Category: Tunes

I was extremely frustrated with my final blog post today. I wanted to straighten it out now as I lay in my bed without my contacts. My eyes got pretty wonky today and, if I’m being honest, that really scared me!

What I was trying to say (and the pictures got messed up because I don’t like the updates here) is that I never noticed how much chapstick I wore until I was at Barwis and Eric commented on it because I was staring off into space and constantly applying it. I stopped when he said something about it but my lips NEVER felt overly greasy while I worked out there.

It wasn’t until recently that I noticed a lot of posts in my MS support groups where the question was posed asking what remedies we have for extremely dry and cracked lips. I guess that is a thing with MS. Over the years, I have accumulated quite a stash:

Since being sheltered in place with my Mom, I have actually used four complete tubes in their entirety.

This one was completed on August 3, 2020:

This one on November 8, 2020 :

This one on January 7, 2021:

This one the morning of February 27, 2021:

So my chapstick stash looks like this now:

I will have to restock next fall-winter favors because I have my spring-summer chapstick flavors still available. I will never use Açaí Berry unless I am at Barwis. I started using that one when I was working out at Barwis and it reminds me of that time. I can’t wear that without working out at Barwis. I think I have like 10 in a bag in the basement that I ordered and received just before my meniscus was torn.

I think it’s time to queue up by Bobby McFerrin because it REALLY is all about simple pleasures and not having dry and cracked lips makes me happy!:

I opened my eyes this morning as my Mom walked into the doorway of my room. She asked if I was awake and because I had just awakened, all I could do was raise my right hand and give her a “Thumbs up” because I could not get the words out of my mouth at that point. She pulled the covers off of me and rolled me over to my side to get me into an upright position after a number of steps in that process. I groaned when she did this and wondered if today was going to be as bad as yesterday was for me. Once I was in my wheelchair, she tilted it back to get me seated properly in it and continued to grunt. These are we’re not good signs and it made me concerned. As my legs got fully extended and I turned my wheelchair toward the bathroom to wash my hands, I smiled. I reminded my Mom that it’s Monday!

I had recently had this cheese and it was perfect for me because it was soft enough to just about melt in my mouth which is very helpful for me now. I recently learned that this cheese was available at Target. I ordered four of them and had Sean pick them up for me. I figured out that I can have half on Thursdays (my FAVORITE Day of the week) and I decided to space it out on have the other half of the cheese ball for lunch along with my protein shake on Mondays because who likes Mondays?! I have a number of reasons to NOT like Mondays and the biggest one is that my Dad died on a Monday. The least I could do is have that’s really good cheese mark that day for me!

I’ve written before about the fact that I really dig simple pleasures. This is a simple pleasure! I would title of this post #SimplePleasures but I had already titled a post that. I recently read a tweet that said when you write a hashtag, you should capitalize the beginning of each word to make it more inclusive for visually impaired people and then it would be read aloud properly. I always thought it was just me being OCD and picky but it’s inclusive! And, to say that I do not sing this song in my head every time I think of simple pleasures would be a lie!!:

This morning was super rough and it is only marginally getting better.

I saw this post on Facebook and took it as a note to myself. Today is one of those days and I will be happy when it is over and hope that tomorrow is better. I listened to this song and allowed myself to cry just a little bit:

No one said it would be THIS difficult but that’s how it is! UGGGHHH!!!

Yesterday morning just after I took my vitamins, I had to pause a moment to take a breath because my body was KILLING me! I took a number of slow breaths and and pressed the heels of my palms to my eyes to keep me from tearing up. It took a little while for me to relax and my palms did get a little bit wet. With the snow coming yesterday, I had to re-calibrate and realize that with all the precipitation, I was just going to feel pretty badly. I did feel pretty badly yesterday, ALL. DAY. LONG!!!

This morning it was even more rough with all the accumulation of the snow! I didn’t cry though, and I think the recalibration I did yesterday helped a little bit for me to handle how I was going to feel and how I am going to feel until all the snow goes away. I had to listen to this song and even though it doesn’t apply, it means something to me because feeling like this with all the precipitation outside is hard. And, “No one said that it would be this hard” but it is:

For my entire 38 years, I always thought that a golden birthday was the day you were born. I looked it up today and I saw this:

• 

I was excited to share a song that has been in my head for a while and I was 12 when this song came out. That would be my golden birthday and “12 year old Jenny” did not understand so much of the movie, Reality Bites, and I think that might warrant a rewatch soon. It’s lucky that I have NOTHING at all to do right now! Bit this song was my favorite of the movie back then:

Sean texted me from work this evening:

I don’t know what kind of car/truck he was driving but he then added this text to the picture:

“A little thirteen week old baby does not know a world w out pink and Nate ruess at #1”

This made me laugh really hard because I was driving to Barwis in the summer with him and he was 11 years old and that is what the DJ said because this song had been #1 for 13 weeks:

I couldn’t believe he remembered that but I remembered it too! I love that he shared that with me!!! 😍😍😍