I was kind of sad to hear that Sinead O’Connor died and I pulled up her, “I Don’t Want What I Haven’t Got.” album. Once the album started playing, I was taken back to being eight years old when my brother, Steve, who slept in the room beneath me, would listen to that album and I heard it through the floor.
I pulled it up on Wednesday evening, and was completely surprised that I STILL knew all of the words! I started to cry!
I remember that a few years after he left for college and he had started a career. I was in high school and drove to Dearborn Music and bought the used cd! I’ve listened to this album a few times and I think that this has always been my favorite song of the album:
Yesterday I did not wear my contacts because I was recovering from leaving the house That’s pretty stressful for me! The world is NOT handicapped accessible at all and my vision is fading so that as another layer of uncertainty, which kind of stinks!!!
Yesterday, my Mom and I were discussing the appointment we made for my readers and we both decided that making it a triple play is not a good idea at all anymore. With my disease progression. She made the appointment for me yesterday for readers for 23 August.
Very recently, I have changed my contact number for all of my doctor clinics and medical supply distributor to my Mom’s phone number. I think year 22 of having MS is ABSOLUTELY TERRIBLE and I am hearing that doctor from when I was diagnosed tell me that “Look, you have MS, you’re going to go blind and then I am going to die.”
My Mom and I told Dr. Harris about that terrible doctor who told me that I had MS and how she did. He couldn’t believe it either, and he told us that we should’ve punched her!
Retrospectively, we probably should have, but we are both too shocked because I was only 18 then and I didn’t know what to expect but it DEFINITELY was not what it is now!!!
When I awoke today, I saw this when I checked my phone and I smiled and texted it to my son as my ‘pic of the day,’:
I am not sure how these pictures show up in my phone, but I like it a whole lot!!! When my Mom came into my room to get me out of bed, I showed her the picture, and she smiled as well. She commented on how Sean has always had a thing for pumpkins! Because he really has!
I told my Mom how, one year, probably when he was 13 maybe 12, we did NOT go to a Cidermill, and he was concerned that we did not get a pumpkin for him to carve for Halloween! We stopped by a nursery on telegraph Road by our house and he picked one out.
I just remember him smiling as he walked toward the car because I was still driving then. He really does have a thing for pumpkins that he always has! I saw this on Facebook and it made me want to post the picture I sent Sean this morning:
I really can’t wait for this summer to be over with because this weather is killing me!!! Since my year has been planned since April, for all my haircuts and doctor appointments, I made sure to secure a day for us to go to a Cidermill because, duh!!! I hope it doesn’t rain!
I saw this on Twitter today and I want to explain my answer:
There is no debate. The correct answer is center piece! Brownie making was my thing and I did it all the time for work and to have a container of brownies in my house pretty much all the time!
I want to further explain, that if the only brownie left is an edge piece, I will eat the edge off first, so I trick myself that it’s a center piece.
I found out at my optometrist appointment that my neural ophthalmologist is retiring. I first started seeing him 21 years ago when I was pregnant and that was when my right eye was diagnosed with optic neuritis. I saw him again almost a decade later, because my left eye joined the optic neuritis party!
I will say that I am at a little bit of a loss here! First, my neurologist retired, and now my neural ophthalmologist is retiring. I am going to a specialist on August 18 and I was looking at the appointment in MyChart. I am labeled as a ‘new patient’?!
Unfortunately, NO part of MS at this point constitutes me being a ‘new patient’ because I have been dealing with it for way too long and it’s starting to get serious! I bet this new doctor is young and I will have to school him about MY MS!!!
I saw my optometrist today. My eyes were a little bit better in terms of my vision. My right one I was 20/70 which last year was 20/80. Dr. Harris took his time with us because my Mom comes with me to all of my doctors appointments now. Dr. Harris said that my vision will fluctuate but he’s going to keep me in a negative 7 contact.
I have contacts for a couple months still. But I had to make another appointment! The reason I had to was because my eyes were already dilated before he came to see me. He asked me how old I was and then I told him that I am 41, he said that I am just a little bit younger than him and I am going to go back in August to be fitted for readers?!
I have to go to the eye doctor for that because I need a prism in my right eye in addition to readers. Let’s just see how much all of this will cost?! We made the appointment with Sydney, his assistant, just after my appointment.
Next month, instead of the two-fer, I am going to have a triple play. That makes me a little bit nervous, but I can do it… I think!
I am gearing up for tomorrow, because tomorrow is the second half of ‘go time.’ I had to separate it like this because I had to wait until it was one full year since I had gone to the doctor. It’s my optometrist. I always get just a little bit nervous before I leave my house…
My Mom and I watched High School Musical 2 today. And I was remembering living in our second apartment because that is when that movie came out.
That is the memory I am choosing to live in today. I called Sean and reminded him when he was six and he liked that movie. We both liked it!
I have changed over my soundtracks. I was listening to Sara Bareilles but now because on August 1 it will be 17 years that I moved out of my Parents’ house so Gavin is fitting for that!!!
This was my Sara song for July:
I haven’t chosen my Gavin songs that I will listen to thinking about moving into our first apartment in 2005. But this memory showed up on Facebook and it warmed my heart! That was so much fun!!! Now, I will move from Sara to Gavin:
That was my very last concert that I went to! That I will ever be able to go to! I love that I went to it with my cousinT!!!
I will never in my life forget the Summer of 2023. This was me in high school:
My hair was longer when I was younger, but maybe that’s just because I was shorter. I cut my hair my senior year and then let it grow out to my shoulders until my 26th birthday. I got a reverse Bob and I kept that haircut for 15 years, four months, and seven days:
That’s one of my favorite pictures of me and Sean and that’s my hair. But, 22 years into this horrible disease, my hair has changed. I told the woman who cuts my hair two months ago that my hair is straw so she shortened it two months ago and last month.
It was not feeling comfortable when I slept because I sleep on my back now. On the 19th, this happened:
I was nervous to get short hair! I had never had it before, and I couldn’t see myself going shorter than a reverse bob, but I like this. I texted my brothers right when I got home:
Because both of them said that, I decided to message my aunt:
And she responded:
And then, after we had that conversation, this picture showed up in my phone, because Big Brother seems to be working overtime!:
I messaged this to my aunt:
I was really dreading getting a shorter haircut. But I knew that I needed to do something because my hair did not feel good at all! The woman who has been cutting my hair for 20 years was hesitant to cut it, but she did. I texted her this Thursday:
So, I’m never going to forget this summer of 2023, but it’s NOT scary at all (just regarding my hair because everything else is awful!) It looks like I will be rocking this haircut for the next 15 years, four months, and seven days at least.
Today is recovery day #1. I did not put my contacts in today at all, so I watched, Laws of Attraction because I can practically say that movie verbatim and I love the Irish scenery!
Just after the movie ended, I know that I have written a blog post regarding this specific song, but I couldn’t so I searched in YouTube. I found this montage, and I really, really liked it because I really dig this song!:
