Category: A Bit Of Randomness

This category is full of randomness that really doesn’t fit nicely into any of the categories having to do with my road to walking.

In and Out

I have been in my head since I received that message from my neurologist’s nurse about the necessity to see a specialist. I have a clear idea of the two phone calls that I need to make an order to make this miscommunication problem go away.

I have talked it over with my Mom incessantly since I received the message. I think this just all makes me nervous!!!

I guess that I just can’t get over the fact that this new nurse doesn’t know my 21+ year history with having MS in the same health system! That’s how I came up with my workaround. I am just going to change the doctor who prescribes my medical supplies.

It’s really no big deal, but I keep getting in and out of my head and that seems to make me nervous! But the thing that has calmed me the most is how calm my Mom is about this! She assures me that I know my body and I have known it for 21+ years!

This is all startling to me because I have not been in this situation before where the people responsible for signing off on things for my medical benefit have retired. My previous neurologist and his nurse just handled me getting my medical supplies on a monthly basis like clockwork and I didn’t know that I had to do anything! Now, that all changes but I think I have figured it out! I will know more tomorrow.

48 Minutes

Well, I was nervous about this all weekend long but it seems that my workaround worked perfectly! I knew what I needed to do and I started doing it at 1:23 PM. That was just after I got out of bed! Don’t judge me! I am chronically ill!

I called my medical supply company who has been my medical supply company for years. I am no stranger to waiting on hold when talking to a doctor’s office so I just waited. I knew exactly what I needed to do and it took me 48 minutes to get it all figured out! Kudos to Marie who was excellent and I gave her all fives in the survey!:


Marie told me that my monthly order was on hold because I needed to change my primary care physician in the order. I did that and she did some thing on her end where I would be on hold for a little while longer and then she told me that it will be shipped out today!

Once I hung up, I let out a heavy sigh of relief because my medical supplies are coming now! I really can’t even understand how this happened because I have been receiving these supplies since 2001. That was when the doctor prescribed them to me but that was after a very strenuous testing that was done.

That was the doctor home my neurologist’s nurse wanted me to see but I have seen him before! He is the specialist who people with MS see and whom I have seen before. I don’t need to see him again! I did not like his bedside manner and they don’t have a cure for me now so I just need my supplies!

That’s why I had my workaround because I did not want to go through that test again because I already know what the test would say! I messaged my current PCP and told her that my medical supply company will ask for authorization for something that I have needed since 2001.

We also called Dr. Skarf’s nurse as well today and left a message for her to call my Mom back for testing and scans thatI need to have done on my eyes in the new year.

O, Holy Night

This Christmas song will forever remind me of my cousins,Sal and Melinda, and their friend serenaded us one evening when we celebrated Christmas in Texas. The biggest thing that absolutely blew my mind was that we barbecued on Christmas day with my aunt and uncle!

I think it was a couple years ago when someone asked on Twitter our favorite version of the Christmas Carol, O, holy night. I interact with this guy a lot on Twitter because he tweets funny things! He tweeted a survey that gave us four options of a singer but then there was a fifth option, it was, “other,”

So I checked the other box and tweeted this video! He responded with just a, “Wow!” And I agreed in my response because I love this song! I have already listened to it a number of times since Friday!:

The whole reason I am saying this is because I am wearing a shirt I got a few years ago and it says, “Oh Holy Night” So I am going to post this blog post in hopes that you can still get the Jon Secada version of this song by clicking on the link.

That’s Why?!

I think I did this a couple Christmases ago. I made a playlist of all my favorite Christmas songs! The day after Thanksgiving, I am free to play that playlist constantly which is what I have been doing. I put my favorite song four times in a row on it to begin the playlist. Everyone knows by now what my favorite song is but if you have some sort of lapse in judgment, I will remind you:

I couldn’t understand why I had saved this song in my playlist. I grew up hearing it so I was familiar with it but I didn’t know why it was in my playlist until my Mom told me that she likes that song! That’s why?!

I have told everyone my favorite song and just this year, my Mom and I were watching The Santa Clause and my Mom mentioned that she likes the Carol of the Bells. So YOU KNOW that I had to add another song to my Christmas playlist!:

I added these two songs because my Mom likes them, that’s why!

#MyGirlL: Bad Girl!!!

So, today, my Mom was going to watch me put my contacts in when we both heard a crash of breaking glass! It was coming from the kitchen where Leia was so my Mom instead of watching me put my contacts in, want to see what it was.

When my Mom saw it, the litany of, ”Bad girl!” And this is how Leia reacted:


My Mom is still cleaning it up and she will randomly reiterate that Leia is a bad girl! I don’t have my contacts in, I have not brush my teeth or even eaten my lunch. All I’m thinking about now is that I have a movie to watch! Leia still is not moving!:

December 2022 Faves

So, I’ve been listening to my Christmas playlist since December 1! But there is something going on as well. I did not realize this until last night because I was eating a lot of chocolate! I can have the dove dark and mint chocolate and I bite it into four pieces. I usually just have one or three at most but I was eating them a lot and I couldn’t figure out why!

But then, it hit me. It’s December. December 28 is coming. This year, it will be 22 years since I was diagnosed with MS. I have had that for years more than half of my life and that just kind of hurts. So, I can’t get rid of the melancholy feel around this time as well so I’ll post the two songs that help me get through it:

#MyGirlL: A 4th Round

So, Leia has been a sickie for a while now! We are going to change her food for a third time! She was on prescription food for almost a year and we changed it to salmon but but my Mom talked to the vet and we are going to change her over to a different prescription food.

It’s a little bit cheaper than her first prescription food and I am going to say that three is a charm and my girl will get better! But, she needs a fourth round of steroids to let her body calm down because she is absolutely inflamed and it’s awful! Sean is going to pick up the ‘roids tomorrow.

I have been thinking now that she is three, maybe I can put my ornaments back on the tree because she will be on steroids the whole time the tree is up so she’s going to be a little bit listless and won’t bother them. My Mom sent me this picture the other day and it made me miss our beautiful tree:

I think Sean was a senior in this picture and I don’t know why my star is not on the tree but I miss this even though I still can’t find my tree skirt!!!