I was thinking about Happiness for Beginners and I am so beyond exhausted right now and I’m only halfway through and I can’t believe I haven’t shared this song?! How obtuse can I be?! I really like this song, so I’ll put it in here:
Month: September 2023
My Final Walk-Through for the Year
My brother just took my Mom to pick up the van for our ‘go-time’ this month. I am sitting in my living room in silence going through my final walk-through for the year in my head. I still have scheduled van rentals for October, November, December. I have to keep my short haircut up and. I have to go to a Cidermill in October! Duh?!
Naturopath and haircut tomorrow and a weight and bloodwork on Thursday. I do not have any more scheduled doctors appointment for the year. Now, I know that there could be an emergency at any point, but I really feel like I am getting into ‘cruise control’ mode with this mean disease! I will write more about this after ‘go-time.’
I think that I will call Margaret at Creative Mobility to schedule my appointments for next year. I will know my March date in 2024 because I will need to schedule my next appointment with Dr. Chamas on Thursday.
I had this year scheduled, but not until April because I had to wait for schedules to open up to see my neurologist. I will get a jump on 2024, but I think I have tomorrow set in my head. I never thought that my life would be like this, ONLY this…; but it is. I can schedule appointments and rent vans and I will probably start on Monday for 2024.
New Development
I almost forgot to write about the new development that I discovered yesterday! Here’s the deal, at my last dental cleaning appointment, I talked to the dentist about my jaw locking. It has been happening more lately.
She asked me if I had a bite splint and I told her that I did. I got fitted for it about 15 years before in this office. When I was still teaching. She suggested me wearing it longer during the day or she could refer me to an oral surgeon.
Dr. Elias told me years ago that my body cannot handle any more surgery! Seeing how the pain in my knee persists this much six years later, , he knows what he’s talking about.
So here’s the new development, as I was pillaging on Saturday, I couldn’t understand why my jaw was hurting so much. It’s because I was grinding my teeth! I had to stop pillaging and ask my Mom to give me my mouthguard! So now, I need a mouthguard as a Pillage. This sucks!
Gearing Up
I am sitting here just gearing up for this coming week. It’s ‘go-time’ on Wednesday and I have a doctor’s appointment on Thursday for bloodwork and a weight. But tomorrow, my Mom has a dentist appointment and that changes our routine. The service technician is coming to service my bed on Tuesday. So right now, I am just sitting here in silence going through each day, because I know it is going to be difficult!
Busy and Expensive
I pillaged and it looked really busy today!!!
Busy and expensive. But the supplements make me feel so much better when in fact, it is so much worse because this change of seasons is seriously killing me!!! I am only on six different supplements, but I had to change out the bottle this week for four different supplements:
*GASP?!*
Last night, my Mom showed me a picture that she saw earlier in the day:
That corner was my entire education from kindergarten to senior year!!! I sent that picture to my brothers today with the caption:
*GASP?!*
😱😱😱😱😱
(those five faces are us!)
My eyes kind of welled up with tears, as I was sending the picture to my brothers! You know what was playing in my head, right?!:
“Groanier”
I got up this morning and into my chair and I forgot how terrible the change of seasons is! It felt like this last year, changing from spring to fall and from fall to winter but MS is a progressive disease, so… today is the first day that I have realized that my movements and transfers are, “Groanier.”
Sweater Weather
So here’s the thing, I have figured out that having MS for 22 years breaks the temperature gauge in my body! I realized it was broken last winter and my Mom is having a crazy time living in this house with me!!!
Yesterday was my oldest brother’s birthday, and therefore it was six months to the day until my birthday! we are exactly 9 1/2 years to the day apart! I have just been wearing a T-shirt and shorts in the house but yesterday I noticed that my body started feeling weird!
It wasn’t until about 3 o’clock in the morning when I realized that it’s the weather change that’s making my body feel so wonky! When my Mom got me out of bed this morning, I told her I would like a sweatshirt.
I’ve been wearing my Michigan sweatshirt most of the day, I took it off for about a half hour, because I got a little warm but now I know it is completely sweater weather!!!
So, I started wearing a sweatshirt on September 13 and I wonder when the hats are going to make an appearance! I am prepared so I have both my indoor and outdoor hats ready to go! I almost forgot, how comfortable wearing a sweatshirt is!!!
Deal with It!
Today, I woke up and my Mom was taking Leia for a walk up to CVS. I had just awakened, so I didn’t want to move at all. My Mom asked me if I wanted her to unplug my bed because it gets pretty loud in the morning! I told her not yet because I wanted the freedom of movement in case I wanted to adjust the bed.
The tech is not coming out until next Tuesday to address the motor at my feet. Today was the first full day that we have had heat. My body cannot handle this weather change at all!!! at least I’m over the nose bleeds now..,
I’m pretty startled at how I am feeling right now but I was thinking it’s the fact that I am staring down the barrel of 23 years and that’s kind of tripping me out a little bit… Or A LOT! I never would have thought that MS would get this bad!!! But this is where I am right now, and I just have to deal with it! 😒😒😒…
Tax Day 2022
So, I absolutely love my bed! It works the best for me and my needs at this point! My Parents got it for me. We went and picked it out on April 8, 2022 and it was delivered on tax day 2022. I found that out yesterday as I overheard my Mom talking about it.
Let me ‘splain ya:
The motor that controls the vibration in my feet is broken. When I say it is broken, I mean that it’s a dull vibration all of the time. That’s not good, and I have only had my bed for less than a year and a half!
When my bed was purchased, we got a 10 year warranty from the store. I discovered that that was happening two days before my Mom called the store yesterday. So I figured that I was going to get a new bed. as it has only been a little over a year so it would be replaced. At least that’s what the salesman told us…
That turned out to be erroneous information that we just found out yesterday after my Mom was on the phone for a long time! Technicians from the store would not come out without paying for service! What was the warranty for?!
My Mom was on the phone so long yesterday, but she actually was able to speak with the Tempur-pedic people. They saw that I have a warranty and they are coming out on the 19th.
The woman my Mom spoke to from Tempur-pedic was named Priscilla and she told us where the actual Tempur-pedic stores are to purchase a bed. They are at 12 Oaks and Somerset! But I don’t need to buy a new bed, I will just need to get it serviced directly from Tempur-pedic. We need to call the store we bought the bed from to find out what the warranty is for?!