I Can’t

September’s ‘go time’ was a success, but just barely… it hasn’t felt this difficult since March but recovering today, I’m realizing a few things. I didn’t put my contacts in NOT because I didn’t want to but because I couldn’t.

This is the first ‘go time’ recovery where I am a little bit concerned about how things are progressing… This is the first time where ‘I can’t.’ it takes a minute for my brain to warm up now and when I am asked questions, I just stare at my Mom unable to answer. That’s been happening lately…

A WHOLE LOT

Well, this recovery is a doozy, the dooziest! It was a “Four-fer,” technically. I didn’t leave the house for two of those days but my sleep was effected, and there are consequences for that! I am feeling those consequences right now!

it is extremely startling to, just ‘not.’ These days, my brain does not function right away, and I don’t know what’s going on. It takes a moment for things to register, but the fact that there is a delay kind of bugs, me and by kind of I mean A WHOLE LOT! Coming up on 23 years MS will do it to you I suppose…

I pillaged today with my mouthguard on and it was the groaaniest of the groans that I have had to date while doing it!

“Kevorkian Scarf”

So, last Thursday, when I went to my doctor’s appointment, I always get a blood pressure! I have been doing that for years! But this time, the machine read my blood pressure wrong and the nurse was quite alarmed!

She kept the blood pressure cuff on me and had me wait and she wanted me to calm down so it would take another reading. She left the room and it began squeezing my arm.

I was reminded of a cartoon, I think it was an MTV cartoon in the early 2000s and this guy I used to know, told me about it, and he shared it with me. So I think it was some kind of alien he is in a doctor’s office and he takes blood pressure cuff and puts it around his neck, but then it begins squeezing his neck.

He called it a “Kevorkian scarf.” Well, it was kind of hurting my arm because it squeezed my arm about four or five times and I reminded of that video I saw. When I got home, this is what my arm looked like:

She saw the marks on my arm and said they would go away, but today, I still have hickeys on my arm!

‘Return of the Hat’

I think it has officially transitioned to fall because today, it was the ‘return of the hat’ me inside! I actually bought two hats at the Labor Day sale so they were cheaper because I will just wear these hats in the house and no one will see me, but I will show you right now;

So, this song will ALWAYS a muse me for as long as I live! I had to hear it before I posted on my blog today:

An Oldie but Goodie Movie

Wednesday I had a rough day so I decided to watch this movie:

I have seen Love and Other Drugs so many times since it came out and I first saw it in my house. I’m not sure what’s going on, but it hit me really hard this time! I cried a lot!!!

Thursday I thought of a different movie which I own so I watched that one:

This movie has been one of my faves since high school! But now that I am an adult, my focus changes each time I watch it. I absolutely love it though! I am not surprised that I can still cry so much at Sense and Sensibility!

I watched a completely different movie today and I cried as well:

I first watched Finding Forrester at my Parents’ house. I didn’t fall in love with it for a while but I really dig it now and yes, I cried during this one too! I’m just kind of having a hard time right now and I’m finding that it’s helpful to get lost in an oldie but goodie movie!!!

My Optic Neuritis Ridden Eyes

I am aware, but can’t believe it! I have known since December 28, 2000 that MS is a progressive and debilitating disease. Things are starting to catch up with me now! I can’t stop hearing that horrible doctor telling me that I have MS, will go blind, and then I will die.

We were too shocked to properly respond at the time, but I think that 22 years is where things start to go sideways because that’s what’s happening with me now.

Tomorrow is October 1! You know what that means?! I think I started doing this in 2018 and I think five years is the limit… at least for me and my optic neuritis, ridden eyes! This one is a tough one for me because I appreciate doing silly and repetitive things, but be sure that I will be watching it tomorrow at least and I will be rocking my fourth Sanderson sister shirt!

I think I will go back to sporadically watching it because my eyes can’t really handle a lot of TV these days. I’ve been listening to a lot more music instead.

Rando Tune #52

I have had a lyric in my head for almost a week now. And it’s just this:


I couldn’t remember where I heard that lyric from. But it persisted in my head for almost a week until right now as I’m laying in bed trying to fall asleep, it hit me! My freshman year at Western!!! I listened to this song the very first night I stayed there and my roommate wasn’t there yet. I was such a melo-dramatic kid! Here is the line right before:


I posted this song so many times on my blog because I really dig it and I dig the memory because that is where I live now…

Spent.

I had to leave my house today because my signature was needed and some bank documents. It took us over an hour at the bank.

Needless to say, I am spent. Beyond spent! I cannot even watch Hocus Pocus. today at all. I took my contacts out as soon as I got into my house, because of my eyes were aching so much!!!

Only Complicated for a Little While!!!

I asked my Mom for a snack sized Ziploc bag yesterday and she asked me how many I am going to ask for and I told her, “Just one more.” I told her that it’s only going to be complicated for a little while!

I am in the middle of the complicated ‘changing of the guard,’ but I do not need to leave my house until October 18. That’s my next haircut. I reserved the day after for my Mom and I to the Cider mill.

Let me ‘splain ya:

I started my fall flavors on October 1. This is how it is complicated.

What is normally my Spring flavored box looks like this:

The only reason my Spring box looks like this is because I left my house on Monday. I used my Chai Chapstick and I was not able to fully pull it out, and Friday, I’m sure I will have five Ziploc ‘bags of chapstick!’ But this is all only complicated for a little while!

I am just going to use my ‘’bags of chapstick until the remnant of the Chapstick is gone, and I think that will be BEFORE we go to the Cider mill this year!