is just part of having MS. She looked so concerned and I felt badly for that. She told me that she has known me for a long time and that I have never sounded like I sounded last night!
So, now, I have two eyebrows and my hair is cut nicely. I didn’t leave my house today either. I’m OK with that though. It is what it is and MS still stinks!
Hi Jen,
So sorry you are still unable to read. Do you have Hoopla, Libby or Overdrive? They are library apps that have audio books for free!
There are lots of choices, too.
Do any of the priests from DC come and see you? I see your first pillar for your health is a good relationship with God. I emailed Marilyn in the office yesterday for a friend who had ankle surgery and is home bound as well. She wanted a priest to come and see her, bring her Communion, hear her confession etc. If you would like me to contact her let me know. Or here is her info: marilyn@divinechild.org. Keeping you in my prayers.