Month: March 2026

My Feet.

My feet are a thing now. They were becoming a thing for a while, but my six days of sitting in my manual chair was a little rough on them!!! It was like two or three days in when I thought about it because my feet were in my shoes all day long bent at a 90° angle!!!

My Mom was really concerned, but I knew I could make it, but it would be a little rough but here is the aftermath and I will raise my feet up so they aren’t on anything:

This picture is better light but look at my ankles?!!!!:

I am not seeing the vascular surgeon until June. I have a teeth cleaning in April, my neural ophthalmologist in May, and then I will see about my feet. I hope this doctor can offer something to help? Or maybe, #ItJustSucksToSuck!!! and #MSsucksAfterTwentyFiveYears!!! 😒😒😒…

A Curse?! Maybe…

Sean and I watched the Gonzaga game today. I love saying that name since like 2016. I was excited for a good game. I love March Madness but I’m not super invested. I check scores and will occasionally catch a game.

I buy a T-shirt for whomever knocks Michigan State out of the tournament. I know that it’s completely petty and I have a niece and a nephew who graduated from Michigan State and another niece is going currently but I remember my masters degree ceremony. This speaker said that I will bleed blue forever!

A woman opened the door for me when I was at Dr. Clark’s office and she told me that she will open the door even though I’m a tiger. She was referring to my Auburn shirt that I was wearing. I told her that I went to Michigan and the only reason I am wearing the shirt is because they knocked to Michigan State out of the tournament. They also knocked Michigan out, but I think the pettiness is funny.

Well, a curse?! Maybe… I’m thinking about that now. Gonzaga lost so they are out of the tournament so maybe next year I can get the T-shirt from them?

“Finding Forrester”

The night before last was the first time I slept in since the 11th because my chair was broken. I spent yesterday not feeling well and I don’t feel so much better today but last night, my Mom put my socks on inside out as I was going to sleep.

I told her to do that because it was kind of hurting putting them on my feet but I need to wear thicker socks when I go to sleep; it calms my nerves.

As my Mom was turning them inside out, she said, “Finding Forrester.” I kind of smerked and thought of a specific scene. I should rewatch that movie soon. Here is the clip:

So this has been going on for two days now and this was my feet this afternoon before I put on my compression socks:

“My Favorite!”

I got my haircut and my eyebrows waxed today. I was sluggish today. Christina asked how I was and I told her that it has been cold for too long! I thought it was going to be spring but now it’s back to being cold and that hurts.

She told me to hold on and that soon it will be spring but then I reminded her that I get super warm and that’s not good either! I really am a reptile! We heard this song and my mom said, “My favorite!”:

Thrown me for a Loop

I got my chair back today and it’s working wonderfully. The biggest thing for me right now is that I have never realized how far I have fallen. Meaning, I didn’t realize how unable I am until right now.

I think that I got my custom manual chair in 2015 or 16? I don’t even know, but I was working then but I was not driving. When I got it, it fit me like a glove! I would roll up and down the hallways at my school numerous times a day!

My shoulder got sore wheeling from my living room to my bedroom twice and when I hoisted up on my wheels to try to adjust myself a little better, that hurt my arm even more!

So, it has been a decade since I got my custom manual chair originally but then in 2018, I got a power chair. My body stopped remembering what it felt like sitting in a manual chair even though it was customized to me!

I’ve never really thought about how much worse off my body is now, until now!!! This realization has thrown me for a loop to say the least! But, I’m getting a haircut tomorrow and I’m going to the doctor next week. That will be it for March.

A GREAT Birthday Present!!!

It’s a little rough getting up so early in the morning but my Mom called me at 11:17 a.m. She told me, “You’re back in business! Your wheelchair is working!”

I exclaimed, “Thank God! Praise the Lord!” I was just thinking, I think it was the hydraulics on my chair, but that happened on March 11. I have been in my manual chair since then.

I am grateful that I still have a manual chair! I got it when I was still working so my insurance paid for it. I keep thinking I have been in my my power chair for eight years but now it is nine because it’s 2026.

I want to tell you that it has been so difficult to be sitting in it right now!!! I have had both of my legs extended for the most part since 2018. Definitely since April 2022. That’s when my pressure sores started! Sitting in this manual chair that does not allow my legs to extend has been so trying! I am praying so much, but I can’t help but think this was a great way to start off my 44th year?!

I absolutely know that you cannot plan for problems with your wheelchair! I’ve known that in varying degrees for the past 25 years!!! I must tell you that it kind of hurts that all of this happened at my birthday!

I had an inkling this year. That ‘birthday month’ wasn’t going to be a thing anymore and I definitely don’t want think about that now because this was an terrible birthday, but I can’t wait for my Mom to get back so I can get back into my power chair! That’s a GREAT birthday present!!!

Hopefully

So, I thought that I could ‘do anything for five days.’ Apparently NOT!!!

Today is day six and my chair is not getting fixed until tomorrow. Hopefully it will get fixed so I can have my appointments. I thought that I could handle it but today I feel it in my face and my knees are screaming and my lower back really hurts!!!

I have to get up really early tomorrow because my Mom should be out in Troy for a 9 o’clock appointment. She has already told me that she will call me before she leaves to let me know if my chair is fixed or not. If it’s not, I will cancel my appointment for my haircut on the 18th. I HAVE TO GO to my physical so we’ll just see about that!!!

I am going to sleep hopefully tonight! I’m hopeful that my chair will be okay and I can start using it again because this is very strange because it is showing me how far my disease has progressed since 2018?! 😒😒😒…

In-firmed.

My shoulder is feeling better, so much so that I hosted myself up in bed this morning when I woke up. I am just not allowed to touch the brakes on my wheelchair at all nor wheel myself in the chair! Alright Jen, that’s no longer your role anymore! I’m in-firmed now…