Category: A Bit Of Randomness

My alarms are set for tomorrow and I’m a little bit nervous because I just found out that my ultrasound is going to be an hour long?!

I called them on Wednesday when my Mom was taking my chair in and I am not supposed to wear my compression socks but I asked if I can wear regular socks because my feet won’t be cold otherwise.

Caitlin looked at the orders for my ultrasound, and she said to bring them just in case.

I just stayed in my power chair for x-rays on my knee. I’m wondering what’s going to happen here because my chair is a lot more comfortable than an exam table!

Comfort is my top priority now. 25 years in, it’s rough and it hurts!

I went to my ultrasound today. It was a strange nostalgic trip. I’ve spent my entire childhood there going to the doctor or my brothers were going to the doctor and I went with them.

It’s the same, but it’s different. We went to our appointment and I was able to stay in my chair while she did the ultrasound. I already have results but I don’t know how to read them. I think that I will stop trying until June 26. That’s when I talk to the doctor. I go back to Fairlane so I’m comfortable with that.

We left through the back door and I saw the dialysis center and I cried a little bit. We passed the school of education and UM and I remember that too.

We had to check in at the front lobby. That’s a first! The young guy who checked us in about five minutes before my appointment told us that we were lucky because the elevator is working now. It was not working for months?!

I had a flashback from a couple years ago maybe like three when my Mom and I went for an MRI on my knee? It was in the basement and the elevator was broken then. I had paid for a van rental but I think we did something else so it wasn’t wasted. I rescheduled the appointment.

I can’t read the results right now, but I think I have to go every year now. That stinks! Rema was my tech and she recommended watching One Tree Hill. I remember that I watched for a while when Sean was in high school. I watched four episodes today. Hopefully, I will see her when I go in June to talk to the doctor and I’ll tell her how far I have gotten.

Maybe I will be lucky and will finish The whole show! I’m really bad at that but hopefully; this will be different. And that MRI that I was supposed to get, that was probably eight years ago. That’s crazy that my knee has THIS been hurt that long!

Late night pillaging again. I just finished. ‘Splain ya tomorrow.

So, get this: my Power chair does not recline again. I am grateful that it still moves forward and backward. I am seated in my chair with my back as straight as an arrow, which does not feel very good!!!

But, it’s the holiday weekend and parts wouldn’t come for weeks anyway?! I keep telling my Mom that all of this is, “a test.” I have to pass it. I just have to endure. At least it’s still moves?! I have a doctor appointment next week. It’s with my neural ophthalmologist so, it is pretty important especially given the state of my eyes right now.

My Mom picked up the van already for tomorrow. I am going to My neural ophthalmologist for my annual checkup for my eyes. I don’t think it’s going to be good news.

My power chair’s hydraulics do not work. It just forward and back. I’m going to my appointment in my power chair, still seated straight as an arrow! She is just going to look at my eyes and know that they are not good.

After that appointment, I will go and get my Covid shot. Then I will be done for the month of May! This is so, so, so much!!!

So, about my ophthalmology appointment. It was the most difficult appointment that I have had in 25 years! The appointment was only for two hours and I’ve had four hour appointments pertaining to my eyes before. This one just was difficult.

I have already written that the nurse who brought us back had bright orange hair. I wanted to call her ‘Tange’ that completely shows my age!!! I didn’t because she probably doesn’t even know who those actors are! I was completely thinking of Kate Winslet and Jim Carrey in Eternal Sunshine.

I think this scene was when he called her ‘Tange?’:

I got called back to a room with a bunch of monitors and that machine where you put your face in it. This woman started with my right eye, which is my ‘poop eye,’ and it was very difficult to see anything! It was a little bit frustrating, and the nurse with the orange hair held my head right up to so then she could take pictures of my eyes.

Then she moved over to my left eye after about 10 minutes maybe? I could see everything clearly, and I announced that this is, “My strong eye!”

We finished and changed waiting rooms. We waited to get seated in the handicapped accessible room because it’s like that for me. Barb was her nurse and she has been a nurse for 37 years. She knew Dr. Skarf. She told us that he trained Dr. Bansal. She tested my eyes a little bit as well. I could see ALL of the finger she was holding up on both sides of her head!

I was tired after this, and I dozed just as Dr.Bansal was coming in. I saw her walking in, and I smiled behind my mask. She shook my hand, and she has a terrible handshake as she turned and greeted my Mom. She did all of the tests and looked at papers. I don’t think that she really worked on the monitors this time. She told me that I can come back in two years. That was great for me to hear! She told me that my eyes were stable and she’ll see me in two years.

When we were finished with our appointment, she looked at my Mom and me and told us that we were refreshing. That was really nice to hear and she said that she sees people here and they’re usually sad or grumpy. She commented on the fact that my Mom and I were smiling and were pleasant with each other. That’s a win for us!!!

I was surprised at how tired I was after this appointment! I don’t really love the disease progression that is going on and it’s scary. I am scared.

Last night, my right heel was hurting me a lot!!! That is a little bit scary because I can NEVER R forget my pressure sores from April to November 2022. That was a year that I started reading the Bible.

My Mom still has pictures of them in her phone and every now and then she will show me one and it unnerves me to my core because I will NEVER forget the pain that I felt for so long!

My Mom wants to do something to keep my feet off the pedals, but I keep telling her that that’s not the thing now. I just have to endure! She takes pictures of my heels at night and in the morning.

Here are the pictures she took this morning when my heels did not hurt because I had been barefoot all night. Just with my socks on. I tell her they will be stressed and they hurt, but I don’t think the skin is going to break! I split my time sleepy in my bed and sitting in my chair. That is the extent of my life.

In these pictures, my heels did NOT hurt and right now they feel a little bit stressed:

Well, I changed chapstick to my summer chapstick, even though I have NOT smelled spring in the air. I feel it. Even though I am not leaving the June 17, It didn’t feel right last night. I rectified it and all is well! #SimplePleasures

I saw meme a couple days ago. It made me think about this movie so I watched it today. Labyrinth.

Hearing the first notes of the opening song took me back to Asbury Park in Detroit and I am my aunt Linda‘s basement with my cousinT Shannon. I watched this movie with such a nostalgia today and I told my Mom about wanting to be a bride who looked exactly like Sarah at the masquerade ball

Special effects are not that great and the owl in the beginning doesn’t look that cool but I remember it being the best and I thought that with fire monsters who pull off their heads.

I loved every second of this movie and I do not even care about the weird sexual tension between David Bowie and Jennifer Connolly. I thought that David Bowie was so hot! Still do and he’s dead.