The Briefest Moment

I was awakened three different times last night in excruciating pain. About 1 o’clock, 3 o’clock, and 5 o’clock. I was reminded of something I have not thought about for many, many years! I fell asleep for a little while after the last time I  awakened in pain  before I got up for the day.

The fact that was gnawing at me all morning was more of a feeling that I had so many years ago. I had not forgotten about it but I had not thought about it until I was awakened multiple times throughout the night in pain.

When you are going through a devastating break-up and you cry yourself to sleep (at least I did a long time ago).  When you awaken in the morning, there is the briefest moment where you open your eyes and feel rested from a good night’s sleep.  This is when you wipe the sleep from your eyes and almost smile at the new day that has dawned. It is just before you remember that your life is  seemingly in shambles.

I thought about that moment today and multiple times through the night. I do NOT have that moment.  When you have a break-up, sleep is a momentary reprieve from the heartache you were feeling during the day . Today, it was evident that I do NOT get reprieve.   The pain in my knee persists throughout the night. I am not sure if it is an MS thing or a knee pain thing but I can’t remember sleeping through the night.

All I know is that the brief moment of contentment you feel after you awaken when your heart is broken, I do NOT feel now! It is the pain in my knee that wakes me up. It is the pain in my knee that woke me up three times last night! Almost 2 years later, this is STILL going on!   I just would really like it to stop! Waking up so much last night is further proof that my knee is roont!

Roont

In 18 days, it will be 22 months since my knee injury. It still hurts me every single day! I wake up in pain and I go to sleep in pain. It is a constant ache even today that I’m am still trying to get used to.  Sadly, I have gotten used to the fact that it’s always going to hurt.

Recently,  I have noticed that my knee cracks like an old person.  Because I am NOT working out at Barwis Methods, I have lost strength in my legs to keep my feet off of the floor; as I move around my house, consequently, my feet drag on the floor now. Whenever I change directions, my foot kind of gets caught up in the direction change, my knee will crack. It feels like that crack is coming from the back of my knee. It sounds like knuckles cracking. I crack my knuckles but instead of feeling that relief when the knuckle cracks, this kind of hurts a little bit.  This cracking happens kind of often during the day.

So, I’ve been dealing with this constant ache coupled with this new cracking for about a month. It always throws me for a loop when there’s a different kind of pain or pain I haven’t experienced in a while. The case in point I am speaking of happened the day before yesterday when my Mom was changing my compression socks.

I started wearing compression socks about three or four years ago. I had one pair that I would wear for a couple of days, take them off, wash them,  let them dry, and put them back on a couple of days after I took them off. I could go a few days without wearing compression socks before my ankles began to swell. I didn’t wear compression socks in the summer because it was very uncomfortable with the heat.

Now, I say I would take them off and put them on and by saying,”I” I mean, “My Mom.”  Fast forward three or four years to my health today: I have to wear compression socks 24 hours a day. If I do not have them on, my feet turn purple and hurt.  I have two sets of compression socks now. One to wash and one to wear.   Taking compression socks off or putting them on is no easy feat! My Mom is quite adept at doing it, however.  To get my socks off, my legs and feet washed off, and my new socks on takes about an hour.

We have figured out that the best way to do this is in my bathroom. I  sit on the toilet seat so the tank can hold me up because I have lost all of my core strength that I had regained at Barwis Methods. My mom sits on the edge of the tub so she is seated a little bit lower than me and can pull my leg onto her lap. It is also easier to wash my legs off using the tub  and a wash cloth. Furthermore, when this, “Changing of the Guard” takes place, I have to take my pants off because my compression socks are thigh highs.   So, it is only fitting that I am pants-less in my bathroom and not just hanging out in my house.

So, my mom did this a couple of days ago and she had just finished putting my right leg sock and shoe on (my feet can’t touch the ground just in socks because that feels terrible and I freak out.  I need the traction of my shoe). As she put my leg down off of her lap, my knee popped out which it hasn’t done for a very long time. it startled me so much because I hadn’t experienced it in a couple of months and I gasped.   Usually my Mom can just pop my knee back in quickly. But for some reason, it would not pop in. As she kept trying to get my knee to pop in I begin to cry. It was an “ugly cry” I am sure.   I sobbed!   It hurt so badly!

My knee is ruined! 22 months after my injury, it’s still painfully popping out.  My knee is COMPLETELY ruined! My Dad used to say, “Roont”.  When my knee finally popped back into place, it especially hurt after that!  I thought about the countless doctors appointments I’ve been to,  physical therapy, the surgery, more physical therapy, the procedure to scrape my tendon, more doctors’appointments!   Once back in my wheelchair, I just thought about the fact that my knee is roont!

*** A sidenote,  a silver lining even, amid all of this ruin,  as my mom was changing my socks, I was barefoot and just for a moment the side of my heel of my left foot touched the floor ever so slightly and it felt cool. I don’t know if it was cold and I didn’t want to test the fates but perhaps all of the thoughts, prayers, and  virtual hugs I have received regarding not being able to feel the cold of my bathroom tiles on my feet are being answered! Thanks God!!!***

Vintage CCA Memories

This morning, my Mom helped me to make my garlic tea and ginger water because this heat ain’t no joke!  So as I sat at the table peeling garlic cloves and she scurried around boiling the water and juicing the lemons, my phone rang which was charging on my end table in the living room. I called out, “That’s probably for me!“ and I began to laugh.  I explained to my Mom that I used to tell my kids that whenever the phone in my classroom rang.

A flood of memories from the beginning years of my time at CCA rushed in and I recounted them for my Mom.   I told her that if I had forgotten to turn off my cell phone ringer that when it would ring, I would say in a loud whisper, “ i’m at work!” as I silenced the phone.  I sang her my, “Nameless” song that I would sing to my kids when they were passing back papers and a student handed me papers that did not have a name.

”I have (number of nameless papers) nameless!  I have (number of nameless papers) nameless!”   I laughed even harder and told her that when students who had not received the papers back would scrunch their brows at the papers that did not have a name trying to decide if it was theirs or not I would let them know that, “If You did it, you would know!” and “ if it’s that difficult for you to read, think of how it is for me?!”

I told my Mom about the first time I was called, “Mom”  by a student.  It was by a girl.   I was 24  and I laughed but when I looked up and saw that she was embarrassed. I told her that I had always wanted a daughter but I did not plan on having her when I was 12!   She didn’t look so embarrassed and we both laughed!

My Mom interrupted me  recounting these memories by telling me, “Look  at your face!”  I had on a broad smile!  It was really nice to be filled with pleasant memories after what happened to me and my knee yesterday.  I’ll probably write about that in a little while. It really was nice to have these vintage CCA memories right now!

July 2018 Faves

Well, with this EXTREME heat, I pretty much only leave my house to go to church. Mr. Wright told me a while ago that you know that you’re old when you listen to music from your generation. Well, I guess I’m old! That and since I don’t really listen to the radio and haven’t been exposed to new music, I just watch clips of Carpool Karaoke because I was awakened to this one and got addicted to it and I had to watch a million others!

These clips reminded me of my kids when I used to teach and had a finger on the pulse because I was around middle schoolers all day and Mr. Curl played the music during his physical education classes which was right outside my door:

The BEST Cover EVER

Last night, my Mom stopped by and talked about a song she heard on the radio and she could NOT like it because it was different from the original. I was EMPHATIC in telling her that the performer makes a HUGE  difference in the version of this song! The first example I gave her was, Last Christmas.  Taylor Swift does NOT do justice to Wham!’s song!!!

My ULTIMATE, FAVORITE CHRISTMAS SONG EVER!!!

I heard this song one Christmas when I was at Parker’s and could not get into it AT ALL!  Sorry Tay!

Then, I reminded her of the U2 song that Il Volo ruined! She likes their version better but Both my niece, Ysabelle and I agree that they COMPLETELY ruined the song!

This song came out when I was at Western and before I had Sean:

Justice NOT served!:

But then I told her that there is one song that is the BEST cover EVER! I Think Johnny Cash did such a better job even though he did not write the song!

The Original: ( I heard the Johnny Cash version first)  I also warned my mother about the swearwords!

 

Love

My last post from a few days ago was somewhat of a, “Debbie Downer” and for that I apologize!  I try my best to NOT buy in to the devastation MS has had on my body and my life thus far.  However, since my lapse in positivity and with  that recent post, the LOVE I have felt from everyone is BEYOND heartwarming!   Comments and suggestions I have on both Twitter and Facebook are very much appreciated!!!  I definitely feel the love and with every comment I read  and with every view on my blog I  I am reminded of this song:

I never knew the words to the song until watching the lyric video. Sorry about the cussing. It’s kind of deep. No wonder I’m poor! When it says, “Your health is your wealth”  well… yeah, no.  Not so much! But Sean tells me that we have enough so that makes me feel OK.

I’ve almost forgot about The Script and recently have been listening to them again.   As I listen to their songs on loop, I am reminded of the last concert I went to with my cousinT Shannon. As things are playing out now, I really feel that will be the last concert I go to EVER.

Those memories are helping to cheer me during this HORRIBLE heat where I have been confined to my living room, not really moving from my spot in front of the TV.

Devastating

 It took me a couple of days to process this but, you know, having had MS for 17 years and having torn my meniscus almost 2 years ago, I have dealt with some pretty devastating things. I don’t want to enumerate them because I do not like to dwell on them.  However, Sunday morning, I experienced a pretty devastating thing!

 It was so devastating that I have to write about it to get it off of my chest. The last time I worked out at Barwis Methods was September 20, 2016.  I began working out there on July 12, 2013. My experiences there were some of the most important of my life! I’ve spent the last 17 years losing control of my body  as my MS progressed and working there, I was slowly getting some of it back with the intention of walking again.  EVERYONE there gave me that hope that it would happen one day! The Barwis Methods tab on this blog chronicles all my experiences there and all the WONDERFUL people I love and are more important to me than they know!

Dr. Frush told me when I injured my knee to NOT return to Barwis Methods until my knee stopped hurting.  I STILL go to sleep in pain and wake up in pain and I am in pain all day long!  Sadly, I have not returned to Barwis.

A couple of months after I began working out at Barwis Methods, I noticed that my bathroom floor was cold! I could feel it on the bottom of my bare feet! I was so excited that day that I told Sean about it and he told me that it ALWAYS has been cold. I told him that the floor in our bathrooms of our apartments were not cold and he told me that they also were.

Well, after close to two years of NOT working at Barwis Methods, my bathroom floor did NOT feel cold on Sunday morning  as my bare feet touched the tiles. When I realized this fact, I cried! They were sad, pitiful tears! It made me miss Barwis even more!   Once I get okayed to return to Barwis, it may take another four years but I plan on getting some of my muscle control back! I’m just not sure when that will happen and in the meantime, I am sad, devastated even because the realization I came to on Sunday of the loss of feeling in my feet is devastating to me.

Binging

So, know I am 7 years late on this one but at a friend’s  recommendation, it took me 11 days to binge all five seasons of Friday Night Lights.   

It reinforced two things for me: 1. I LOVE Football 2. I LOVE happy endings.

I really dug this song and I’ll probably put it on my Apple Music.

I saw this clip on YouTube and really liked it:

I’m not going to be a spoiler because this show is so old,  but on my first day of watching it, I really dug them as a couple and had to hold my breath for two seasons until it ended thusly:

Yay!!!

I was late watching Game of Thrones and binged that in 10 days, Breaking Bad took me a little longer but I only did that a few years ago.    I binged all 12 seasons of Grey’s Anatomy the summer before the 13th season started. I think I prefer binging shows that are already finished because I can get through them quickly and know how they end   right away instead of having to wait a week to find out in little bits. Any suggestions?

Clubhouse

So Sean watched a little bit of my binge of Friday Night Lights with me last night.  I have been seeing this commercial A LOT during my Netflix binge.  It makes me cry. OF COURSE!  I have even shared this commercial with my Mom.  I saw it last night with Sean twice and both times it made me cry. At the end of the second time we saw it, I told him that I am going to have a clubhouse in HIS backyard  i’m old.   He smirked but I think he knows it’s true! 😜

Loop

Last night was the MOST my knee has hurt as I was trying to fall sleep since September 21, 2016. It hasn’t STOPPED hurting (in varying degrees) since September 21, 2016. I got a couple of days of reprieve after my tendon scrape but then it started up again.

Today, I stayed inside my house binge watching Friday Night Lights. During the commercials, I heard my three Orthopedists voices telling me three pivotal things on loop.

  • Dr. Anderson, telling me 18 years ago that my meniscus was intact  after ACL reconstruction and that was good because that would be really painful if it was.
  •  Dr. Frush telling me NOT to go back to Barwis until my knee stopped hurting after my meniscus repair. (my last day working out there was September 20, 2016)
  •  Dr. Moore explaining my continued pain (it’s in my kneecap now) as, “Whenever there is a trauma to the knee…”

He prescribed more physical therapy so they could tape my knee.  I can’t even expound on this any further right now because my knee is REALLY hurting again tonight and I would like to get some sleep…