As the Crash Began…

I have completed my ‘two fer’ this month and yesterday as the crash began, my Mom put this movie on. I am situated in such a position that I remember watching her on Zoey 101 when she was like 12. Sean watched Victorious and so that means that I did too and I always liked her voice! Hearing this last night made me miss impromptu sing-alongs because that’s not in the cards anymore for me. I am reminded that recovery from here ‘two fer’ is a two day process… :

Modified OR Deliberate

So, I have been experiencing ‘real time’ ability loss. The loss that I am currently experiencing is a little bit different than constantly dropping my pen in my last classroom where I would tell the student who sat there that they would have to pick up my pen a lot. This is MORE than that!

I think I really noticed it a few days ago and my Mom kind of got irritated until I explained to her what was going on. What I am experiencing now is more complete hand strength deterioration. I cannot hold on to basically anything now!

I was realizing that I was having a problem with my hand strength because brushing my teeth was becoming extremely difficult! I was brushing my teeth too hard so you can figure out what was happening when I spit.

I ordered an electric toothbrush last October and it ended up dying because I was holding it and pressing too hard on my teeth. Now, I have a new electric toothbrush, (that my brother bought for me) because I can’t afford another one seeing that I am on a fixed income.

But yesterday, I had to fill my pillbox. I talked about a modified pillage which was me very slowly putting each pill in its proper place. That process is extremely deliberate now so much so that Leia gives me the ‘poop face’ as I do it because it has been a couple Saturdays since I have dropped any pills.

Any movement with my hands is very deliberate now and I have been squeezing my therapy putty all year. So, I have to be deliberate whenever I am holding anything. I guess my whole life is modified now! I’m really not sure how I feel about that…

#MyGirlL: To the Rescue!

I had a choking spell today. This one made me a little bit nervous! I had to beep my horn to get my Mom to come and pull me forward by grabbing both of my hands and pulling me forward until I caught my breath.

This choking spell really made me nervous But as I caught my breath and started to breathe easier, I saw that Leia was right by my side! She is beautiful!!! When I sufficiently caught my breath, and my Mom had left to put laundry on, I thanked her for coming to [my] Rescue!

#MyGirlL: She Missed it!!!

My Mom took this picture of Leia this morning and she took it just after a bunny who was hiding beneath the leaves right under her nose, scurried out and that picture is her realizing that she missed it!:


I really like this picture of Leia! She looks so shiny! She has switched over fully to her new food which is salmon and grain. The best part about this fact is that it is $60 cheaper than her last food!!! I was able to swing that for an entire year and it has gotten pretty expensive with inflation; but it’s looking like I won’t have to anymore!

Rando Tune #32

HOW DID I MISS THIS ONE?!!!!

It came out in 2012 and then, I was living in my house already, wake me up for work at 4:30 AM to be ready at 7:30 AM. I think my disease was beginning to get away from me that’s how I missed it! This DEFINITELY would’ve been one of my jams if I wasn’t trying so hard (and losing) at keeping my health!!!

30k?!

I just checked the stats on my blog and it told me that my total views as of right now is 29,930!?! Next November is my 10th anniversary and I’m kind of blown away that that many people will read what I have written. Almost 30,000 people?!

On a different note, today is October 28, 2022. I think it is a sign of my disease progression and the fact that I can no longer regulate my body temperature because I’m wearing a winter hat for the first time with this winter and it’s not even winter yet?!

Today worked out to be a ‘no contact wearing’ day and I do not know what’s going on with my right eye! It looks kind of buggy! I see my neural ophthalmologist November 17. Maybe something’s going on with it now?!

Faint OR Saltine Crackers

I first met with my nutritionist on October 12. It was a virtual appointment and I see her again the day before Thanksgiving.

I have been drinking two protein shakes for breakfast and lunch for probably a couple years now. Chewing has become so difficult and I can eat some normal food for dinner, but that is pretty much limited to eggs, beans and tortillas.

We specifically talked about this because I have been losing weight and I am not trying. I have been noticing that I have been starting to feel faint before my dinner. We decided to change up one of the protein shakes with overnight oats. My friend Renee, introduced that to me and it seems to be working out well for me given my chewing limitations.

So, today I did not have some ready for lunch so I had two shakes and man, am I faint as my Mom is making dinner! I was able to eat some saltine crackers as I waited.

Now, this is a very foreign occurrence for me! I have been ‘low carbing’ it for most of my adult life! I have known since 2007 that carbs are not my friend but given my dietary limitations, I have to have crackers that gives me just a little bit of energy that I need.

It feels extremely strange to actively consume carbs but I need the energy because this MS fatigue 21+ years ain’t no joke! I never thought that eating would be difficult and I think it’s sad that I am losing weight and I’m not happy about it because I’m not doing it on purpose even though I always did it on purpose for my life before MS…