I was cleaning out my email boxes tonight and I got this one from the Rams:
I would watch that Top 100 players every single year and I never saw him on the list! I texted this picture to both Sean and my friend Bert and told them, “You KNOW I will take that!!!
But I don’t even watch football anymore. That’s a statement that I never thought that I would make. But, 24 years in, I have optic neuritis in both eyes and it’s only getting worse. #MSsucks!!! 😒😒😒…
I messaged my doctor’s office on MyChart last night and I awoke to an answer this morning. I felt completely satisfied! My year is 100% planned and I 100% know what I need to do for my upcoming procedures for the year. I only have one more.
I don’t know how this happened or even when but, this is my life. I’m really not sure how I feel about it, but I am doing it.
I will call for my bone density scan in October for my first appointment of 2026. I really can’t believe this is how it is, but it is.
I had a little bit of difficulty filling my pillbox last night. So much so, I ordered this today:
I am overlooking the fact that they allowed the days to be out of order and that kind of drives me nuts! I was already thinking one way about changing my pill box when I saw this picture which confirmed it:
I already thought that I was old having to change my pill box. This picture confirmed it because of that man is old! Probably at least 20 or 30 years older than me!
But my pill box is feeling over-stuffed so ‘something’s gotta give’ and you have to do what you have to do. It really stinks that it makes me feel old and sick!!!
I pillaged today. I have a virtual appointment on Friday with my neurologist. I am going to see my optometrist the Tuesday after that appointment. These appointments just keep coming!
I’m really not sure how we feel about this, but I just exist between appointments now. I was not ready for that at all! I think that things will start settling down during the ‘ber’ months. At least that’s what my schedule says at this point.
I e-checked in for my appointment next Friday. Its virtual. I have been going to see my neurologist for 24 years. Today was the first day that I ever was asked this question and it floored me. I have been feeling that too! I remember feeling it BEFORE I was diagnosed and standing in my dorm room at WMU. Here’s the question:
I do need to clarify that the electric sensation that I feel shoots down my arms and ends in my pinkies. It feels like my funnybone has just been hit. So it DEFINITELY does not feel good! I just think it’s crazy that I have JUST been asked this question and I’ve been seeing these people for 24 years?!
My Mom has been listening to Carly Simon lately and she talked about this song and we listened to it as she put my compression socks on.
This song will always remind me of my aunt Rita!!! I remember when I must’ve been 24, no – I was 23 because I was student teaching when I was waiting in the living room of someone I used to know to get out of the shower. I was watching Baby Boom and they came downstairs. He asked me why I was watching a movie geared toward middle-aged women.
I completely ignored the sarcasm and simply told him, “It reminds me of my aunt Rita” as I changed the channel. So of course, we HAD TO watch that movie today (which I bought last year). My Mom got tired and decided to lay down for a nap just as this song was coming on, so I stopped the movie and we will watch it tomorrow.. Here is the song:
So, I have been constantly thinking about this and trying to make sense of it! Now, after 24 years of having MS, it’s necessary for me to have these outpatient procedures.
These outpatient procedures are usually early in the morning! That does NOT work out for me after 24 years of having MS.
The night before my procedure, I just don’t go to bed. I spend the evening reclined in my wheelchair. I will pray or listen to the Bible. If I lay in my bed, I’ve already relaxed way too much and I need to be alert!
My Mom took a picture of me when I was waiting for this last outpatient procedure/surgery. I am no longer 12 years old! At 43, an all nighter looks a little bit different!!!:
I got my haircut the day after this procedure, which I still don’t know what I was thinking, scheduling it like that, but I have forehead wrinkles now too.
I watched this video yesterday:
I will admit that some of these were and ARE overplayed, but two of them remind me of my seven-year-old son and his football team all in oversized, shoulder pads and dancing in the end zone!!!
That was such a great time! Here are the two songs:
Whenever I hear either one of those songs, I see my son dancing in the end zone with his friends at Dearborn high school and I love it!!! Dearborn Lions-Silver!!!
This was all back when I could still enjoy watching football. #MSsucks… 😒😒😒
My Mom got a phone call today. It was Dr. Cerghet’s office (my neurologist) to tell me that there was a cancellation and to see if I could see her today at 1:30. She told me that when I woke up today.
I thanked her for telling them that I need to be on top of my game for that appointment and that I was still sleeping so will not take the new appointment. I will keep my appointment for August 5.
I have NEVER expected it to be like this! I have entered into such a complicated dance! That’s my ENTIRE life now. I tell my Mom that all the time. It doesn’t make me angry or even sad; but I NEVER expected it!
It startles me and KEEPS startling me! For example, my Mom needs to reschedule my colonoscopy because I sleep in too late (it’s beyond my control now ) and she’s my caregiver. We were told to call back at the end of July to reschedule for the beginning of October.
So, my Mom did that today and I texted her all the dates that were possible for October. But here’s where it gets complicated, I need to stop taking my supplements for 10 days prior to my next colonoscopy. But I have a September 23 appointment with my naturopath to dose me for a supplement that will help with my gastritis.
And, to further complicate things, I rent a van to go to the Cider Mill every October! I think that will be the fourth year that we are doing it and Sean is going to come this time!
This is a dance that I NEVER wanted to be a part of, nor did I EVER think that I would be, but I am. I don’t even think it’s begrudgingly…. It’s not like that. It’s just how it is.
I’m still not feeling okay and it has been five days. I was telling my Mom today that this cystoscopy is going to happen again. Now, this is going to be a thing! I see Dr. K on August 13 so we’ll see what needs to happen for me next.
It feels like a smack in the face! I have never been smacked in the face, but I imagine that this is how it feels! Listen to what I had to do today:
I texted my Mom to call the gastroenterologist nurse tomorrow to schedule my next colonoscopy but I had caveats with that. I need to see my naturopath on September 23. That’s a Tuesday and I am currently taking all of my supplements as prescribed.
But here’s the thing, I need to NOT take my supplements for at least 10 days before I have my colonoscopy and endoscopy. That is rough on me for sure! But, the fact that I am scheduling doctors appointments to coincide with each other is kind of nuts! This is where we are now. #MSsucks!!! 😒😒😒…