Author: Jen Rios

THIS Change of Season…

I told my Mom this afternoon that I am closer to having had MS for 23 years then I am from having it for 22 years. My able-bodied self is such a distant memory but right now, I am faced with the changing of the seasons. That has progressively gotten worse, but I think THIS change of season he’s kind of proving to be a little too much… Let me ‘splain ya:

Last Tuesday night, it was too cold, so I had to turn the heat on. My nose was cold and I was hiccuping! I finally fell asleep when it got warmer and then Wednesday morning, I sat up in my bed, and was trying to orient myself to being awake. I was looking down at my phone to text my Mom that I just sat up. It takes me about 30 minutes to wake up.

I sent that text and I could feel my nose was starting to run so I put my phone down and reached over to grab a roll of toilet paper. That’s on the table to my left. I thought that I was a little bit slow and grabbing the toilet paper, but what I thought was snot hit my lip! I was totally grossed out and then I got some tissue. When I wiped my lip, it wasn’t snot, it was blood!!!

When I saw that, I started freaking out a little bit and started sopping it up. I didn’t want to blow my nose because I wasn’t sure if it was done bleeding and I didn’t want to irritate it!

I woke up Thursday morning to a lessened bloody nose and on Friday I didn’t bleed at all. But what concerns me now is the fact that it is warm today:

I’m keeping the air on all night and all day tomorrow because it’s going to be a hot one and in the back of my mind, I just wonder if I’m going to have to deal with more nose bleeds when I turn the heat on for real, for real.

Happiness for Beginners

My Mom suggested this movie yesterday and we watched it and I thought it was hilarious!

Today, I had my solo encore presentation just to get whatever I missed yesterday and to continue to laugh at all of their banter! Hugh was my fave!!!

I think I may make it a triple play because I think there are things that I was still missing. I will watch it without my contacts on on my phone. Optic Neuritis is not like what’s going on with Jake but I think it’s a bit close. May be a little too close for comfort…

The progression of my Optic Neuritis, although it started when I was pregnant in my right eye and my left eye joined the optic neuritis party when Sean was maybe 10? He’s 21 now so it has progressed but I get the gist of everything I see so it’s okay I think…

Besides, I love this song!:

Rando Tune #49

I was scrolling through my phone last night, and I saw a short of Mariah Carey singing “My All.” Of course I had to click on it, and then I stopped halfway through because it was a live video and it wasn’t that great of a performance so I decided to wait until I got into bed so I could give it justice as I listened!

I was a Sophomore in high school again, and I liked thinking about that! I still know all of the words, but I no longer can sing them. I’ll just put the video here:

But my Hat Arrived Yesterday?!

My Mom sent me a very cute picture of Leia last summer of her walking with a 3 foot stick in her mouth. My Mom let her walk with it for a little while before taking it from her mouth. I was searching for it today, but in light of the fact that I cold right now and I received my first winter hat arrived yesterday. What’s the point in sharing that picture?! I will just share it next year or whenever I find it!

This Smells Weird!!!

I am 100% into my Fall flavors. I need to use my Spring/Summer flavored box until October 1! But let me tell you, this smells weird!:

currently, I am using my Spring/Summer box because my current fall box, which I won’t start until October 1 is on the verge of finishing the tubes:

I am using my Spring/Summer box, so I had a place to put the Pomegranate. I am using right now. I am left-handed so I use my left hand to open the box. I smell Strawberry Sorbet first, but then I can immediately smell all of my Fallflavors, even though they are still sealed It just smells weird! It will for the next month!

Who really needs to think this closely about chapstick?! But I live a very small life and there’s nothing else to do! I don’t leave the house until September 20.