I realized today because I’m having a really hard time at 25 years with MS and it got me thinking that I don’t think that I recover anymore. There are no recovery days. I just feel this terrible all the time!
Really?! Really…? For the rest of my life?!!!!
I saw this meme on Facebook today and the fact that I’m recovering from a 3-fer and this weather is absolutely horrible and all of the snow is just awful; it got me thinking about how much I have grieved in the past 25 years. I am still grieving and today it’s more than a little bit hard!!!
I pillaged today. As my Mom was taking Leia’s bed into Sean‘s room where they sleep. I let her know, “This is the sucky part. We are here now.”
I don’t even like saying that word but #MSsucks!!! 😒😒😒… And #ItSucksToSuck!!!
This past three days have been really rough and the cold is not helping at all! But I just figured out right now at this moment that my pain level is at a 7 all the time now.
I’m hoping that it’s just from the cold that it hurts as much but I don’t think that 25 years is helping either.
#ItSucksToSuck!!!
#MSsucks!!! 😒😒😒…
I got all 3 doctors appointments done. This was so difficult!!!! I have to ‘splain ya about my bone density test, once I am recovered. But it got done!
I got all three appointments done! I talked to the podiatrist for the first time and that’s interesting. I met virtually with the pain clinic so hopefully my leads and tens unit batteries will keep coming as per my lawsuit settlement, and I had my bone density scan. I don’t have to leave the house until February 18. I’m hearing Dave right now:
I feel the crash and I am so excited to sleep!!!!!!!!!
My hair is cut and my eyebrows are waxed.
Man, I am exhausted!!! I have one more day though. I am getting a bone density scan tomorrow at 3:30. I’m pretty sure that I have osteoporosis in my left hip as well now. I’ll find out tomorrow and I will speak to the Endocrinologist about it next month.
I heard these two songs while waiting to get my haircut nd I really dug them! It’s from past life and one that is kind of difficult for me to remember. I used to be able to carry a tune!?!…
This first one I was in college, undergrad. I think I was smoking around this time for a short bit:
This one goes way back to middle school Jenny:
I’m seeing three different doctors this month. I just saw my podiatrist, I virtually see the pain clinic doctor tomorrow and I get a bone density scan on Thursday. I’m already tired. But this is a 3 fer, so I am focused and dialed in.
It’s the eve of ‘go time.’ ‘Twilight sleeping’ tonight and this is all going to happen before I get paid the day after! ‘Splain ya later.
Sean came over today and we watched the Rams Bears game. It was a good time and I’m glad that they won! It sets up a Sean Bowl next weekend and I’m kind of excited. I’m sure that Sean McVay will be victorious; at least that’s what I hope!
So, I think I got a podiatrist appointment at the exact moment that I needed it! I didn’t even know that I needed it!
My Mom and I figured it out. I had been wearing tennis shoes from a running store since about 2020. I would wear athletic socks when I wore them. Those same socks do not work out when I’m wearing my current shoes my ‘tap shoes.’ I am wearing those ‘tap shoes’ now because my feet are sick.
That is the reason why my toes hurt so badly the other morning! I was wearing Sean‘s thin dress socks that he had from high school and because they were not thick enough, my toes started to attack me because my nerves were going insane!!!
So, this is what we have to do now. When my Mom puts me into my bed, I have to wear the dress socks because I have to wear my shoes to transfer. When I am going to sleep, I already have my compression socks off.
But then when I get into bed, she has to change my socks because I need that thicker sock to protect the nerves in my toes. We do the inverse in the morning! She has to take my thick socks off and put my thin socks on before she puts my shoes on. And lastly, once I am seated in my wheelchair in my living room, and have taken my morning vitamins, she puts my legs up to keep my heels up and notnot resting on anything. That’s still a thing from my pressure sores from ‘22. It will be that way for the rest of my life.
With these extra steps with my socks, Itold my Mom that I feel like I am in Mr. Rogers neighborhood!