So, I was diagnosed with Multiple Sclerosis on December 28, 2000. Since then, I have not been hospitalized. (KNOCK ON WOOD!!!) I have worked really hard to NOT be hospitalized for over two decades in watching my diet and exercising what I can.
What is kind of smacking me in the face right now is the fact that I have all of these outpatient procedures coming up. I have already stopped taking my supplements until the 15th. Then, my Mom will be getting a phone call to reschedule my endoscopy and colonoscopy.
This is a whole lot! I’m just happy that my house is comfortable because it’s been 70° here all day so I need to take the wins where I can get them.
I just can’t believe that I did not think that it would get like this… EVER. Seriously?! But here we are. I’m just going with it. This is scary and I KNOW that I will cry uncontrollably at least two more times this year.
That’s a little bit daunting, but I’ll be ready gearing up for the I’m going to have my next outpatient procedure on the 15th. And then my colonoscopy and endoscopy needs to be scheduled.
I just can’t believe that later this year, it will be 25 years since my diagnosis, and this is serious now! #MSsucks!!! 😒😒😒…
My Mom got a call from a woman named Amy who is the anesthesiologist for my cystoscopy on July 15. I was sleeping and she wanted to talk to me so she called back when I was awake.
I need to stop taking my supplements until my procedure?! That’s 15 days?! I had already taken my morning supplements today, before I talked to her,but I won’t take them again until after my procedure. I do feel this for sure! I have been taking my supplements for so many years that it’s doing something for me that’s helping me out but to be without them is a little rough!
She did tell me I can continue taking my Prilosec (I still have gastritis), Claritin, Tylenol, and eye drops. It’s just like the last time! My Mom asked me why I am having all of these things so close to together. She was kind of frustrated!
I told her that I have had MS for 24 years and my different organ systems are reacting accordingly. I just don’t know why I did it in the summer! That’s rough in and of itself so I don’t know what I was thinking.
So, I know what’s coming for this procedure. kind of. I do know that I am going to let myself cry and I will look forward to having supplements again on the 16th!!!
Today, this evening, I was able to stand up fully when I transferred. Finally! It has taken me five days for this! What was I thinking?!
I am getting my teeth cleaned next Tuesday and then the following week, I am going to the doctor to get my calculus removed. I may be under for two hours for this one.
They are going to call my Mom to reschedule my colonoscopy and endoscopy. Like it is not super hot outside?! Seriously, what was I thinking?!
I have been thinking and, I should just let myself cry in recovery! That probably would be better! It was crazy to wake up crying and not understand why but now I know why and I’m just going to let myself cry. And this song popped into my head that ABSOLUTELY shows my age but I don’t care:
I woke up this morning feeling better. I can breathe easier. That relieved me, but let me tell you how I got there:
I could only put my finger on it this morning when I was no longer anxious. I didn’t even recognize that I was so anxious until I am not. I kind of had an inkling yesterday evening.
I put on my, “The Daddy Mix” last night and I tried to channel my Dad. That playlist will 100% make me cry every single time and I was feeling that I needed to let some tears out to make me feel better.
I put the playlist on shuffle so I would not know what song was coming until it came. Sure enough, I began to cry! I just let myself cry and let the tears roll down my cheeks.
I didn’t listen to the whole playlist, but I definitely heard a number of tearjerkers! I really like the fact that I woke up feeling better today. Now I know what I need to do in a couple of weeks.
I am getting my calculus zapped on July 15. That doctor told me that I will be under for 1 to 2 hours. I read my MIchart results and I was under aesthetic for one hour and 14 minutes this time.
So, I will be in a different clinic for this procedure, but I’m going back to gastroenterology in eight weeks to repeat my procedures. Hopefully, the colonoscopy will be a go, and I’ll be able to see what my gastritis is looking like as well. I am currently taking two prescriptions from the doctor and three prescriptions from Zerbo’s.
One of those prescriptions from the doctor is for Prilosec. I told Sean that and he asked if that was for old people and I told him that I am old now, but it’s for sick people and that’s me now too.
I woke up crying this morning. I woke up crying from my endoscopy as well. It was different this morning, (really this afternoon) when I woke up crying because I was in my room all by myself instead of having multiple nurses (who were strangers) bustling around doing things.
Now, when I say that I was crying, it was not one glistening tear on my cheek. It was a deluge out of both eyes! With multiple tracks of tears streaming down my face. Today, I just let them fall and did not care until I needed to blow my nose.
I just don’t know why this is happening? I remember when I woke up from my last surgery, (that was my second knee surgery). There was a nurse working on a computer to my right and I just said with my eyes not even open, “My knee hurts.” And then I opened my eyes a little bit and asked if I had knee surgery. She said, “Yes” and I went back to sleep.
Waking up, crying, kind of it’s not sitting well with me. I completely understand that it is something neurologic. 24 years ain’t no joke, I am finding out and I will ask my neurologist, Dr. Cerghet in August. That’s when I have my virtual appointment.
I remember that I would used to only see my neurologist once a year, in August. That was the end of my summer and before I started work. That’s the only check-in I did medically. I just reviewed with my Mom the upcoming appointments for the year and I have multiple appointments (with different doctors) everymonth! I wasn’t ready for this.
I just see my neurologist virtually because she’s not going to cure me. Now I’m homebound. I wonder if I will wake up crying tomorrow as well? I amSTILL so shocked for my procedures that I don’t even think I have been begun recovering yet. Hopefully that can start tomorrow?
I had reposted a previous post that I had written that I take 42 supplements a day. I am scheduled to go back to see Dr. Clark in September. He will change them if need be then.
Okay, yesterday I had my two procedures. Leading up to that, I had to stop all of my supplements for seven days prior. Let me tell you that that was so rough! I stopped taking them on Monday night, Tuesday afternoon, it felt like I was drunk. By Friday, it felt like I had a urinary track infection. Sunday, my head was in a jar of water! I couldn’t wait for Wednesday!
So, Tuesday night, I did my preparation for the colonoscopy. I opted to take the pills. All I can say, is that I am NOT a fan to say the least!!! it didn’t even work! I have to have a repeat procedure. I threw up three times while taking the pills! Barb, my nurse said that it wouldn’t be clean. It wasn’t. That stinks!
I have said it so many times and it is a known fact that I am a ‘rule follower,’ and I followed those directions to the T but it does not work for someone who has had MS for 24 years! I know that now!
So, the colonoscopy had to be aborted, but my endoscopy showed that I have gastritis. Wait. What? So of course I Internet search!ed, something I absolutely abhor, but I did it anyway:
Screenshot
I stopped drinking in 2009 but I did start taking Motrin 800 every night in 2018 after my second knee surgery.
My Mom picked up my prescriptions from Meijer today as well as multiple supplements from Zerbo’s. I’m tackling this with both Eastern and Western medicine like I always have done with my MS.
She brought in a big bag from Meijer and four different supplements from Zerbo’s. It was a lot! It took me a minute to sort out what I need to add to my daily vitamin dosages.
Sh also picked up my new preparation for the rescheduled colonoscopy. It was 2 4 L empty jugs with powder in them. This new preparation is a two day preparation and I need to stop eating solid food two days before I start that. they will call my Mom to reschedule. I’m not looking forward to that! So again, NOT a fan to say the least!!!
A Pet Shop Boys song popped into my head when my Mom brought the things from Zerbo’s. I didn’t even know it was a Pet Shop Boys song. It wasn’t one of my songs, but I remember hearing it. And my Mo me and I listened to it and she said that it came out in 1984. So I must have heard it somewhere, the dentist,or in the back of my Mom‘s station wagon? Anyway, it’s in my head again right now:
I had two procedures today. One of them was successful and the other one not so much. I have to redo it in the next few months. I’m going to talk about these appointments but I’m a bit groggy today.
Barb, my nurse told me that it would be about 12 hours before I feel better after the anesthesia I had. She gave me two of those hospital bracelets that I used to LOVE when I was in high school! Well, didn’t know what the second one was, but I just went with it. It wasn’t until my Mom came back to see me in my room, I was in Bay 16. She took pictures of them:
I didn’t read it until my Mom came back and I paused when I read it. Well, I am! I told Sean about it and he said for insurance purposes, of course I am fall risk.
I just never thought this would be a bracelet that I would have on in the hospital. I need to cut them off because I’m an adult now and you don’t wear them for fashion. I thought of this movie when I was thinking about cutting them off:
well, the guy who installed our air-conditioning, took a look at it today. He found the culprit!!!: mother nature.
Paula was living next-door when Iwe moved into the house. Just before she moved out, she planted two cottonwood trees I have been without air conditioning for nine years and now that I am homebound so I’m not outside very much.
At least it’s comfortable in my house right now even though it’s 89° !
Oh, this was brutal! It was 95° for far too long today! Sean stopped by and we sat in my living room, all three of us, not saying a word. This is so difficult and it’s not even July yet?!!!!
