Author: Jen Rios

My Mom Just left to take Leia to the vet. She is getting her first round of allergy shots and then maybe we can get some answers! She has been on steroids for a long time! The vet prolonged her steroids as she was stepping down from them so she has been on one pill of steroids every day for a couple weeks now. I hope this works !!! 🤞🏽🤞🏽

I had a virtual appointment with my nutritionist today. She says that since my weight is stable that we won’t set up another appointment until I start losing weight again without trying.

Just after my appointment, the wheelchair tech came over to bring Buy a new seat cushion. He had two cushions for me to try out. The first one is for the new chair that I am going to go get fitted for in May. I liked the feeling of the first cushion. It is a combination of gel and foam. It was even better than my current cushion and I’m excited for my new chair!

Just before he left, we reiterated what we are going to do for my new chair. I need to send a wheelchair prescription and that comes from my PCP and then Diane will schedule me and fit me for my new power chair. My chair will be five in July. That’s crazy that I have been in this chair for that long!!!

I am tired today because I woke up early for my virtual nutrition appointment. When I opened up my blog to write this post, I looked at the Saints stats and I have made it to 34,003 views!?!

34k it’s NOT a big deal but it is for me! Tomorrow, #MyGirlL it’s going to the vet for her new allergy shots. I hope that goes well for her and for us!!!

Seeing that I am five days away from being 41 and that I am completely feeling like I am an adult now, I will retire my ‘birthday month’ just because I will be 41 but it’s still MY month! Let me explain:

I was thinking about this because now, MS awareness month is different for me. I no longer participate in the walks but I will share a meme on my social media outlets.

This picture showed up last week and squeezed my heart:

Having MS is very different for me now and I am still trying to get used to it. My life now is pretty much homebound and I use a power chair.

So, I may have retired my ‘birthday month’ but I STILL have MS and St. Patrick’s Day is this month and I have always wanted to be a redhead!!!

I remember that my oldest brother came over to do some plumbing work for me back when I was 32. He asked me if I had seen the movie This is 40 and I told him that I had not. He told me that it was really funny and I should watch it! I think I started watching it but I didn’t get all the way through it because I had to do some thing else but…

I am one week away from being 41 and I must say that this past year, this can’t be 40?! It feels like my disease is in hyper-speed mode and I’m having difficulty dealing with it but I think I have not had a chance to just sit here to recognize it as I experienced it like I have been these past six years since I have stopped working.

I see my nutritionist on Wednesday coming up and I think we have figured out exactly what I need to eat. Once I started seeing her and changed my shakes over to nutrition shakes opposed to protein shakes, I gained 4 pounds. But for the past five months, I have weighed the same so I have finally stopped losing weight!

At least at this point! I hope. That was the craziest sentence to write because I used to always WANT TO lose weight but now I am losing weight without trying that kind of stinks too.

My neighbor around the block has locked out for me the entire time I have lived here. For 13 years! His snow blows for me when it snows And with the last snow, his wife snow blowed for us because he has been having some health problems.

My Mom saw her in passing somewhere and she offered to bake her some thing. I had bought boxes of brownies when they were on sale at Target a while ago and she said that brownies are her favorite so my Mom offered brownies to her.

I used to make brownies all of the time!!! I remember taking them to work all the time when we were living in that our second apartment! I think I made a triple batch for my work when I was living at my house but that had to be 2013 or something.

So, I had a few boxes of brownies hoping that my Mom would make them with my direction, because I directed Sean one time before when we were living here as well when my disease progressed to where I couldn’t do it myself.

Well, guess who directed brownie making today?! I have been telling my Mom that it is so easy and she was resistant but she did it today so she can take some over to Barb. She put the first batch in and I directed her to make another one so that we could have brownies for us after she gives one batch to Mark and Barb.

As the first batch was baking, I began to smell a familiar smell from my apartment when I used to make brownies. I am not even ashamed to say that I cried a little because I did.