Author: Jen Rios

Somber Realization

I realized this fact late last night and I was immediately saddened when I realized this fact. I did a little bit of ‘research’ and it confirmed the fact for me which kind of made me even more sad!


I looked at this picture because I wanted to see the faces that go along with the number. My new number is just what I suspected! I have lived with a pain level of four for about a decade but year 21 is definitely a doozy! Looking at these pictures, my assessment is that I am at a solid six all of the time! That was an extremely sad realization yesterday but I spoke with Meira my Speech Pathologist and we are working through some things as well.

SWEEET!!!

Football has taken a backseat to my health problems right now but I am a Twitter football fan. I just catch the highlights! That makes me feel badly but I will tune in for the playoffs and the Super Bowl! I saw this tweet today and it took me back to my time at Barwis:

Adam was my trainer back then and there was a man training for the combine. Adam asked him which team he would want to play for in the NFL? He thought about it for a moment and he decided on the Saints. I remember that Adam was startled by his answer and I chimed in, “Because their uniforms are sweeet!!!”

I remember both of them laughing and I liked being part of that football conversation. I will watch the game on Sunday or at least check out the highlights because they will really look SWEET!!!

Thank God

So, this happened last night:

That really stunk that this happened because I had a doctor appointment today with my new primary care doctor. I had dropped my glasses when I took my contacts out and I forgot about them so when I moved my chair, I ran my glasses over.

THANK GOD FOR AMAZON!!!:

I am extremely grateful that my glasses are coming tomorrow.

*** I just saw that I did not post this but my glasses arrived and my mom put the prism in and all is well regarding my glasses, not everything else in my life…

Reeling

So, I had my ‘2 fer’’ for September but I have another appointment next week for my pressure sores. But with the steady progression of my disease, these two days of getting out of my house are starting to take its toll!

I am kind of reeling still as I write this! I feel like I am Bono just as he is pushed out of the van. I hope I feel better soon…:

THANK GOD!!!

So, this happened yesterday:


This was bad news because after my haircut yesterday, I had a doctor appointment to meet my new primary care physician. I dig her!

After the mishap last night, THIANK GOD FOR AMAZON!!!:


I took my contacts out already so I don’t have to wear the broken glasses. My Mom agreed to affix the prism onto the glasses tomorrow because without the prism, even with my contacts, I cannot see!

“Muggy!” OR HUGE MESS

My Mom took Leia out this morning for a little walk and for her to do her business. When she came inside the house, she said that it felt, “Muggy!”

Well, that stinks! It’s stinks for a couple of reasons. The first reason is that today starts my ‘2fer’ because I just got paid. I am getting my haircut and eyebrows waxed at 5:30 pm today. I am hoping it may cool down by then because right now, I am sitting in my house in the air-conditioning kind of uncomfortable!

The reason I am uncomfortable is because of all of the rain we received last night and this morning as residual from Fiona. So that is the second reason. I can’t get comfortable! I have my arms pulled into my sweatshirt and I’m sort of hugging myself for comfort because inside my body is a HUGE MESS!!! Not to mention that tomorrow, I am going to see my new PCP and we will talk about my nutrition because chewing is way too difficult for me now!

“Go-Time”

It was an anti-climactic changing of the guard, changing of the seasons. I finished my cucumber mint Chapstick halfway through the day and I couldn’t take the scrape on my lips so I moved over to vanilla bean.

So, it’s fall now according to my lips and tomorrow I get my haircut and on Thursday I have a PCP appointment and we will discuss my nutrition. I am a little concerned meeting a new doctor because I don’t know how much experience she has with working with someone with multiple sclerosis.

I can feel myself getting a little bit anxious but it’s “Go-Time” for this month now!

Made for Us

I saw this post on Facebook just before I went to sleep and I texted Sean the actual video and told him this video was made for us!:

https://www.facebook.com/reel/1511185859342017?fs=e&s=TIeQ9V

This is the song that goes along with the elephants walking across the street. I am not sure if that is going to be a live link from Facebook but I’ll put this song here. That is Sean’s ‘guilty-pleasure’ song!:

It’s for both of us! I love elephants! He used to love that song when he was a kid!

Rando Tune #28

I am sitting at my table in our first apartment while the maintenance guy is fixing something in the utility closet just off the kitchen, right across from the washer and dryer. I was fairly new to the complex at that point but I will never forget the ease with which he sang the refrain from this song what kind of a country twang to it but it sounded pleasing:

A Bit Premature

It’s not quite fall yet but I think my posts are a bit premature because I recently followed this on Facebook:


It was just going to be a single share but then I saw this tweet today and I think it’s official, my summer Chapstick is almost gone and then it’s going to be Hocus Pocus two right before my marathon watching of Hocus Pocus!

But then my Facebook friends post replies OK like this to my post;


I posted this because it was Halloween time at Target:



and I get this reply: