Author: Jen Rios

Coasting

I’m already beginning to feel the crash. But it’s not The Breeders or even Dave Matthews, it’s Tay-Tay. More specifically, it’s Style by Taylor Swift! I am still working and rockin’ my manual wheelchair in the middle school, and I’m using the doorway of each hallway to push off of and coast down that hall.

I can’t believe how MORE able-bodied I was back then or how I am NOT now. Ilistened to this song twice before we left and I cried both times:

I looked it up because I am not a true Swiftie but this came out in 2015. February 9, 2015. I knew it was cold! The memory I have of coasting down the hall to this song that was playing in the cafeteria. I’m pretty sure that there was snow outside back then.

Serious

It began raining just as I was going to exit the house to go to my doctor appointment. I cried as I got into the van:

I groaned when I made it down the ramp from my house. By the time I was going up the ramp into the van, tears were stinging my eyes. It was just a miserable time for me!!!

I got my flu shot and I am done for the month of October, which was another brutal month! I don’t need to leave the house until November 19 so I think now I can start putting things into perspective because I can see and think a little clearer.

I made my follow up appointment for March to see her again. There will be my well check-up for HAP. I already have the first quarter of next year booked with van rentals and doctor appointments and procedures. I guess my MS is getting serious now…

#MSsucks!!! IN THIS RAIN!!! 😒😒😒…

This is my Life.

Tomorrow I have my appointment with my internist and I will get weighed and my flu shot. I’m going to tell her that she saved my life in suggesting that I get my colonoscopy. I’m still NOT okay with that by the way… I get weighed every six months just to make sure it hasn’t fluctuated that much.

Sean transferred me not too long ago and he told me that I am a lot lighter. My Mom has told me that my body is changing and I feel that as well.

I also need to have her update my medication list because I no longer take ibuprofen 800 because it gave me gastritis that I am still dealing with. I will see my naturopath in December to discuss that. I really can’t believe that this is my life now.

Maid in Manhattan

Today is day 12, post procedure and I’m feeling a little bit optimistic. We actually watched the movie today. We chose, Maid in Manhattan:

Norah Jones has been showing up in my Apple Music after my chosen songs play. Norah Jones has always reminded me of this movie and my Mom and I saw footage of Jennifer Lopez, not recognizing the boy who played Ty in the movie recently.

A Five Pack?! OR A Tinge of Sadness…

I was scrolling through Facebook today and I saw this ad which made me pause:

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Of course, I HAD TO click on the link!!! And check out what I found out?!:

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They come in a five pack now?! I used to buy mine in packs of two from Staples, not too far from my house. That store is no longer a Staples. So much has changed since I have stopped working!!! Reading all about these pens made me think a lot about teaching. I just get a tinge of sadness whenever I think about it now and what could have been… I had to stop 12 years in… #MSsucks!!! 😒😒😒…

Success!!!

Today was cider mill for us. It was a complete success!!! The weather was great for me and Sean even came with us so it was a COMPLETE family outing!!!

We got cider and donuts for a whole bunch of family members, and I really liked it!!! We stayed there longer than we did last year and I may or may not have had three donuts, but they’re so delicious and I have to eat them on the first day! I know it was rough, but I HAD TO do it!!!

I told Sean that this is an annual thing for us and we are going next year on Thursday, October 22. Sean wanted me to get out and go around with them, but I told him that the cold air would not be good for me and I’m fine just sitting in the van.

While we were there, Sean put Leia on his lap so she could see out of the window. Just as he was putting her down, she got me!!! It was a full tongue lick on the left side of my face, which I think is absolutely disgusting and Sean laughed!!!

I know where that tongue has been and it’s pretty gross, but it rarely happens so I guess I will just deal with it. I was FINALLY able to watch Hocus Pocus today and I still LOVE it!!! 😍😍😍😍😍

I ❤️ Radio

Today, when we got our haircut, I told Christina that Sean will be 24 on November 2. She was totally floored!!! She has been cutting my hair for 25 years?!

They listen to the same radio station each time I go to get our haircut and my eyebrows waxed and I was picking a montage of 80s songs to post on my blog; but, then I heard this song and I was completely floored myself! I remember singing this song and holding onto the mic stand for dear life because I was about to fall over.

I could still sing back then. My cousin was 15. I know that Sean was alive. Here’s the song:

It Really Doesn’t Matter

it has been one week since my procedure and I’m not feeling great. I’m glad that I didn’t message my one doctor the other day because I messaged a different doctor tonight!

But, it really doesn’t matter because tomorrow is ‘go time.’ We’re getting our haircut and then Thursday we’re going to the cider Mill, which I have been looking forward to all the year!!!