7.27.17 Hopeful but…

So, Thursday my face was still a bit flushed and my knee did not throb like it has been for so long! I was excited to tell Brad about this and he told me to wait until it doesn’t hurt for about two weeks and then call Dr. Frush’s office to see about going back to Barwis.  Especially because now, I am going to have to figure out a way to pay for physical therapy out-of-pocket.

He worked on my knee for a little while and it is really nice that my legs aren’t that spastic. Then, we worked a lot on movement. He had me kick my leg out and then squeeze  my glutes.  He put my leg in traction and that felt really good!   Then, he brought over that Styrofoam buoy thing and we started doing things that I remember doing at Barwis.

He bent both of my knees and had me push them out and pull them in like I used you at Barwis.   It felt really good to be doing these exercises. I was hopeful but, I was TERRIBLE at it!  I used to be good at these things!  I could pull my knees in easily and push them out just as easily. Getting them to move at all was extremely difficult!

As I laid on my back and rested between sets, Dan stood over me and shoved his fingers into both of my ears. I was happy to see him!  It feels really good that my knee does not hurt because the Cortisone is sticking. I am hopeful but I know that it is possible for my knee to start hurting again when the Cortisone wears off; hopefully that is not too soon.

I would like to get back to Barwis because I really can’t afford to pay for physical therapy.   I am hopeful to regain muscle control once I am back at Barwis pain-free but I know that it is going to be a very long road and it is going to be difficult to redo all the work I have already been doing for the past four years.   I am not going to pretend like it is going to be easy because I know it won’t be but being hopeful is all I can be, right?!   Is the only way to be. I hope.

Gifted

I saw an advertisement OnDemand for this movie to rent and to buy  yesterday and I remembered  that I wanted to see it when it was in the movie theater  and I couldn’t find anything else on TV so I ordered it.  I really dug it and have seen it six times  so far and I still have 23 hours left in my two-day rental of it.

(CLICK ABOVE PICTURE TO WATCH TRAILER).

It feels like when I rented Burnt and watched it over and over. Now, I really don’t have a thing for Chris Evans like I do for Bradley Cooper but I think I could but I really liked this movie!

This was the first scene that I decided that I really liked the movie!:

This scene made me laugh! It’s another one of my favorite scenes in the movie:

I am not a cat person by any means, (my cousinT Shannon can attest to that) but I absolutely LOVE this scene because it shows the compassion of the teacher and how important the cat is to Mary.

This was an absolutely beautiful scene! This  scene was one that made me cry. But I do that often now anyway.

Now, I am not a movie critic by any means and Sean would say my taste in movies is terrible but I would suggest this movie to anyone! I really liked the content but in the back of my mind, I also thought about how difficult it is going to be in the Fall when I no longer have any students. In the meantime, I will be entertained by seeing this movie a couple more times in the next  21 hours or so…

That 3%

So,  Dr. Frush  gave me a Cortisone shot on Monday. My knee still feels really good! It feels like a normal knee, not one that has been cracked open like it felt for eight months before surgery and  the gnawing, aching pain for 2 1/2 months after surgery.  When he gave me my first Cortisone shot pre-surgery, he told me that 3% of women who received the shot  experienced face flushing as a side effect. The pre-surgery Cortisone didn’t take the pain away and I was not part of that 3% whose face flushed.   That was a really big bummer!

So, I got the shot on Monday and my knee felt good. Tuesday, I woke up and my knee was not in pain. This morning I woke up as my mom came over to help me  and she asked me if I had a fever. I shook my head and gave her a puzzled look. She put her hand on my cheek and forehead to make sure that I didn’t have a fever. I looked at her and told her  that face flushing is a side effect of the Cortisone shot. I asked her (kind of excitedly)  if my face was flushed.

She nodded and said that that was what it was. I told her to take a picture of my face. I was really excited to be part of that 3%. She took a picture of me and I could not stop cheesing.   I would share this picture but my teeth were not brushed and I kind of have a thing about teeth. So, I got ready for the day and into the car and took a picture that I’m willing to share:

Now, I was outside so I HAVE to wear sunglasses but if you notice by my nose, its pink.  My face stayed flashed for most of today and my knee has not hurt either. I don’t want to jinx it but I am very excited so I thought I’d share. I really hope this shot working sticks! Brad told me that I can only get four shots a year  and I’ve already had two so…

7.24.17 “Rebuilding” OR Post-Surgical Cortisone

had my scheduled post op appointment with Dr. Frush  yesterday.   When he came in, we talked about me seeing him at the golf dinner for Barwis Methods and Mike Barwis and the work he does.  It was really nice seeing Dr. Frush there! He rolled over on that little round chair and examined my knee.

He told me that my ports were starting to look like they were healing and I told him that  it still hurts but I noticed that too after I told him about Sean telling me that it looked like a screwdriver was shoved into my knee twice because it looks so gross. He looks so gross.   He laughed and straightened my leg and then bent  it to see my range of motion. I told him Brad got it to 123°. I’m so proud of that!

He looked at my knee and asked me if it hurt everywhere he pressed. It hurt almost everywhere he pressed!   The only place it did not hurt was when he pressed on my kneecap. The work Brad did was good! My kneecap was not hypomobile!

After he pushed on five or six places in my knee he looked at me  and told me that the ports were beginning to heal  but the insides of my knee were still rebuilding. When he said this, I automatically thought of the Barenaked Ladies song, “Call and Answer.”  

Probably because my roommate, Angela, at WMU really liked them and I would hear that CD  skipping often in the middle of the night. This was in 2000 so was pre-drug bust and all that stuff. So this really shows my age but it was good music when I was a freshman in college!  Then he told me he wanted to give me a Cortisone shot. I talked about how it didn’t work pre-surgery but  he said that he wanted to give it a try because my knee was still  hurting so much.

He left to and a nurse came in and got everything ready to get the shot. He returned and I told him it was going to be the magic , heal-all Cortisone shot like in Varsity Blues because it was post surgery. He laughed, rubbed alcohol on my knee, sprayed it with the  numbing spray,  then shot me, and put a cute little Band-Aid on me.

  

Now, first and foremost, I want to remind you that I have  warned you many times before that I have ugly  knees  and this picture doesn’t make them look any better because I zoomed way in.  Knock knees are not cute!  If you look closely, you can see my ACL reconstruction’s car  in the middle of my knee and  sort of one of the ports from my meniscus repair that’s on the mend in the right of the picture.   How ’bout I did not realize I had a birthmark on my knee until this injury. I think that Band-Aid is cute and I think it would be cuter if it were purple; but I think that’s just me.  He told me he wanted to see me in two months and reminded me that it is going to take 4 to 5 months for my meniscus to heal properly. I am only 2 1/2 months post op.

Well, as of right now, it looks like the post-surgical Cortizone shot IS the magic heal-all!   At least for right now.   I woke up  this morning and for the first time my knee was NOT aching!   Yesterday, when I got to ATI, I had to cancel my appointment because Brad told me it was too soon after my cortisone shot to get physical therapy. He said we had to wait for the Cortisone to set in for 48 hours.  I go back to ATI on Thursday. I hope this Cortisone sticks because Brad told me I can only get four a year.   We will see, won’t we?

NOT COOL Stuff #14

I had another post op appointment with Dr. Frush today.  My mom and I stopped for some lunch before my scheduled ATI appointment. (I will write about that later).   It was a really good lunch and I went to wash my hands after I used the restroom. This is what I saw:

This was a little bit frustrating! So I sat up taller and this is what I saw:

   

So, this is REALLY not cool! I would like to look at myself in the mirror too! It’s, “things you don’t think about until you HAVE to think about them!” I guess that yellow warning sticker was so much MORE important than disabled people being able to look at themselves in the mirror! Huh?!

7.20.17 Concerned OR Other Factors

I woke up Thursday morning in pain. Again! It’s not the excruciating pain I experienced before surgery but it’s still pain. It’s  a gnawing, aching,  constant  feeling.   I thought that 2 1/2 months after surgery, it would be better.  I also didn’t think I would have to ice it around the clock like I  still am. It’s taking it’s time!    I am concerned by this fact.

I was late to my ATI appointment and I worked with Luba.  We cut the ice and stim time and she just worked on my knee  the whole time. She hadn’t worked with me in a while and she said my knee looks a little  better. She asked me what my pain level was and I told her it was a 4.   It just seems to be taking its sweet ol’ time  to feel better.

She said that was surgery and when my time was up,  she told me that this session was my last appointment that insurance would pay for.   She gave me a paper to fill out for financial assistance and scheduled a few more appointments with Brad because I still need  physical therapy.  I’ll figure it out.

I see Dr. Frush on Monday before I see Brad and I am concerned. Concerned that I will not be able to go back to Barwis yet because my knee still hurts!   I asked Luba about the length of time it’s taking to heal and she told me that everyone is different and I have other factors going on.   My “other factors” being having MS among other things.

7.17.17 Surgical Ports

Sean saw my knee last Saturday  as he changed by ice. He was disgusted! He told me that it looked like someone had shoved a screwdriver into my knee, twice! So, my surgical ports  are still not healed!   More than two months after surgery, they still look angry red and “disgusting.”   But at least they are not bloody anymore!

My knee hurt yesterday and Brad started with traction first because it hurt so much!   As he pulled my leg, Megan came over from Barwis!  She came over to cool down because Barwis is not air-conditioned. I was a bit cold at ATI so I was wearing a hoodie in the middle of the summer! Megan came right over and hugged me!

We talked while Brad pulled on my leg that really felt good!  I told her about my knee still hurting but I hoped to be back to Barwis soon.  I told her how Dr. Frush had suggested that I may transition back to Barwis after my next appointment which is Monday  and how I was doubtful of this because my knee still really hurt!

When Brad was finished with the traction, he unsnapped my pants so Meghan could see my surgical parts and how gross they still look.  I told Brad what Sean said and he told me they were starting to look better. He has seen how totally gross they have looked since surgery.  I do not remember my last knee surgery taking this long to heal.

It looks like there are two red plus signs on my knee still!   I’m tired of my knee still hurting so much because it really does! Brad rubbed my knee and calf out and I was kind of spastic which is disheartening!  I really hate how long it is taking to heal! I miss Barwis so much but Dr. Frush told me months ago, in September, not to go back to Barwis until my knee stopped hurting. I can’t believe it still hurts!

I lifted my foot a few times end it took a few times for my leg to relax and allow my foot to be raised. After we did this a few times, Brad pressed and my butt and had me tighten it a few times. I asked if he could feel anything and he said he could a little bit and I told him it was because my butt is too big.

He laughed  but it was kind of nice to feel it a little bit. My muscles were tightening like they used to, on command. It was kind of like when I was at Barwis  only less but it made me feel hopeful that I can get muscle control back because I  haven’t felt  that since surgery; all I have really felt is pain since my injury!

Next visit  is my last visit before going to  see Dr. Frush  and I only have a few more visits left until my insurance will refuse to pay anymore. My insurance is running out anyway since my termination from work but Brad told me that insurance will only pay for 25 visits regardless of what Dr. Frush says.

I asked Brad if it would behoove me to continue to come to ATI if Dr. Frush extends therapy.   He nodded and I said I would figure out how to pay for it because I don’t want to leave therapy prematurely  because  my knee doesn’t feel ready to go back to Barwis anyway. Read hooked me up for ice and stim and I thought about how my knee is taking it’s time to heal and my surgical ports still look bad.   I am tired of my limits after surgery and I am tired of my knee hurting  since before surgery!

“My Cup Runneth Over”

I saw Hope Floats  on TV late the other night.  I hadn’t seen that movie in a long time but I still  really dug it! I wanted to find a movie clip to remind you all about the movie because that movie came out 19 years ago, in May before my Junior year. ( I am so old!)   I found these three movie clips on YouTube:

Movie clip 1:  The Toni Post Show

Movie clip 2: Justin Matisse  It’s because of this clip that I call Sean “Justin Matisse” at times.  I’m not sure that he even knows where comes from but I say at all of the time!  I get it!

Movie clip 3: Dancing with Justin

So,  the whole reason I bring this movie up is because after the Barwis golf outing, Sean, my mom, and I were driving home and Sean wanted to go to the movies. I told him (given my current job situation)  that I didn’t have any money. My mom said she had to pick up my nephews so Sean said that he and I could go and that he would pay! He wanted to see the new Spiderman movie that came out and I was  okay with seeing that.

He bought the tickets (Full price –  something I never do!)  and even got us drinks and popcorn! After the dinner at Barwis AND  being taken to the movies by my son, I told him that “my cup runneth over!”   That is a quote from the movie and it means that I am very happy!

I WAS extremely happy and Sean even let me take a picture with him to commemorate the event (but his arms are longer than mine so he had to take the picture  for me!) I tweeted this picture because movie dates with Sean are few and far between now that he is older. We used to go to the movies all of the time together when he was younger  but now that he’s older, not so much.

7.13.17 And Then It Rained OR Again

I was thinking that  my body would feel better by Thursday.  I had physical therapy on Thursday and that gave me two days to recover from my excitement from Monday. I could feel my body gradually starting to relax Wednesday evening.  I was hopeful for Thursday and feeling back to normal aside from the pain in my knee that is slowly getting better… and then it rained!

Having  had MS for so long, I finally have recognized that the rain truly affects me! It rained all morning as I got ready to go to ATI. I moved my appointment up in the day to 2:30. As I got out of the car in the ATI parking lot, that Alanis Morissette song, “Head over feet”,  popped into my head!

What can I say?! I was 13 when that song came out and Alanis is fully ingrained in the soundtrack of my life! As soon as the door opened, I felt it! Except it wasn’t the “love [that] is thick and swallows me whole” but rather the air.   It had stopped raining but it was very humid and I could not breathe in the air!  My body still hurt!

I got onto the table at ATI and told Brad about the rain and humidity. He  put me in traction first to kind of relax my body and it really worked! Then he worked on my calf and he told me he didn’t feel as tight as it did the time before.  He eventually got my knee to bend and we got set up to lift my foot again.

As I started to attempt to lift my foot, it felt like someone was holding it down  against the table. I remember feeling this way a couple of times at Barwis and it frustrated me here too! As I was lifting my foot, I recognized Brad’s choice of words for me to repeat lifting my foot. He would say, “Again”  and I thought of Nick saying “kit”  and smiled. I had done so many more of these PNFs  at Barwis but here at ATI it’s different. At Barwis, I am training my muscles to work better but here at ATI, I am trying to get my muscles to BE better “again.”

7.11.17 Residual

I rescheduled my physical therapy appointment for Tuesday because the Barwis dinner was on Monday. I had such a great time that I kept telling my mom she would have to scrape me off of the ceiling because it felt so good that I was flying high!  My body felt the residual effects the next day.

Not only did my knee hurt from sitting so long in my wheelchair and not icing my knee in the recliner; my whole body  seemed to be  opposed to all the fun I had the day before! Lately, I have figured out that on days that I have such a great time  and I am so excited, I have to pay for it the next day, sometimes the residual effects last for two days.

I got on the table at ATI and told Brad all about the wonderful time I had at the golf outing in spite of the rain. I told him about seeing Dr. Frush  there and about the residual effects I was experiencing in my body today. He could feel it and my calf was especially tight so he worked on that for the majority of the time. It had been a while since my leg twitched in  resistance to him rubbing it out but that is exactly what it did!

He continued working and gradually my leg relaxed a little bit.  So much so, that he bent my knee and we did some lifts  where are use my knee to kick my foot into the air. Now, he  has to help me to do this  by guiding my foot up but it felt good to be able to move my knee without pain because of all the rubbing he did.

I  told him that  I was surprised and that it was pretty cool that I was moving my knee when it was bent and he agreed. He said I did pretty good  and did a lot of that on my own. Larry set me up for ice and stim and I recounted the events from the Barwis dinner and  showed him the picture I got with Larry Foote.   I had such a nice time and the residual resistance that I was feeling  in my body today was COMPLETELY worth it!