Author: Jen Rios

An Experience

I was recently thinking about this movie;

I had seen this movie years ago and I couldn’t quite remember it. I remember that Queen Latifah was in it and I remember her being funny. My Mom was still here when I started watching the movie because she hadn’t left for my nephew’s graduation party yet.

My Mom saw the part where the little girl and her mom, (Jennifer Gardner) they ate with Queen Latifah at an art museum. The little girl stares at a painting intently! My Mom asked what was going on and I said that,”She is having an experience.”

I feel that I am too having an experience! I’m not sure if it’s my vitamin change or something else but It’s something! It’s a little bit exciting!

June 2024 Faves

I think posting this picture is a little premature because I think we went to the concert in July but I love this picture every year I get older! I think I was 29?! I love it more now!!! This was my very last concert that I was able to attend:

I remember seeing them walk out on stage with this song, and they came from the left of the stage.

Well worth the swear words!!!:



I kept yelling for them to sing this song! I was the last row of the disabled section, but they couldn’t hear me and they didn’t perform it:

Is it?!

My mom is at my aunt’s house setting up for my nephew’s graduation party. I watched Fr. Stu.

I hadn’t seen this movie for a while but I was recently thinking about the scene when he’s on the side of the road and Mary comes to him. But this part really got to me!!!:

Is my suffering a gift from God?! Is it?! I will tell you this is difficult for sure!!!

Exhausted

I opened my eyes this morning, and I was exhausted! I couldn’t figure out why until I got my morning vitamins, and realized that I forgot to take my night vitamins AGAIN last night! Grrr!!!

got me thinking all day today that I really need that many vitamins a day so it just points to my disease progression which kind of stinks…

Passengers

I remembered to take my night vitamins last night! I really think that I like my new pillbox. I think it is strange that I take vitamins four times a day and it’s kind of a lot of vitamins. They are called supplements, but I think I’m more comfortable calling them vitamins.

I am slowly learning my pillbox! At first, I didn’t even know how to open it, but now, I realize it’s made for older people who take vitamins four times a day. I didn’t understand how to open it and all I need to do is press the heel of my palm on the top of the box, and then the latch releases quite easily!

I also have figured out what my pillbox reminds me of. It’s the movie Passengers. I didn’t realize this at first, but it’s totally what it looks like! Here’s my pillbox.

I don’t even really like the movie! I didn’t see it in theaters, but my Mom likes it and I watch it with her. It took me a minute to figure it out, but I thought back to when Chris Pratt was looking through all of the manuals, trying to figure out how to wake up Jennifer Lawrence. I watched this clip yesterday, and when I saw it, that’s my pillbox! At least that’s what I think:

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At least, that’s what I see as I’m kind of fumbling with my pillbox at this point. I can’t control my hands anymore but it’s a little bit easier. #MSsucks!!! 😒😒😒…

Better

I forgot to take my night vitamins yesterday. I am not in that habit yet, so I took them this morning with my breakfast vitamins. It was a lot of vitamins to take in the morning! I had to take two wafers as well. And like 17 vitamins! It took me a long time to do that.

I got the ‘oomph’ again about an hour after I took them. When I felt it, I smiled to myself. It’s kind of crazy that I’m going to need this many vitamins a day to feel okay. And I really DON’T feel okay but I feel better.

I thought of this movie and I was able to watch it for free on one of the channels I subscribe to on cable. I have not watched this one in a while! I had really forgotten about this song until when Allegra jumped out of the plane:

“Oomph!” OR More Neatly

Last Tuesday, when I saw Dr. Le May, Yama, was working with him and I asked her if they were changes to my supplements. She told me that there were a lot, but it’s all written down! I decided to wait until I pillaged on Saturday to change out my vitamins.

Yanna has told me before that she likes to overload supplements in the morning so then it will give you more energy throughout the day. I listened to her this time! Yesterday when I pillaged. I knew that I put a whole lot of vitamins in the morning slot and they just barely fit!

So this morning, I dumped all the vitamins into the ramekin that I keep by my pillbox that has my therapy putty in it. I counted the pills and I had 12 pills and one wafer to eat. I took the wafer first and slowly took each pill. It was probably an hour after I took my pills, and while I was praying that I felt a huge, “Oomph!” it felt like I was sitting up straighter, and I could see clearer, even even though I was not wearing my contacts yet!

I have decided that I like my new pillbox! I’m a little startled, though. It was easier to open each slot. I was startled that I had already had 20 vitamins and I had yet to eat lunch! I guess it’s just a little bit crazy that I am THAT in-firmed now! I need this many supplements just to make my body feel better?! That’s something I’m going to think about for a while, but I think next week when I pillage, I should do it a little more neatly, especially in the morning!

*Bu the way: I didn’t notice if there was more energy, even if there was today.

It’s Like that Now.

This disease progression is getting to be too much! This morning, I awoke to my legs feeling swollen and I thought, “Oh yeah, I forgot about this!”

I saw my naturopath on Tuesday, no, I didn’t see him, but I saw a different doctor who does the same thing in his office. My normal naturopath is still injured. I’d liked this new doctor and he adjusted my supplements a little bit.

I ordered a new pillbox that is arriving tomorrow:

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My current pillbox has spaces for supplements three times a day, but with Dr. Le May wants me to take my supplements four times a day. He just added the amount of pills I take each day.

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I take a combination of tablets and capsules and I have gone from 20 pills a day to 31.

It’s taking me a minute to process this! I’m going to ask my Mom to wash it out when it arrives before I pillage on Saturday. I can’t believe it’s like that now!!!