I Don’t Know When

When I awakened this afternoon, I started to check my emails before I got out of bed. Henry Ford MyChart sent me an email. It’s talking about my appointment on Wednesday. Which brings me to that stupid song! Something that I thought was about something different when I was a kid. But this is my life now. This is it! Let me ‘Splain ya:

Last Thursday, when I was getting ready for my virtual appointment with endocrinology, I logged in a little bit early and I immediately got a questionnaire about my appointment that’s going to be on Wednesday. So, I filled it out. Once I submitted it, there was another questionnaire about the appointment I’m having next month.

I don’t know when but this became my life. But it did. I just go to the doctor. I have to space them out because it’s so tiring but that is my existence now.

Here’s the song that I thought was about something different and it’s just dumb, but this is my life and ‘this is it’:

This is It!

I pillaged today. I didn’t get my supplements today that I ordered last Wednesday when I got paid. It’s not a huge deal because I’ve been on all of these supplements for years at this point. It just would’ve been nice if it would have arrived.

A song popped into my head a few days ago, and I’m reminded of driving with my mom in the backseat of her station wagon we’re going to the dentist in my Dad’s car. I saw the video today and it’s dumb!!! This song popped into my head and I’m letting it ruminate for a moment before I write a post about it, but here it is:


Great Teeth OR Powerful!!!

Today was the first Friday of Lent, so of course I watched, Jesus Christ superstar and right away, I was reminded of Judas’s great teeth! I love good teeth and his are absolutely great!

I did not think that I would cry because I have seen this movie so many times, but when Jesus pleaded with God, I started to cry because that is so powerful!!!:

#MyGirlL

#MyGirlL switched vets today. She has been having such skin problems for so long. The prednisone was proving to harsh on her organs so she was pooping blood. It was BEYOND scary!

So, her new vet is, AW Animal Hospital. She has been pink for the past two days, which has not set with me well at all because I know it hasn’t been comfortable! It hurts! My Mom asked why she is pink and he said because she is ‘inflamed.’

So, he gave her an injection and she is not scratching right now. I was so afraid and this is so promising!!!

She will have another appointment in three weeks. We talked to Sean as my mum was putting my socks on, and I told him that this is so promising because I was so afraid for her!

So, you know this song is in my head and I have to tag my sister-in-law and my brother by posting this one:

Why I Bawled.

So, since last Sunday and after Fr. Mike’s homily, I have watched this video numerous times:

Let me explain to you why I bawled. I bawled because I no longer can use my ‘chest voice.’ I barely can use my ‘head voice’ now.

This song makes me bawl too because I remember being caught belting it out by 5 year old Sean and his dad:

Gone.

Disease progression with MS absolutely stinks!!! it really stinks this far into the disease!!! I’ve been drinking my breakfast for a number of years. I don’t mind it. It’s difficult to swallow that early for me anyway.

Well, I no longer can open my nutrition shake on my own. You know, when you are opening something and that little piece of plastic needs to be broken. Well, that’s too much for me now!

I am extremely happy that I got my mom a can opener for Mother’s Day a couple years ago. I got it for her because she said opening things was getting difficult. I’m glad this tool helps with what I needed for now.

Looks like that ability is gone for me now too. It is never coming back. That is a fact I am desperately trying to get okay with. I have to. But you know what was in my head this whole time as I grieve my ability:

in 2002, when this song came out, I was in college, on Canadian crutches, still driving, and thinking my life would turn out differently than it has. #ItSucksToSuck!!! #MSsucks!!! 😒😒😒…

“Low and Haunting”

I became a member of the ‘virtual front pew’ on week 17 of Ordinary Time 2021. I go to mass each week in my living room now. I used to just watch it on my phone. Something that I have known since I started going to mass here is that Fr. Mike is my contemporary. I think he’s three years older than me. He was 45 when I was 42?

I am on the fifth time going through the Bible a Year and I have just begun the Catechism in a Year and I really dig his message and most often; I cry. It’s cool though because I’m in my house by myself. I also will listen to his homily and Hallow multiple times before the next weekend.

I have already listened to this homily three times so far. But I am crying for a different reason. He talked about a Sia song that came out when I was still teaching and I was teaching Reading in my third classroom, which was a converted closet adjacent to the cafeteria, which was used as our gymnasium for PE classes.

The sixth graders played dodgeball on Friday. Something that everyone needs to know is that sixth graders at CCA understand that they are better dodgeball players if they scream so they all screamed at the top of their lungs for the entire class. Not a great thing when I am trying to teach kids to read on the other side of the door.

Fr.Mike referenced this song:

I really dug that week for Ordinary Time was the Beatitudes! Here’s Fr. Mike’s homily, which got me thinking:

I had never heard Sara Bareilles’ rendition of this song, but this song means so much to me because I heard it 1 million times every day well sixth grader graders screamed I was teaching!!!

A couple things I need to say before I post this video, it’s from her little black dress tour. I love that song! Absolutely love that song!!! I will put it here just so I can hear it again:

I never saw that video of her on tour with that song over playing what was going on. It puts this next video into context a little bit:

I’ve bawl my eyes out each time. I watch this rendition of this song. I think that it’s a bit cathartic, but #ItSiucksToSuck!!! #MSsucksTwentyFiveYearsIn!!! 😒😒😒…

Brown Eyed Girl

So, I heard this song a few days ago and it reminded me of a summer festival at Saint Alphonsus. I think I’m in fifth grade. My friends and I went to the gym because there was AC there! I remember dancing like crazy to this song and my friend also had brown eyes so it was fitting. I have no idea what made me think of this. But I’m liking remembering it: