So, I checked this coming week’s weather report. I wanted to see what it was going to be like on Tuesday:
Yikes!!! I have my Spring/Summer chapstick all ready to go, but I am still rocking my Pomegranate because it is STILL way too cold! Will be wearing my winter coat out on Tuesday.
The heat is on in my house right now and I am wearing a hat! I would like to wear my Cucumber Mint chapstick soon!!! It’s already May?!
I called today and made my optometry appointment for July and my mammogram appointment for November. I only have one more appointment to make. We should have made my six month appointment right after my last appointment with my internist but now I will have to wait until July to make it.
My Mom called Creative Mobility, and we secured those new dates and reviewed the May dates that are coming. I have my Visual Field Test on Tuesday. I don’t think I like that this is my life now, but it is…
I haven’t had a Visual Field Test at Henry Ford for a while because my insurance changed when I was working at CCA. I had a Visual Field Test at Fairlane when I was about six months pregnant, in college, and still on my Dad‘s insurance.
I learned that I had Optic Neuritis in my right eye, even though I thought MS was dormant when you’re pregnant? I am going for my Visual Field Test downtown this time. I had two separate Visual Field Tests in Lincoln Park. I think at Henry Ford, it is a little bit better and I will find out on Tuesday. I DO know that the results of this test will be bad. I have warned my Mom because I know what I see after 24 years in, it’s going to be bad.
Today was miserable! I told my Mom that I want it to be 90° all the time now! Because this 50° is terrible!!! I spent the entire day uncomfortable!!!
if it was 90° outside right now all the time, I would be comfortable because my air is finally fixed! But I know this is the horrible ‘change of season,’ but it seems to be dragging on because for myappointment next Tuesday I still have to wear a hat?!
The heat is on right now. This is really doing terrible things to my body and feels awful!!!
Today, even though I was completely comfortable sitting in my house in temperature controlled air. It was NOT the temperature outside! When the temperature changed from 79° to 80°, I gasped. That really hurts and feels terrible even though I am comfortable sitting in my house. My body knows that it is completely unbearable!!! I told my Mom that, even though the air is fixed, it’s really warm outside, and my windows are getting older.
She asked me what I was eating for lunch today and I told her I was going to have a shake. She kind of protested, and I told her matter of factly, “It’s hot outside and eating is no longer easy or enjoyable.” I have been saying that since the summer of 2019 because that’s when it got so difficult to eat that it was no longer easy or enjoyable and that’s why I eat what I eat now.
I told my Mom when I was 83° outside that from here on out, it’s two shakes! When I said that, I was actually of this specific scene in You’ve Got Mail:
I was thinking about writing a blog post tonight and I thought I should search YouTube for this scene or maybe I should watch the movie again and record it off of my TV. But then Big Brother heard me and this reel showed up in my phone!!!
But then I looked at my phone for the forecast for tomorrow, so, I’m thinking, maybe not…
This is going to be horrible for me and then I saw that Thursday is supposed to be 90° and raining?! What?! This is just awful!!!
It’s a good thing that I am not leaving my house until the seventh for a Visual Field Test for my eyes. I have had a number of these tests, but I haven’t in a while, but I know what I see and I know that this test is going to be bad. I already warned my Mom!
Weather changing from 83° to 63° in 24 hours will be brutal!!!
Today, I should have eaten gruel, but I was able to have two tamales for lunch. We got them from Nuevo Leon back when I went to the dermatologist on Good Friday. We bought two dozen and put the extra in the freezer. We both ate three of them right when we got them in the parking lot because they are so delicious and every time I eat a tamale, I think of my Abuela‘s house.
It’s been a long time that it hasn’t been there because it was taken over by the freeway company. I can still see her house! I can still smell her house! So today, when I was eating lunch, I was at my Abuela’s house. I really appreciated thinking of her with such fondness.
I think we got to bed at about 3 o’clock this morning. And then promptly at 6:30, I was awakened with burning in my hips. Both of them. I tried to pray it away, but that was NOT happening!
I got my Mom to come into my room and change the wedge to my left side. But both of my hips were burning so much! So much so, that I asked my Mom to get me out of bed at about 10 a.m.
So, needless to say, I didn’t get that much sleep last night. But if I’m really thinking about it, and being honest with myself, the last time I had a good night sleep was in high school before I got my MS diagnosis.
That is such a sad commentary! I’m STILL NOT having a good time…
Since getting my air conditioning fixed, and my ducts cleaned, I thought summers would be so much easier because I no longer had a window box unit.
Well, not so much! I have to restart my Claritin because I think that’s a seasonal thing not so much the ducts thing.
I have to tell you that since my ducts have been cleaned, it gets so cold in my house so fast and it gets so hot in my house just as quickly! Both Sean and my Mom have noticed an air quality difference!
This is my first summer in nine years that I won’t have a window box air conditioner. And that feels strange, for sure. The weather being so strange given that it was 82° one day and today it was in the 50s is doing a number on my body! I am so drained.
I wasn’t feeling well today and I thought it was because I was too excited yesterday.
I couldn’t even assist in my transfer. My Mom called Sean to help us and that’s when it dawned on me! I knew that it was supposed to a 75% chance of rain but I don’t know why I did not think about that?!
After Sean assisted me, we asked him about his day and he talked about the rain. Then, it all dawned on me. That’s why I feel terrible!
I was so excited yesterday for my ducts to be cleaned, but this rain today?!!!!
I think that I know the exact date. It is October 28, 2023. That was the day that I awoke with both hips burning. The following night was the first night that I used my wedges. I told the pain clinic’s nurse practitioner that I didn’t need them in July of 2022. She gave me a knowing smile and simply said, “You will.”
I am crashing tonight because I am FINALLY done with my April appointments!!!
My air is fixed and my ducts are cleaned. I looked at my Mom today and matter-of-facts told her that, “I’m not having a good time!!!
Because I really am not!!! And now it will be warm so my body will swell. I felt it today even though I was completely comfortable in my house. I think it stinks that I always forget the discomfort until It feel it.
Right now, it’s supposed to rain for the next two days. Fun. 😒😒😒…
So, I woke up at 8:30 and got out of my bed at about 9 am. I had a scheduled appointment at10. A man named Jimmy came over to clean my ducts from PDC (Professional Duct Cleaning). I was beyond excited because I have been feeling quite congested for probably the past 3 years.
He got here at 9:56 and at 11:11, I could breathe easier! I texted Sean:
I didn’t cry but hearing him work and hearing the loudness of the air made me think that I might.
And here come the pics:
I am NOT embarrassed by posting these pictures because this is how it looks now:
I just looked at the reminder text:
And I just want it known that I DEFINITELY AM breathing with confidence!!!