Author: Jen Rios

I Don’t Know When

When I awakened this afternoon, I started to check my emails before I got out of bed. Henry Ford MyChart sent me an email. It’s talking about my appointment on Wednesday. Which brings me to that stupid song! Something that I thought was about something different when I was a kid. But this is my life now. This is it! Let me ‘Splain ya:

Last Thursday, when I was getting ready for my virtual appointment with endocrinology, I logged in a little bit early and I immediately got a questionnaire about my appointment that’s going to be on Wednesday. So, I filled it out. Once I submitted it, there was another questionnaire about the appointment I’m having next month.

I don’t know when but this became my life. But it did. I just go to the doctor. I have to space them out because it’s so tiring but that is my existence now.

Here’s the song that I thought was about something different and it’s just dumb, but this is my life and ‘this is it’:

This is It!

I pillaged today. I didn’t get my supplements today that I ordered last Wednesday when I got paid. It’s not a huge deal because I’ve been on all of these supplements for years at this point. It just would’ve been nice if it would have arrived.

A song popped into my head a few days ago, and I’m reminded of driving with my mom in the backseat of her station wagon we’re going to the dentist in my Dad’s car. I saw the video today and it’s dumb!!! This song popped into my head and I’m letting it ruminate for a moment before I write a post about it, but here it is:


Great Teeth OR Powerful!!!

Today was the first Friday of Lent, so of course I watched, Jesus Christ superstar and right away, I was reminded of Judas’s great teeth! I love good teeth and his are absolutely great!

I did not think that I would cry because I have seen this movie so many times, but when Jesus pleaded with God, I started to cry because that is so powerful!!!:

Virtual Endocrinology Appointment

it has for my virtual endocrinology appointment today, I have to have another bone scan. A little bit different than the bone density one but based on that scan, they will see if I need any treatment.

I already can tell you that I will not take treatment from them. I have been treating my Multiple Sclerosis naturally. 25 years in, I am straddled on the line between eastern and western medicine. Eastern medicine is on my left and western is on my right. I am left-handed. At this point, I’m kind of leaning on my left hip because my right hip has osteoporosis.

Mu naturopath constantly tells me to check in with my medical doctors which I regularly do. This year, I’m not going to be able to see him until July because I have appointments with different specialties each month until then.

Today, the endocrinologist told me that I need a different test because it’s a little bit iinconclusive. She told me not to rush it, but the orders are in for it.

so this is how it worked for my virtual endocrinology appointment. Now, she told me that today on February 19. I will have that scan in October. I told Sean about it and he needs to come because it needs to be performed at New Center One and they do not have a hoyer lift team there.

This year, I only had three months available without a doctor appointment. It was June, July, and October because I don’t have appointments in October because we go to the Cider Mill. This year, I am going to have an appointment in October.

Better.

Well, my face feels better. My Mom really rubbed the Egyptian Magic on my face last night and it feels better. It was already looking better last night:

The CeraVe arrived today, but I don’t think I’m going to switch horses now. I also am going to order the Jergen’s Sweet Citrus lotion as suggested by my aunt Liss because she is my Dad’s sister and I feel that my skin is going to be a thing for me now.

It really reminded me of my middle school science project by posting these pictures of my face and I’m glad that it took a village and all of your suggestions helped out!!!

I never thought my skin on my face would be so sensitive as it is now but I think this is going to work!!! Thank you, Mrs. Hutcherson and Natalie!!!

Disease Progression

My hair is cut and my eyebrows are waxed. I have to wake up tomorrow as well because I have a virtual appointment with an endocrinologist to discuss my bone density scan from last month.

I have to leave the house next week as well to see the urologist for a procedure which I think is not going to be comfortable at all! I’m a little bit nervous about that. Based on their findings, I’ll know when I need to see that doctor again. This disease regression is so much!!! I can’t even say too much because it’s happening!!!

“I Do Not Understand!” OR Heavier

So, my face hurts. High School Musical has been playing in my head and reminding me of my teaching days when I showed this video before we started reading The Outsiders.
We were talking about cliques in schools. That was a precursor lesson to discussions about the Greasers and the Socs.

What has been playing in my head is Sharpay saying that she doesn’t understand at the end of the song:

I thought that the Egyptian Magic cream/oil would make my face feel better, but it didn’t. It felt heavier than the coconut oil which felt like toner, but the Egyptian Magic felt like cream, but I think my skin is too sensitive for that now. I ordered CeraVe and it is coming tomorrow so I am wearing the Egyptian miracle tonight as well. Heavier is better. I really don’t understand what’s going on with my face!

My cheeks and my nose are not as red as they were with the coconut oil. I’m actually looking forward to the CeraVe and hopefully I’ll get a little more relief. #ItSucksToSuck!!! #MSsucks!!! 😒😒😒,..