Success!!!

Today was cider mill for us. It was a complete success!!! The weather was great for me and Sean even came with us so it was a COMPLETE family outing!!!

We got cider and donuts for a whole bunch of family members, and I really liked it!!! We stayed there longer than we did last year and I may or may not have had three donuts, but they’re so delicious and I have to eat them on the first day! I know it was rough, but I HAD TO do it!!!

I told Sean that this is an annual thing for us and we are going next year on Thursday, October 22. Sean wanted me to get out and go around with them, but I told him that the cold air would not be good for me and I’m fine just sitting in the van.

While we were there, Sean put Leia on his lap so she could see out of the window. Just as he was putting her down, she got me!!! It was a full tongue lick on the left side of my face, which I think is absolutely disgusting and Sean laughed!!!

I know where that tongue has been and it’s pretty gross, but it rarely happens so I guess I will just deal with it. I was FINALLY able to watch Hocus Pocus today and I still LOVE it!!! 😍😍😍😍😍

A Five Pack?! OR A Tinge of Sadness…

I was scrolling through Facebook today and I saw this ad which made me pause:

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Of course, I HAD TO click on the link!!! And check out what I found out?!:

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They come in a five pack now?! I used to buy mine in packs of two from Staples, not too far from my house. That store is no longer a Staples. So much has changed since I have stopped working!!! Reading all about these pens made me think a lot about teaching. I just get a tinge of sadness whenever I think about it now and what could have been… I had to stop 12 years in… #MSsucks!!! 😒😒😒…

Maid in Manhattan

Today is day 12, post procedure and I’m feeling a little bit optimistic. We actually watched the movie today. We chose, Maid in Manhattan:

Norah Jones has been showing up in my Apple Music after my chosen songs play. Norah Jones has always reminded me of this movie and my Mom and I saw footage of Jennifer Lopez, not recognizing the boy who played Ty in the movie recently.

Serious

It began raining just as I was going to exit the house to go to my doctor appointment. I cried as I got into the van:

I groaned when I made it down the ramp from my house. By the time I was going up the ramp into the van, tears were stinging my eyes. It was just a miserable time for me!!!

I got my flu shot and I am done for the month of October, which was another brutal month! I don’t need to leave the house until November 19 so I think now I can start putting things into perspective because I can see and think a little clearer.

I made my follow up appointment for March to see her again. There will be my well check-up for HAP. I already have the first quarter of next year booked with van rentals and doctor appointments and procedures. I guess my MS is getting serious now…

#MSsucks!!! IN THIS RAIN!!! 😒😒😒…

Coasting

I’m already beginning to feel the crash. But it’s not The Breeders or even Dave Matthews, it’s Tay-Tay. More specifically, it’s Style by Taylor Swift! I am still working and rockin’ my manual wheelchair in the middle school, and I’m using the doorway of each hallway to push off of and coast down that hall.

I can’t believe how MORE able-bodied I was back then or how I am NOT now. Ilistened to this song twice before we left and I cried both times:

I looked it up because I am not a true Swiftie but this came out in 2015. February 9, 2015. I knew it was cold! The memory I have of coasting down the hall to this song that was playing in the cafeteria. I’m pretty sure that there was snow outside back then.

Right from the Get-Go?!!!!

It’s Recovery Day #1. I am holed up here until November 19. I just realized yesterday after my appointment that I have not rested since my first appointment in January where it was discovered that I had a calculus and then had to make four additional appointments. One appointment that was for a procedure that was NOT fun and I have to repeat it in February!

So, this year has been brutal right from the get-go?!!!! At least the weather is better now for me! Until I get really cold, which won’t be that far away, I think…

6 Years Old

So, last night I thought of a blog post that I had written previously about my Mom singing while she cleans the house when I was young. I found that blog post yesterday. It was from January 2022.

We watched the video on her phone of this song that I was speaking of. Today, we watched it on TV. I was six years old again!

My Mom laid down, and I watched Confessions of a Shopaholic. I remember reading that book in college and I didn’t quite remember the details. I’m going to watch it again with my Mom tomorrow because it was absolutely adorable!!!

“Green Heals”

I was thinking about my past plethora of appointments during the summer, and I’m trying to p together why I did that?! But it had to be done because my disease is progressing. This disease progression is too much for me! But it’s happening regardless of how I feel about it.

I was thinking about it because for my second attempt in my colonoscopy, I had to stop my supplements on June 18 for my endoscopy and colonoscopy. That ended up failing, but I had to stop my supplements again for my cystoscopy so I was basically without supplements from June 18 until July 16. It was difficult, but I did it!

With this new colonoscopy that was scheduled for October 7, I stopped taking my supplements on September 28 because that was the beginning of a new week for my pillbox. I take a bunch of settlements, but I thought just being without it for eight days, it would be okay.

Well, it WASN’T!!! On Monday morning, when I was supposed to take my morning supplements. I looked at my Mom and told her that I felt so weird! I had to start a liquid diet four days before my procedure and the final two days, I only had chicken broth and green Jell-O.

I mentioned to my Mom that I’m a little nervous about that and she just said, “Green heals.” That made me laugh so much! In my family, my oldest brother Ray, used to ALWAYS tell my Mom to get green Kool-Aid when she went grocery shopping. He would only drink a green Kool-Aid or eat green Jell-O when he was sick because he said that it heals.

I don’t know that it does, but I did it, and I thought of him each time I ate that green Jell-O for my sustenance for the day. It ended up being successful and actually showing that I had polyp that they removed. I’m still not okay with that fact and I’ll talk about that in a bit I think but I enjoyed the memory of my brother being sick and eating green Jell-O because “Green heals”