Month: May 2026

I had just awakened and groaned as I set up in my bed. After a little while, my Mom walked over to my doorway, and simply said, “Your socks arrived.”

I had gotten a phone call from Befitting You stating that my socks had not shipped yet but they’re going to be coming soon. I thought that I would get them on Tuesday because I got the call Friday evening.

I let what my Mom said to me sink in. My eyes burned and one big fat tear streamed out of both eyes and down my face. I said to myself, “Praise the Lord! My legs are killing me.”

I was excited because I have been without my compression socks for 29 days and I don’t understand how I went without them for six months when I had my pressure sores but that was four years ago. My disease has definitely progressed in the past four years.

What I was NOT prepared for was when my Mom put my socks on today, she always starts with my left leg because my right knee has been broken twice.

I don’t even remember what thing we were talking about, but it was just a ‘nothing’ conversation as she was putting on my socks, but as she got halfway through putting my sock on, I cried a quick succession of big fat tears! I waited until she was done to to wipe my face.

She asked me how my leg felt and she moved over to put my right sock on and I just said, “Calm.” Then she started to put my right sock on, and the tears started again! I waited until she was finished to wipe my face for the second time.

I would still working when I started wearing compression socks. I think it was 2015? I can’t believe that in 21 years my legs have gotten so terrible without them! I really wonder what my ultrasound will say about my lower limbs. I go on May 22.

Itit is a bit weird to be able to see my toes because I haven’t seen them for over a decade. I put this in socks. I usually wear with my shoes on when I pillage it because I couldn’t handle my toes being exposed.

Well, I guess when it rains, it pours.

Last night when I was getting ready to go to go to bed, my Mom brought my chair over to me so I could transfer to it to go to sleep. But here’s the thing, she calls it ‘jutty’ but I call it ‘shaky.’ my wheelchair shakes when I move in it. It’s a dull vibration and it kind of scares me!

My Mom spoke to Ray at NSM today and she is going to take my chair into them on 20 May. I have a van rental that day and my Mom and I are hoping that it is just a quick fix. Ray says that he won’t know anything. until he sees it.

My chair just shakes a little bit and it scares me because what if it stops working?! I have three appointments to leave the house this month. I hope it stops being shaky on the 20th and then I can get my haircut?

We are hoping that it is a quick fix because it just had the batteries replaced not too long ago. Currently, my chair is staying fully powered and it’s moving back-and-forth and the hydraulics work and it. That’s why I hope it’s nothing that can’t be fixed really quickly!

I saw this article today and I was surprised that my bed was listed NOT as the first item!!! That bed is the BEST PRESENT that my PARENT’S have ever gotten me!!!

https://www.mymsteam.com/resources/finding-the-best-mattress-for-multiple-sclerosis

I remember that this all had to happened in 2022 because that was the fateful year that I got my pressure sores from April to November. I will never forget that as long as I live. !!! That was so brutal!!!

I was trying to look through my archives, but I couldn’t find it. The post that I wrote about my Mom telling me that the bed she was going to buy for me was ‘a present from my Parents!’

I thought that I had already written about this, but I’ll just talk about it again. My Mom and I were talking about what kind of bed I needed because the bed I had was no longer working for me. My lawsuit had yet to be settled and I thought I would be able to get one for myself. My Mom recognized the urgency of my need for this bed. And she knew it was the kicker to say it how she did! I had no choice, but to accept it!!!

I don’t think my Mom told me this until 12 years after my Dad died and we were better about talking about him:

The day I was diagnosed, or told about my diagnosis, was December 28, 2000. My Mom and I drove to the hospital together. And then I got to a diagnosed by that horrible doctor. My neurologist gave me five or six hardcover books that told me about MS. All I did with them was throw them in the backseat when we were at the hospital. We had driven my car to the hospital, I think. I thought nothing of those books and I didn’t even read them, I just went to see my boyfriend.

I think it might’ve been four or five days later that my mom told me to not leave those books in the car. I put them on the dining room table. I absentmindedly flipped open one book and read the first line. I don’t even remember what it was but I remember thinking that that wasn’t going to happen to me so I didn’t see the need for me to read them. I still had a few steroids to take so I was going to be better when my pills were gone anyway.

Well, in these past 25 years I must emphatically tell you that whatever I read ABSOLUTELY happened to me and when I was 18, I did not think it would get as bad as it is now.

What my Mom told me about 12 years after my Dad‘s death was that he read ALL OF THEM!

I ask her to tell me the story all the time because I absolutely love it! It shows the fact that my dad was completely a man of few words! This is a conversation between my Mom and my Dad. My M is Mom and my Dad is D:

D: Mary, this is bad!

D: Want me to tell you about it?

M: No.

M: Ray, I’m going to live it.

M: It’s going to be expensive.

D: Yeah.

M: We have to help her.

D: Yeah.

That is such an important conversation and it is just eight statements. That’s why she knew to say that this bed was a present from my Parents. I had to take it. My Dad had already agreed to it while he was living, and I was NOT going to disrespect him in his death?!!!

My Mom told me that she is starting to forget this story so that’s why I wrote it here because I never want to forget it and I don’t think I ever will!!!

I texted my Mom last night telling her the two phone calls that needed to be made. I overheard her making those calls the two calls were for my compression socks and for the leads for my tens unit. There’s a problem there!

That sounds like more of a bunch of red tape!!! My Mom called Befitting You first and she has spoken to a number of people in the past almost 4 weeks. I still do not have my socks! My legs are throbbing something fierce?!!!!

Her next call was to Zynex. They are the medical supply company that is providing my tens unit equipment. That was written into my settlement that I will be getting leads and batteries to my tens unit that I have had since my meniscus was torn in October 2016.

They have stopped the shipment when it just was put into place two years ago?! I currently have leads and batteries, but they are not shipping more which is a problem because I’m in pain every day!!!

Definitely MORE of a BUNCH OF RED TAPE!!!